Research Summary: Basket Trials and Neurodegenerative Disease

Research Summary: Basket Trials and Neurodegenerative Disease

A recent drug trial by the UCSF Memory and Aging Center is the first of its kind for neurodegenerative disorders and represents an exciting new method for evaluating the effectiveness of a single drug on participants with the same underlying biology, but different diagnoses. First used in cancer research, basket trials lump together patients by disease pathology, not by diagnosis or symptoms. The UCSF trial evaluated the effectiveness of a drug, TPI-287, in treating toxic buildup of tau protein in the brains of patients with Alzheimer’s disease (AZ), corticobasal syndrome (CBS), and progressive supranuclear palsy (PSP). While the drug ultimately did not show promise, scientists still drew useful takeaways from the study, and future studies of neurodegenerative disease may benefit

NYT: Swimmers Beware of Deep Brain Stimulation

NYT: Swimmers Beware of Deep Brain Stimulation

Excerpt:  "Now, Dr. [Christian R.] Baumann warns all patients with stimulators never to go into deep water alone.  ... How the devices could interfere with swimming is not known. Dr. Baumann and his colleagues suggested that in some patients the signals may somehow affect a brain region that is crucial for coordinating limb movement. He said other complicated, learned skills might also be affected: Some patients said they could no longer ski after receiving stimulators, and one said he could not play golf anymore." 

December 2019 Webinars about Caregiving

December 2019 Webinars about Caregiving

Many caregivers cannot leave home due to caregiving responsibilities. You can participate in a web-based seminar — or webinar — from the privacy of your home. Join either live or view the archived version within a few day of the live webinar (in most cases). All webinars listed are free. All times shown are Pacific Time. Here are webinars that may be of interest to caregivers in December 2019…

December 2019 Webinars about Parkinson’s

December 2019 Webinars about Parkinson’s

You can participate in a web-based seminar — or webinar — from the privacy of your home.  Join either live or view the archived version within a few days of the live webinar (in most cases).  All webinars listed are free. All times listed are Pacific Time. Here are webinars that may be of interest to those living with Parkinson’s in December 2019…

Dec 2019 – Parkinson’s Support Group Mtgs – Guest Speakers/Programs – Northern and Central California

Dec 2019 – Parkinson’s Support Group Mtgs – Guest Speakers/Programs – Northern and Central California

While most Northern and Central California Parkinson's Disease (PD) support groups have holiday parties or are not meeting in December, a few groups do have meetings with speakers or programs.  See the list below of what is happening near you... 

“Can we repair the brain in Parkinson’s Disease?” – Webinar Notes

“Can we repair the brain in Parkinson’s Disease?” – Webinar Notes

A recent webinar from Neuroscience News & Research (NNR), part of Technology Networks, featured neurologist Dr. Roger Barker from the University of Cambridge (UK).  Dr. Barker discussed the present state and future potential of therapies that could allow for actual healing of the brain in Parkinson’s disease (PD).  We at Stanford Parkinson's Community Outreach listened to the webinar and are sharing our notes.

Happy Thanksgiving from The Stanford Parkinson’s Community Outreach team

Happy Thanksgiving from The Stanford Parkinson’s Community Outreach team

The Stanford Parkinson's Community Outreach team would like to wish you and your family a Happy Thanksgiving!  The office is closed on Thursday and Friday.  

Wall Street Journal: In ‘Marriage Story,’ Alan Alda Lets His Parkinson’s Show

Wall Street Journal: In ‘Marriage Story,’ Alan Alda Lets His Parkinson’s Show

Excerpt: "The 83-year-old actor, who announced last year that he is living with Parkinson’s disease, plays a ...lawyer. The film ... doesn’t mask Mr. Alda’s shaking hands but keeps them in the frame, a visual contrast to the slick moves of the sharklike lawyers elsewhere in the movie. The actor ... learned he had the nervous-system disorder in 2015 after his wife Arlene Alda told him he wasn’t swinging his arms when he walked. He began acting out his dreams in his sleep too, another early sign of Parkinson’s. Soon after, Mr. Alda got the diagnosis. To cope, he wedged a pillow between himself and his wife of 62 years to make it harder to reach her in those sleeping episodes and began an exercise regimen to lessen his symptoms that included boxing and marching to Sousa music." 

Nov 2019 – Parkinson’s Support Group Mtgs – Guest Speakers/Programs – Northern and Central California

Nov 2019 – Parkinson’s Support Group Mtgs – Guest Speakers/Programs – Northern and Central California

Many Northern and Central California Parkinson's Disease (PD) support group meetings have speakers or discussion programs planned in November 2019.  See the list below of what is happening near you...

November 2019 Webinars about Parkinson’s

November 2019 Webinars about Parkinson’s

You can participate in a web-based seminar — or webinar — from the privacy of your home.  Join either live or view the archived version within a few days of the live webinar (in most cases).  All webinars listed are free. All times listed are Pacific Time. Here are webinars that may be of interest to those living with Parkinson’s in November 2019...