November 2020 Webinars about Caregiving

November 2020 Webinars about Caregiving

Every month, Stanford Parkinson’s Community Outreach produces a list of caregiving-related webinars and virtual events (conferences, symposia, and teleconferences).  Here’s our November 2020 list of caregiving webinars and virtual events.  There seems to be no slow-down in the pandemic-time webinar parade.  Since November is National Caregivers Month, there are several virtual events for PD caregivers.  Most of the webinars listed are for a general audience and are free.  Be sure to register in advance! 

If you have registered for an event, even if you are unable to attend the live event, you will be alerted when the recording is available, so you can watch or listen at your convenience.

About the list below, unless indicated, all webinars and virtual events are:

  • Times listed as PT.  (We are based in California, after all.)
  • One-hour in duration.  (Commonly the speaker talks for 30-40 minutes and there’s a question-and-answer session for the remaining time.)
  • If there is no speaker indicated, the speaker is unknown at the time of this posting.
  • For a general audience.
  • Not focused on a single medication.  (Those are excluded.)
  • Free.

Denise

http://med.stanford.edu/parkinsons.html


Monday, November 2, 2020, 11am

Parkinson’s and The Good Life

Description:
Dr. Laurie Santos taught “Psychology and the Good Life” at Yale to help students cope with change and stress.  In the first half of this webinar she will discuss what new results in psychological science teach us about how to be happier, how to feel less stressed, and how to flourish more no matter your situation.

During the second half of the webinar, Davis Phinney and Connie Carpenter Phinney will help us unpack what we learned. At the end, we’ll offer some ideas for “rewirement” activities to help you create new happiness habits, boost your mood, and improve your overall well-being.

Speaker:
Laurie Santos, PhD, professor of psychology, Yale

Host: 
Davis Phinney Foundation (DPF)
Register with DPF (from this webpage).

In about a week, the webinar recording will be posted to the DPF website.


Monday, November 2, 2020, noon

COVID Fatigue & PD:  Social Connection as Medicine

Description:
Social isolation can have a negative impact on one’s health. It has never been forced upon our society collectively as it has this year. The medical community recognizes now more than ever the impact human connection and socialization has on the wellbeing of everyone, especially those dealing with Parkinson’s. The speakers discuss their recent co-authored paper about social connection as medicine, and how you can be involved in their future study.  (Waiting Room opens 5 minutes before the start-time.)

Speakers:
Laurie Mischley, ND, PhD, MPH
Indu Subramanian, MD

Host: 
PMD Alliance

Register with PMD Alliance

Within days, the recording will be posted to PMD Alliance’s YouTube channel.


Tuesday, November 3, 2020, 9am

Isolation, the Curse of Caregivers

Description:
Exhaustion and depression among caregivers often lead to decreased socialization, but socialization is an important part of self-care.  Today, recommendations for the Covid-19 response call for even greater isolation.  At the same time, Public Health experts are beginning to call isolation a national epidemic.  In this teleconference (participants call in by phone) we will discuss attitudes and responses to help caregivers, loved ones, and family members be informed and ready to combat the curse of social isolation safety during Covid-19.

Speakers:
Evalyn Greb, LCSW

Host: 
WellMed Charitable Foundation, Caregiver Teleconnection
Register with WellMed.

Within days, the recording will be posted to Caregiver Teleconnection’s SoundCloud channel.


Wednesday, November 4, 2020, 10am

10 Strategies to Thrive with Parkinson’s Disease during a Pandemic

Description:  
Much has been written about how we are all coping or not coping during this global pandemic.  Add living with a chronic disease to that equation, and the bar is raised even higher. The speaker will address some of the top strategies for coping amidst the challenges of PD and our current global health crisis.  Learn about simple lifestyle choices including ways to take care of yourself mentally and physically, right now, in order to strengthen your networks and relationships to better navigate through this pandemic.

Speaker:
Amy Chesire, LCSW-R, University of Rochester Movement Disorders, Rochester, NY

Host: 
Parkinson’s Foundation (PF)

Register on PF’s website.

At some point, a recording will be posted to PF’s website.


Wednesday, November 4, 2020, 11am

Holistic & Supportive Care for Living Well with Parkinson’s

Description:
If you’ve been living with Parkinson’s for any length of time, you’ve probably heard the terms holistic care, supportive care, or palliative care. But you may not know what they mean when it comes to your care, now and in the future.  The speaker will discuss:  what your medical team means when they talk to you about palliative care; types of providers who deliver palliative care; how to advocate and receive the kind of supportive care you need even if your community doesn’t have a palliative care center for people with PD; and how to build your Parkinson’s roadmap.

Speaker: 
– Dr. Christopher Tarolli

Host:  
Davis Phinney Foundation (DPF)

Register with DPF (from this webpage):
https://davisphinneyfoundation.org/pf/webinar-holistic-and-supportive-care-for-living-well-with-parkinsons/

In about a week, the webinar recording will be posted to the DPF website:
https://davisphinneyfoundation.org/pf/live-well-today-webinars/#recordings


Monday, November 9, 2020, noon

A Conversation with Rasheda Ali-Walsh

Description:
Rasheda Ali-Walsh was just twelve years old when her father Muhammad Ali was diagnosed.  She later went on to write a book, “I’ll Hold Your Hand So You Won’t Fall: A Child’s Guide to Parkinson’s” to encourage education and communication among children and family members.  (Waiting Room opens 5 minutes before the start-time.)

Speaker:
Rasheda Ali-Walsh, author and advocate

Host: 
PMD Alliance

Register with PMD Alliance.

Within days, the recording will be posted to PMD Alliance’s YouTube channel


Tuesday, November 10, 2020, 10am

Partnering: The Dance of Relationships and Romance 

Audience:
Patients with Young Onset Parkinson’s Disease (YOPD)

Description:
The stress of work, family and PD symptoms can be taxing on intimate relationships.  For the patient and their partner, learning how to reconnect when they feel distant and putting in place behaviors that support closeness and intimacy is key.  This presentation will offer strategies that help couples stay connected, both emotionally and physically.

Speaker:
Sheila Silver, PhD, board-certified clinical sexologist in private practice in Portland

Hosts: 
Parkinson’s Foundation (PF)

Register with PF

Within a few days, webinar recording will be posted to the PF website.


Wednesday, November 11, 2020, 10am

Caregiving from Afar

Audience: 
Adult Children, Family and Friends

Description:
Many people have a loved one with Parkinson’s disease (PD) but are not the primary person responsible for their day-to-day care. Whether geographically distanced or limited by life’s other commitments, caregivers from afar can find it difficult to know how to support the person with PD. Join us as we talk about what it means to be a caregiver from afar, ways to provide important help to the person with Parkinson’s and their primary caregivers, and ideas to empower yourself to make a positive impact for people living with Parkinson’s.

Speaker:
Adriana Gonzalez, LCSW

Host: 
Parkinson’s Foundation (PF)

Register with PF.

Within days, the recording will be posted to PF Wellness Wednesday archives.


Thursday, November 12, 8am

Safe Use of Medications for Seniors and their Caregivers

Description:
Lucy Barylak will talk about how to best manage your loved one’s medications, especially during the pandemic.  Caregivers need to understand and be vigilant about medication side effects, as well as how medications may affect someone with dementia. 

If you have a question in advance of this teleconference (participants call in by phone), submit it to caregiversos@wellmed.net.

Speaker: 
Lucy Barylak, LCSW

Host: 
WellMed Charitable Foundation, Caregiver Teleconnection

Register with WellMed.

Within days, the recording will be posted to Caregiver Teleconnection’s SoundCloud channel.


Thursday, November 12, 2020, 11am

Mental Wellness for Parkinson’s Care Partners

Audience: 
Parkinson’s care partners

Description:
The speaker will discuss:  common challenges of being a Parkinson’s care partner; signs you might be on the verge of burnout; strategies for avoiding burnout; a common challenge many care partners face and how to reduce the stress it causes; and a simple roadmap for daily mental health care.

Speaker: 
Elaine Book, social worker

Host:
Davis Phinney Foundation (DPF)

Register with DPF (from this webpage).

In about a week, the webinar recording will be posted to the DPF website.


Saturday, November 14, 7:30am-1pm

PD Caregiver Conference

Audience: 
Those caring for individuals with PD

Description:
Speakers will address specific symptoms that can make caring for an individual with Parkinson’s challenging, discuss positive and proactive caregiving strategies, celebrate the dedication with which caregivers face each day, and discuss the importance of self-care.  Specific topics include nutrition, hallucinations, REM sleep disorders, driving with PD, and navigating care transitions.  (Event recording is still being arranged

Speakers:
Kathleen Crist, LMSW
Sue Levin, PhD
Joohi Jimenez-Shahed, MD
Celeste Harris, LMSW
Christine Salinas, OTR
Maggie Abbott, DPT

Host: 
Houston Area Parkinson Society (HAPS)

Agenda

Register here here by November 5th.


Saturday, November 14, 2020, 11am-6pm

Virtual Symposium on Alzheimer’s and Lewy Body Dementia (LBD)

Audience: 
Those caring for someone with dementia

Description:
This full-day session will include evidence-based diagnostic and treatment recommendations for these leading causes of disability in the older-adult population.

Speaker:
experts in neurology, neuropsychology, social work and psychiatry

Host:
Banner Sun Health Research Institute

Register with Banner Health

The conference may be recorded and posted to Banner Health’s YouTube channel.


Tuesday, November 17, 2020, 9am

Guilty as Charged – Guilt and the Dementia Caregiver

Audience: 
Those caring for someone with dementiaDescription: Dementia caregivers have a very real risk for overwhelming feelings of guilt. In this teleconference (participants call in by phone) we will talk about guilt, types of guilt, the effects of caregiving and steps to take to survive

Speaker:
Tam Cummings, PhD

Host: 
WellMed Charitable Foundation, Caregiver Teleconnection

Register with WellMed.

Within days, the recording will be posted to Caregiver Teleconnection’s SoundCloud channel.


Tuesday, November 18, 2020, 8am

Celebrating Holidays During COVID-19

Description: 
With our biggest holidays ahead, this teleconference (participants call in by phone) will discuss ways to be together safely, tips for travel and what precautions to take during our ongoing COVID-19 pandemic.

Speaker:
Elliot Montgomery Sklar, PhDLucy Barylak, MSW

Host: 
WellMed Charitable Foundation, Caregiver Teleconnection

Register with WellMed.

Within days, the recording will be posted to Caregiver Teleconnection’s SoundCloud channel.


Wednesday, November 18, 2020, 10 am

Care Partner Town Hall: Self-Care @ Home

Audience: 
Those providing care and support for a loved one living with Parkinson’s

Description: 
Self-care is an essential part of your caregiving tools. The speakers will discuss ways to help you stay well in this critical role by carving out time to focus on you. We will also explore caregiving resources and recognize National Family Caregiving Month, with a special shout-out to our Parkinson’s care partners.

Speakers:
Amanda Janicke, LCSW, Parkinson’s Foundation Helpline Information Specialist
Anna Hedges, MSW, Parkinson’s Foundation Helpline Information Specialist The Power of Creative Connection

Host: 
Parkinson’s Foundation (PF)

Register on the PF website.

Within a few days, webinar recording will be posted to the PF website.


Wednesday, November 18, 2020, 10am-11:30am

Taboo Topics Series: Weapons & Safety

Description:
Dementia can bring about changes that, though common, can be difficult to talk about. However, no problem has been solved by ignoring it. Banner Alzheimer’s Institute & Banner Sun Health Research Institute invites experts to help us learn more about taboo topics to have a better understanding and insight.

Host: 
Banner Sun Health Research Institute

Register with Banner Health.

The conference may be recorded and posted to Banner Health’s YouTube channel.


Wednesday, November 18, 11am

Well-Being Tips: Stress Management for Family Caregiver

Description:
As caregivers, we always have to balance managing the needs of the people we care for and taking care of your own needs. Unfortunately, our own health and well-being as caregivers often suffers as responsibilities and tasks pile up. This session will focus on key aspects of well-being, and how to make time for daily check-ins with yourself. We will focus on building on your current coping and stress management activities.

Speaker:
Amy Sobrino, LCSW

Host: 
Family Caregiver Alliance (FCA)

Register with FCA.

The webinar may be recorded and posted to FCA’s archived webinars page in a week, or so.


Wednesday, November 18, 2020, 1pm-2:30pm

The Power of Creative Connection

Description: 
This workshop will focus on deepening the interaction between family caregivers and their aging loved ones through the process of creative activity. Participants will learn about resources and other simple activities that will allow them to connect virtually using common items from around the house.  Find new ways to engage and improve quality connections in person and virtually and enhance your connection with your aging loved one.

Experts will guide participants in an interactive activity, giving them a process which to emulate.

Speakers:
Jen Tripathy, MFTJessica McCracken, MPA

Host: 
Seniors at Home

Register through the EventBrite website.


Thursday, November 19, 2020, noon

Introducing the PD Care Website Tool

Description:
Dr. Torres-Yaghi introduces the PD Care website and tool that goes beyond existing hospital kits, helping to prepare for appointments, communicate information to providers and assist individuals when they arrive at a hospital on an emergency basis.  (Waiting Room opens 5 minutes before the start-time.)

Speaker:
Yasar Torres-Yaghi, MD

Host: 
PMD Alliance

Register with PMD Alliance.

Within days, the recording will be posted to PMD Alliance’s YouTube channel.


Friday, November 20, 2020, 10am

Behavior & PD And What the Family Should Know

Description:
Mood, behavioral, and psychological changes in Parkinson’s are common but not always fully understood by family members. Understanding what is caused by changes in the brain or a reaction to the disease can be helpful in responding to loved ones.  (Waiting Room opens 5 minutes before the start-time.)

Host: 
PMD Alliance

Register with PMD Alliance.

Within days, the recording will be posted to PMD Alliance’s YouTube channel.


Saturday, November 21, 2020, 9-11am 

Care Partner Summit

Audience: 
Care partners of people with Parkinson’s

Description: 
This summit aims to give care partners a better understanding of PD and strategies on maintaining a healthy mindset and positive outlook.  A speaker will address being a care partner during the holidays and another will address the importance of self-compassion.  Participants will be able to choose from breakout rooms with assigned topics to share their experiences and ideas openly with other care partners.  (Event is open one hour before and one hour after to visit sponsors.)

Speakers:
Cari Friedman, LCSW, social worker, Parkinson Association of the Rockies
Evan Plys, PhD, clinical psychologist, University of Colorado

Host: 
Parkinson Association of the Rockies (PAR), Denver

Register on the PAR website.

At some point, the recordings of the presentations (minus the Q&A) will be posted to the PAR YouTube channel.


Monday, November 23, 2020, 11:30am

Coping with Grief During the Holidays

Description:
Hospice of the Valley and Banner Sun Health Research Institute are offering a Skype online presentation to help participants learn to recognize the uniqueness of grief during the holidays, identify some helpful coping mechanisms for grief, and learn supportive ways to help both you and loved ones uniquely navigate the journey of loss during this unique holiday season. You don’t need to face this difficult time alone.

Host: 
Banner Sun Health Research Institute

Register with Banner Health

The conference may be recorded and posted to Banner Health’s YouTube channel.


Monday, November 30, 2020, noon

Keeping Active and Motivated in Winter

Description:
As the winter season sets in, you might be finding yourself indoors more often and being less active.  Physiotherapist Shelly Yu shares ideas on how you can keep active and motivated. She will offer practical tips, new exercises, and recommendations on frequency and intensity of exercise.

Speaker:
Shelly Yu, physiotherapist, PSBC

Host:
Parkinson Society British Columbia (PSBC)

Register with PSBC by November 25th!

The recording will be posted to PSBC’s website.