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Please Participate – Survey of the Financial and Social Impact of PD and Atypical Parkinsonism

May 16, 2025 By Denise Dagan

American Parkinson Disease Association logo

We invite you to participate in a very important survey, supported in part by the American Parkinson Disease Association, to help researchers better understand the costs associated with Parkinson’s and the impact the disease has on family finances. The survey is open now until June 16.

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Filed Under: Featured, News, Research

“Research Opportunities for those with Parkinson’s Disease” (virtual) Palo Alto PD Support Group, Wednesday, April 9, 2:30-4pm

April 1, 2025 By Denise Dagan

Stanford Medicine Logo

On Wednesday, April 9, at 2:30pm three research coordinators from Stanford will talk about research opportunities for those with Parkinson’s Disease (and perhaps healthy controls). We will hopefully receive all speakers’ permission to record the talks and post them to the Palo Alto Parkinson’s support group webpage, but attend in person so you can ask questions via the chat or the Question box.

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Filed Under: Events, Research

California Attorney General Urges Customers to Delete 23andMe Genetic Data

March 24, 2025 By Parkinson's Community Help

23andMe logo

On Friday, March 21, 2025, the California Attorney General issued an urgent customer alert to those who have a 23andMe account.  In its alert, the AG’s office provides instructions for how to delete your genetic data; request 23andMe destroy your test sample; and revoke permission for your genetic data to be used for research.  There are still concerns about what data will be retained by 23andMe. 

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Filed Under: News, Research

APDA: The PD Movers – We Keep Moving

February 3, 2025 By Parkinson's Community Help

APDA The PD Movers - We Keep Moving cover

February marks Black History Month, a time to honor the profound contributions of Black individuals and reaffirm our dedication to equity in care. APDA is proud to collaborate with PD Movers, a group uniting researchers, doctors, and Black individuals with Parkinson’s to amplify diverse voices in the community.

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Filed Under: Research

Stanford is looking for those with PD and healthy controls to participate in a study about aging

July 29, 2024 By Parkinson's Community Help

Stanford Medicine logo

Stanford Neurology, in collaboration with SRI, is looking for people with Parkinson’s disease (PD) and healthy volunteers, between the ages of 50 and 80.  The goal of this research is to learn more about changes in cognition and motor function with aging.

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Filed Under: Research

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Featured Posts

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Join us on Wednesday, August 13, at 2:30pm PT to hear Stanford Neurololgy autonomic specialist … [Read More...]

Please Participate – Survey of the Financial and Social Impact of PD and Atypical Parkinsonism

We invite you to participate in a very important survey, supported in part by the American … [Read More...]

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