These blogs, podcasts and other online publications are about caregiving. They are by caregivers, journalists, experts and staff writers. Most are about taking care of yourself as a caregiver, getting your affairs in order, advocating for your loved one, etc. Some are personal experiences with tips for caregiving.
Pick a few and have a read or a listen. You may learn something and you will definitely not feel alone in being a caregiver.
The American Parkinson Disease Association (APDA) is starting a new virtual support group for teens (13-19 years old) whose parent has young onset Parkinson’s disease (YOPD). The group begins on October 2, 2025, and will be held on the first Thursday of each month, 4-5pm PT. The group is a safe, welcoming space to share experiences with other teens, ask questions, and support one another. You are not alone! Sign up now to be added to the meeting reminder email list.
… Full Story>
On Tuesday, June 10, from 7-8:30pm, Stanford movement disorders specialist Margaret Ferris, MD, will be speaking to the Stanford Young Onset Parkinson’s Disease (YOPD) Support Group. Topics will include traveling, children, genetics, work, PD mimics, and a bit about upcoming stem cell trials. People in Northern California with YOPD can get the login details by contacting Robin Riddle.
… Full Story>
Many people associate palliative care with exclusively end-of-life care, but that’s a misconception. In November 2024, the Palo Alto PD Support Group hosted a talk with Stanford’s Dr. Jocelyn Jiao who shed light on the true nature of palliative care and its profound impact on individuals living with Parkinson’s disease. Dr. Jiao is a movement disorder and palliative care specialist. Read our notes from her talk.
… Full Story>Stanford Movement disorder specialist and palliative care physician Jocelyn Jiao, MD, will speak to the Willow Glen Parkinson’s Support Group on Friday, March 7, at 10am. Dr. Jiao will provide an overview of palliative care and how it can help with Parkinson’s symptom management.
… Full Story>