On August 23 PMD Alliance hosted a webinar on Thriving with PD. Of particular interest is the portion of the speaker's comments beginning at timestamp 23:45 about the difference between depression and demoralization.
“Sleep Matters: A Review of Sleep Issues in Parkinson’s” – Webinar Notes (related to sleep issues)
October 15, 2021 By
In mid-October, the American Parkinson Disease Association’s Massachusetts chapter (APDA MA) hosted a webinar on sleep issues in Parkinson’s disease (PD). The webinar featured movement disorder specialist Dr. Okeanis Vaou who described common sleep disorders in PD and how to treat them. Sleep disorders are present in about 66-99% of people with PD.
“Fatigue in PD”- Webinar Notes
October 14, 2021 By
In mid-June, the PMD Alliance hosted a webinar on fatigue in Parkinson’s Disease (PD). The webinar featured movement disorder specialist Dr. Joseph Friedman, who discussed the difference between fatigue and sleepiness, the kinds of fatigue, and how to measure and treat it. Fifty percent of people with PD will rate fatigue as one of their worst symptoms, and one-third of PD patients rate fatigue as their single worst symptom. It is the most important reason cited for medical disability insurance claims by PD patients in the US.
Dr. Gilbert Hosts: How to Outsmart Parkinson’s Disease: Tips and Tricks from an Occupational Therapist – APDA Webinar on October 20, noon PT
October 11, 2021 By
On the next episode of "Dr. Gilbert Hosts," Dr. Erin Foster will suggest helpful ways to organize your surroundings and improve your daily routines, so you can function at your best. Learn new approaches to using the computer, using your cell phone, writing, preparing meals, and organizing your home. Register now for this American Parkinson Disease Association (APDA) webinar, taking place on October 20, noon PT.
A speech therapist’s advice for coping with communication, swallowing, and cognition changes in Parkinson’s – Webinar Notes
October 8, 2021 By
In September, the Parkinson Society British Columbia hosted a webinar on “language impairment” in Parkinson’s disease (PD) though the focus was on how those with PD and caregivers can cope with communication, swallowing, and cognition changes. The coping strategies were suggested by speech language pathologist Jamie Russell. We took notes during the webinar and shared them here.
“Parkinson’s Disease and the Environment” – Webinar Notes
October 7, 2021 By
In mid-June, the American Parkinson Disease Association (APDA) hosted a webinar on the environment’s impact on the risk of developing Parkinson’s disease (PD). The webinar featured movement disorder specialist Dr. Carlie Tanner, with the University of California San Francisco. The webinar consisted of a 15 minute presentation and a 45 minute question and answer session, where she detailed specific risk factors based on audience interest.
“Creating a Self-Care Practice with a Toolbox, Flexibility, and Self-Love” (by a PD caregiver)
October 7, 2021 By
Angela Robb is a 25-year wife and care partner for her husband Karl, diagnosed with Young Onset Parkinson’s Disease (YOPD) for over 30 years. Here's a short article Angela wrote on self-care for PD caregivers, recently published on the World Parkinson Congress blog.
October 2021 – Parkinson’s Webinars and Virtual Meetings with Speakers
October 5, 2021 By
Every month, Stanford Parkinson’s Community Outreach produces a list of Parkinson’s-related webinars and virtual meetings with speakers. Here’s our October 2021 list.
October 2021 – Caregiver Webinars and other Virtual Events
October 4, 2021 By
Every month, Stanford Parkinson’s Community Outreach produces a list of Parkinson’s-related webinars and virtual meetings with speakers. Here’s our October 2021 list.
Onset of Skin, Gut, and Genitourinary Prodromal Parkinson’s Disease: A Study of 1.5 Million Veterans
October 4, 2021 By
This interesting new research of 300,000 people with PD and 1.2 million matched controls explored prodromal Parkinson's disease by studying the skin, genitourinary, and gastrointestinal issues reported. The researchers say that studying these systems "offers a unique window for understanding early disease pathogenesis and developing disease modifying treatments."