“Parkinson’s Disease and Dementia” – Webinar Notes On October 28th

“Parkinson’s Disease and Dementia” – Webinar Notes On October 28th

Parkinson Society British Columbia hosted a webinar on Dementia in Parkinson's.  The speaker was geriatrician Naaz Parmar. Sadly, just because you have Parkinson’s doesn’t mean you can’t also have other disorders, like dementia.  In this talk Dr. Parmar covered the usual, a definition of dementia, when should you have an assessment and what does that look like, the different types of dementia and finally, treatments.  But, her argument about getting an early and accurate diagnosis​ for cognitive or memory changes was compelling.

“Driving and Road Safety for People with PD” – Lecture Notes

“Driving and Road Safety for People with PD” – Lecture Notes

Parkinson & Movement Disorder Alliance offered a webinar in early November on driving and road safety with Parkinson’s disease (PD). The speaker was Dr. Ergun Uc, a professor of neurology at the University of Iowa and movement disorder specialist with the Iowa City Veteran Affairs. He discussed research into how PD has affected their driving, and ways to make sure drivers with PD can be safe on the road.

“Neurogenic Orthostatic Hypotension: Diagnosis, Management, and Research” – Lecture Notes

“Neurogenic Orthostatic Hypotension: Diagnosis, Management, and Research” – Lecture Notes

The Multiple System Atrophy Coalition hosted a two-day conference in late October on various aspects of multiple system atrophy (MSA), which is a disorder similar to Parkinson’s disease (PD). (MSA is called an atypical parkinsonism disorder.) One of the talks, presented by Katie Kompoliti, MD, a movement disorder specialist at Rush University, focused on neurogenic orthostatic hypotension (nOH), which can occur in PD as well. Neurogenic orthostatic hypotension refers to a neurological disorder causing a large decrease in blood pressure when a person stands after sitting or lying down. 

“Blood Pressure Issues” – Lecture Notes

“Blood Pressure Issues” – Lecture Notes

The Multiple System Atrophy Coalition offered a two-day conference in late-October on various aspects of multiple system atrophy (MSA), which is a disorder similar to Parkinson’s disease (PD) (MSA is called an atypical parkinsonism disorder). One of the talks, presented by Tom Chelimsky, MD, a neurologist at Wisconsin Medical College, focused on blood pressure issues, mostly in multiple system atrophy patients, but his advice applies to Parkinson’s patients. 

Nature: Synergy of pandemics-social isolation is associated with worsened Parkinson severity and quality of life

Nature: Synergy of pandemics-social isolation is associated with worsened Parkinson severity and quality of life

This recently published research article in the journal Nature demonstrates the importance of "belonging" to a social network, such as a support group, if you have Parkinson's Disease (PD).  This is especially true during the pandemic of isolation within the larger pandemic of COVID-19.  The data suggest that people who have regular opportunities for socialization do better with PD, and that it is "neuroprotective," just like exercise.  No doubt this applies to us all -- whether we have PD or not! 

NYT: When It Comes to Living With Uncertainty, Michael J. Fox Is a Pro

NYT: When It Comes to Living With Uncertainty, Michael J. Fox Is a Pro

In his fourth memoir, “No Time Like the Future,” the actor and activist opens up about his newfound, uniquely upbeat brand of pessimism.

“Fireside Chat with Soania Mathur, MD” – Discussion Notes

“Fireside Chat with Soania Mathur, MD” – Discussion Notes

The Parkinson Association of Northern California (PANC) hosted a day-long conference on Parkinson’s disease (PD). One of the talks was a fireside chat on living with Parkinson’s. The moderator was Suketu Khandhar, MD, movement disorder specialist at Kaiser Permanente. The keynote speaker was Soania Mathur, MD, who was diagnosed with Parkinson’s at 28 years old and has been living with Parkinson’s for 21 years. 

Register Now for Two-Day Virtual Parkinson’s Symposium, November 19 and November 20

Register Now for Two-Day Virtual Parkinson’s Symposium, November 19 and November 20

This two-day virtual symposium features speakers from the upper midwest.  On Thursday, November 19, speakers address what's new in PD treatment; challenging non-motor symptoms; and hallucinations and delusions.  On Friday, November 20, speakers address thriving with purpose in this uncertain world; exercise research; and the what/why of PD medications.  Register now.

“Being a PD Caregiver” – Webinar Notes

“Being a PD Caregiver” – Webinar Notes

On October 19, the American Parkinson Disease Association (APDA) hosted a webinar on "Being a PD Caregiver." The guest speaker was Lianna Marie, RN, whose mother had Parkinson's Disease. Lianna evolved from being a motivator and cheerleader to a caregiver. Stanford Parkinson's Community Outreach listened to the webinar and are sharing our notes.

“Bladder Issues (in MSA)” – Lecture Notes (relevant to Parkinson’s)

“Bladder Issues (in MSA)” – Lecture Notes (relevant to Parkinson’s)

The Multiple System Atrophy Coalition hosted a two-day conference in late October on various aspects of MSA, which is a disorder similar to Parkinson’s disease (PD). MSA is called an atypical parkinsonism disorder.  One of the talks, presented by Dr. Michael Guralnick, a urologist at Froedtert Hospital in Milwaukee, focused on urinary frequency, urgency, and incontinence. These are bladder symptoms of both MSA and PD.