“Holistic Health and Wellness” – Lecture Notes

“Holistic Health and Wellness” – Lecture Notes

“Holistic Health and Wellness” was a session presented by Stanford movement disorder specialist Dr. Maya Katz at the “Better Lives, Together Summit.”  The summit, held in late February, was organized by the Fresno Parkinson’s Support Group. In her session, Dr. Katz reviewed the concept of total health. She said that physical, psychological, social, and spiritual health all need to be addressed by your care team. 

“Movement & Nutrition” – Webinar Notes

“Movement & Nutrition” – Webinar Notes

“Movement & Nutrition” was a webinar hosted by the American Parkinson Disease Association (APDA), as part of its “Let’s Keep Moving with the APDA” series. This webinar featured registered dietitian Rachel Reynolds.  Rachel detailed how a balanced diet is helpful for everyone’s health and especially helpful for people with Parkinson’s Disease (PD). Rachel states that on average, Americans are getting more protein than they actually need. For those with PD, this can be problematic because a higher protein intake can result in needing a higher dose of Sinemet, which can lead to negative side effects.  She recommends eating a balanced diet of whole grains/starches, vegetables, and protein. 

“APDA Virtual Research Roundtable”

“APDA Virtual Research Roundtable”

In late February 2021, the American Parkinson Disease Association (APDA) hosted four of its APDA-funded researchers to provide an update on what their labs have been working on. In the “APDA Virtual Research Roundtable,” Dr. Vikram Khurana discussed his lab’s research in stem cells; Dr. Karen Nuytemans discussed identifying genetic factors that influence development of PD in hispanic populations; Dr. Brian Daniels explained his research of the role of inflammation and genetics in PD, and Dr. Bonnie Wong described her research into the effectiveness of telehealth visits during COVID and beyond. The researchers answered questions from the listeners.  

Irish Times: Michael J Fox – ‘In the wheelchair, I’m luggage. No one listens to luggage’

Irish Times: Michael J Fox – ‘In the wheelchair, I’m luggage. No one listens to luggage’

Two years ago, Michael J Fox had surgery to remove a benign tumour on his spinal cord. The actor and activist, who had been living with Parkinson’s disease for nearly three decades, had to learn to walk all over again.

April is Parkinson’s Awareness Month!

April is Parkinson’s Awareness Month!

Parkinson's Awareness Month is about bringing attention to the Parkinson's community. Think about things you can do to raise awareness of Parkinson's Disease in your local area and your needs, particularly if they are unmet needs. Talk to your local newspaper, to your religious community, to your local hobby group, to your fitness class members, etc. Let them in one what it's like to cope with Parkinson's Disease.

April 2021 Caregiver Webinars and other Virtual Events

April 2021 Caregiver Webinars and other Virtual Events

Every month, Stanford Parkinson’s Community Outreach produces a list of caregiving-related webinars and virtual events (conferences, symposia, and teleconferences). Here’s our lengthy April 2021 list of caregiving webinars and virtual events.  Most of the webinars listed are for a general audience and are free.  Be sure to register in advance!  Some of the events have registration deadlines.

April 2021 – Parkinson’s Webinars and Virtual Meetings with Speakers

April 2021 – Parkinson’s Webinars and Virtual Meetings with Speakers

Every month, Stanford Parkinson’s Community Outreach produces a list of Parkinson’s-related webinars and virtual meetings with speakers.  Here's our April 2021 list.  Note that a few webinars have registration deadlines well in advance of the webinar dates.

Stretching is crucial for those with Parkinson’s

Stretching is crucial for those with Parkinson’s

Parkinson Association of the Rockies (ParkinsonRockies) hosted a webinar on Practitioner Assisted Stretching for Parkinson's Disease at the end of January.  The event conflicted with another webinar, so I just got around to watching it last week.  Well, I watched some of it.  Honestly, I found it to be more of an infomercial for a fitness center than a talk about the benefits of stretching for those with Parkinson's disease (PD).  But it did make me realize that, while there is much said about the importance of exercise in maintaining quality of life for those with PD by slowing disease progression, there is not much emphasis placed on the importance of stretching as a part of a good PD exercise routine.  But stretching is of crucial importance. 

“Dr. Gilbert Hosts: Cognition & Parkinson’s Disease” – Webinar Notes

“Dr. Gilbert Hosts: Cognition & Parkinson’s Disease” – Webinar Notes

“Dr. Gilbert Hosts: Cognition & Parkinson’s Disease” featured guest speaker Kathleen Poston on the topic of cognition and dementia in Parkinson’s disease. It was part of the “Dr. Gilbert Hosts” series hosted by Dr. Rebecca Gilbert, the chief scientific officer at the American Parkinson Disease Association (APDA). 

“Death and Dying and Parkinson’s” – Webinar Notes

“Death and Dying and Parkinson’s” – Webinar Notes

“Death and Dying and Parkinson’s” is a webinar hosted in mid-February by the Davis Phinney Foundation (DPF). The speakers were DPF YOPD (Young Onset Parkinson’s Disease) Council members. They addressed the importance of talking about death early so you can live your fullest life. Though the speakers are all coping with Young Onset PD, we are sharing our notes with a broader audience as the webinar is relevant for us all.