“Creating a Self-Care Practice with a Toolbox, Flexibility, and Self-Love” (by a PD caregiver)

“Creating a Self-Care Practice with a Toolbox, Flexibility, and Self-Love” (by a PD caregiver)

Angela Robb is a 25-year wife and care partner for her husband Karl, diagnosed with Young Onset Parkinson’s Disease (YOPD) for over 30 years.  Here's a short article Angela wrote on self-care for PD caregivers, recently published on the World Parkinson Congress blog. 

Onset of Skin, Gut, and Genitourinary Prodromal Parkinson’s Disease: A Study of 1.5 Million Veterans

Onset of Skin, Gut, and Genitourinary Prodromal Parkinson’s Disease: A Study of 1.5 Million Veterans

This interesting new research of 300,000 people with PD and 1.2 million matched controls explored prodromal Parkinson's disease by studying the skin, genitourinary, and gastrointestinal issues reported.  The researchers say that studying these systems "offers a unique window for understanding early disease pathogenesis and developing disease modifying treatments." 

APDA Blog Post:  Why exercise is critical for people with Parkinson’s disease

APDA Blog Post: Why exercise is critical for people with Parkinson’s disease

Dr. Rebecca Gilbert with the American Parkinson Disease Association (APDA) shares the four major reasons why it is critical to exercise with Parkinson’s Disease (PD).  One reason is that longevity in PD is associated with increased physical activity.

What It Feels Like to Live With Parkinson’s

What It Feels Like to Live With Parkinson’s

By Steven Heller and Véronique Vienne.  June 23, 2021 (paywall) Steven Heller, 70, has lived with Parkinson’s for more than 10 years. Véronique Vienne, 79, only recently learned that she had the disease. Both have had long careers as art directors, and the two have been friends for more than three decades. Back in March, the pair exchanged a flurry of emails over a 10-day period, where they explored the “before” and “after” of a Parkinson’s diagnosis. Here is an edited version of their conversation.

APDA Blog Post:  Improve your Routine with Helpful Advice & Tips from People with PD and Care Partners

APDA Blog Post: Improve your Routine with Helpful Advice & Tips from People with PD and Care Partners

Dr. Rebecca Gilbert with the American Parkinson Disease Association (APDA) notes that small changes in your routine can have a big impact on quality of life in Parkinson's Disease (PD).  In this blog post, she shares tips from the PD community — those with PD and their care partners — on diet, nutrition, exercise, medication, and mental health. 

Irish Times: Michael J Fox – ‘In the wheelchair, I’m luggage. No one listens to luggage’

Irish Times: Michael J Fox – ‘In the wheelchair, I’m luggage. No one listens to luggage’

Two years ago, Michael J Fox had surgery to remove a benign tumour on his spinal cord. The actor and activist, who had been living with Parkinson’s disease for nearly three decades, had to learn to walk all over again.

APDA: What’s New in Deep Brain Stimulation (DBS)?

APDA: What’s New in Deep Brain Stimulation (DBS)?

The idea of brain surgery can seem frightening. But for many with Parkinson’s disease (PD), deep brain stimulation (DBS) is a procedure that can have a significant positive impact on their quality of life. It’s important to note that it cannot help everyone with PD, and it may not be the right choice for you or your loved one for a variety of reasons – but APDA has a wealth of resources to help you learn more and answer many of your questions.

Washington Post: Our eyes may provide early warning signs of Alzheimer’s and Parkinson’s

Washington Post: Our eyes may provide early warning signs of Alzheimer’s and Parkinson’s

Forget the soul — it turns out the eyes may be the best window to the brain. Changes to the retina may foreshadow Alzheimer’s and Parkinson’s diseases, and researchers say a picture of your eye could assess your future risk of neurodegenerative disease.

APDA – What’s on your Mind? Mental Health & PD

APDA – What’s on your Mind? Mental Health & PD

Mental health is defined as emotional, psychological and social well-being and is an essential part of everyone’s overall health. It is particularly important to understand mental health as it relates to someone with Parkinson’s disease (PD).

Reducing falls for older adults: What’s different during the pandemic?

Reducing falls for older adults: What’s different during the pandemic?

At the start of 2020, an 82 year-old man we'll call Walter was using many of the strategies that we have been discussing throughout this series Reducing Falls For Older Adults -- staying active, managing his chronic conditions, and exercising to improve his balance.