Every month, Stanford Parkinson’s Community Outreach produces a list of caregiving-related webinars and virtual events (conferences, symposia, and teleconferences). Here’s our lengthy April 2021 list of caregiving webinars and virtual events. Most of the webinars listed are for a general audience and are free. Be sure to register in advance! Some of the events have registration deadlines.
The list below is webinars and virtual events (such as a conference, symposium, or teleconference) we know about in April 2021 that are focused on Caregiving. Note: the first webinar is on April 1st and some events have registration deadlines early in the month!
Here are the topics that jumped out to me in this month’s offerings:
April 8: Providing Personal Hygiene for a Loved One with Dementia
April 8: Navigating a Changing Role in your Parent’s Wellbeing
April 20: A Conversation with Michael J. Fox: Testing the Limits of Optimism
April 27: The Trouble with Adult Siblings
April 30: Integrated Care – Building a One-Stop Shop for all your Parkinson’s Needs
We encourage you to register for any of these events you are interested in. That way, if you aren’t able to attend the live event, you will be alerted when the recording is available.
About the list below, unless indicated, all webinars and virtual events are:
- Times listed as PT. (We are based in California, after all.)
- One-hour in duration. (Commonly the speaker talks for 30-40 minutes and there’s a question-and-answer session for the remaining time.)
- If there is no speaker indicated, the speaker is unknown at the time of this email.
- For a general audience.
- Not focused on a single medication. (Those are excluded.)
- Free.
- Posted to the host website or YouTube channel in about a week.
– Denise
Thursday, April 1, 10:30am
Who’s Who in Mental Health
Description:
Navigating the complex world of medical abbreviations, experience, and specialties can be overwhelming. Learn the ins and outs of the mental health profession to gain knowledge and confidence the professional you choose is the right fit for you!
Speaker: Chelsea Dooley
Host: Neuro Challenge
Register here.
The webinar recording will likely be posted to the Neuro Challenge YouTube channel.
Tuesday, April 6, 12pm
Health Disparities and Parkinson’s: Understanding the Role of Trust
Description:
Racial differences in Parkinson’s treatment and mortality exist. When it comes to addressing these disparities, the concept of trust comes up in nearly every conversation. Panelists will examine the concept of trust, what we mean when we talk about trust, and how trust is necessary to address health disparities.
Moderator: David Leventhal, Program Director, Dance for PD
Speakers:
Altaf Saadi, MD, Neurologist
Consuelo H. Wilkins, MD, Geriatrician
Host: Davis Phinney Foundation (DPF)
Register here.
The webinar recording will be posted to the DPF YouTube channel.
Wednesday, April 7, 10am
Understanding Thinking Changes in Parkinson’s
Description:
Learn key features of cognitive impairment in Parkinson’s disease, including what symptoms may occur and why they may develop. Strategies for dealing with cognitive changes will be discussed, along with medications and potential research interventions in the field. An interdisciplinary approach regarding cognitive impairment in Parkinson’s disease will be highlighted with the role of the movement disorders neurologist on the team.
Speaker: Jennifer G. Goldman, MD
Host: Parkinson’s Foundation (PF)
Register here.
The webinar recording will be posted to the PF Wellness Wednesdays webpage.
Thursday, April 8, 8am (a teleconference, not a webinar)
Providing Personal Hygiene for a Loved One with Dementia
Description:
An interactive discussion about the challenges that come up with providing personal hygiene care for a loved one with dementia. The speaker will provide tips on how to best help your loved one in bathing, grooming, dressing and dental care.
Speaker: Lucy Barylak, MSA
Host: WellMed Caregiver TeleConnection
Register here.
The teleconference recording will be posted to the WellMed Caregiver TeleConnection SoundCloud station.
Thursday, April 8, 1pm
Beyond Movement Changes: The Emotional Impact of Parkinson’s Disease
Description:
While changes in movement are a prominent feature in the progression of Parkinson’s disease, there are common emotional changes that may occur as well. Learning to better understand emotional changes can help you increase your awareness and limit frustration.
Host: Banner Health
Register here.
There is no indication this webinar will be recorded and posted to the web for later viewing. Attendees should inquire about this during the webinar in the chat box, if they are interested.
Thursday, April 8, 2pm – 3:30pm
Hospice and Palliative Care 101: Everything You Should Know
Description:
What is the difference between Hospice and Palliative care? What is the right choice for a situation? When and how can you get a Palliative care consultation?
Speakers:
Chris Ritzo, RN, Outreach Nurse, Mission Hospice & and Home Care
Gwen Harris, Geriatric Care Manager at Seniors At Home
Hosts: Seniors At Home, and Mission Hospice & Home Care
Register here.
We find no indication that this event will be recorded. We suggest registrants inquire during the event.
Thursday, April 8, 3pm
Navigating a Changing Role in your Parent’s Wellbeing
Description:
This program is for adult children of people with Parkinson’s. Participants will provide and receive guidance and advice, in a safe, supportive environment; while sharing ideas and discussing the challenges associated with being an adult child of a person with PD.
Facilitator: Stacey Carlin
Host: Neuro Challenge
Register here.
This event will not be recorded because of the personal nature of the information shared.
Saturday, April 10, noon
Ask Dr. Liz: A Geriatrician Can Help
Description:
Dr. Liz discusses how bringing a geriatrician onto your medical team can be helpful, during her weekly Facebook Live event.
Speaker: Elizabeth Landsverk, MD
Host: ElderConsult Geriatric Medicine
Tune in here.
A recording of the webinar will be posted to Dr. Liz Geriatrics facebook videos page.
Wednesday, April 14, 10am
Social Engagement: [The Benefit of] Brain Games
Description:
Not just fun and games, studies suggest there are also many cognitive benefits for people with Parkinson’s who participate in puzzles, trivia, and brain teasers. Boost your wits and your mood by joining with peers for SCATTERGORIES! Scattergories is a creative-thinking and category-based game where teams will be given an initial letter and name objects starting with that letter within a time limit. It’s easy and fun…but not too easy!
Host: Parkinson’s Foundation (PF)
Register here.
This event will not be recorded to protect the privacy of participants.
Wednesday, April 14, 11am
Our Journey: Living with Parkinson’s
Description:
To raise awareness of Parkinson’s disease and its profound effect on the lives of those living with the disease, Parkinson’s BC has assembled a panel of four presenters who have lived with PD to share their stories.
Panelists:
Mike Scales, newly diagnosed
Gina Lupino, living with Young Onset Parkinson’s
Debbie Hartley, living well with Parkinson’s for 8 years
Mark Hutchinson, speaking from a carepartner perspective
Host: Parkinson Society British Columbia
Registration closes April 7. Register here.
The webinar recording may be posted to the PS BC YouTube channel.
Tuesday, April 20, 10am
Mental Well-being and Memory [in Parkinson’s]
Description:
This presentation will review how normal aging affects cognitive performance and the best-evidence practices to support cognition. Also addressed will be how PD affects cognition as the disease progresses, including the evidence-based treatments for cognitive impairment and dementia in PD. Finally, listeners will learn how medications can adversely affect cognition in PD and which ones to avoid.
Speaker: Gregory Pontone, MD
Host: Parkinson’s Foundation (PF)
Register here.
In about a week, a recording of the webinar will be posted to the Past Expert Briefings Webinars page on the PF website.
Tuesday, April 20, noon
Real Talk for Care Partners: How to Help Your Loved One with Movement
Description:
As a care partner of someone living with PD or Lewy Body Dementia (LBD), helping your loved one with movement can be challenging. It can be difficult to determine when someone can’t move, such as being frozen, versus when they won’t. Teepa Snow, MS, OTR/L, nationally recognized educator about dementia caregiving, will discuss the differences between someone not being able to move and not being willing to do so, and what the next steps may be.
Speaker: Teepa Snow, MS, OTR/L
Host: PMD Alliance
Register here.
A recording of the webinar may be posted to the PMD Alliance YouTube channel.
Tuesday, April 20, 2pm
A Conversation with Michael J. Fox: On Testing the Limits of Optimism
Description:
Michael J. Fox discusses his latest memoir, “No Time Like the Future: An Optimist Considers Mortality.” Join us for this special conversation during Parkinson’s Awareness Month as Michael answers the question: Are there limits to optimism?
Speakers:
Michael J. Fox, Actor, Author, Co-founder of the Michael J. Fox Foundation, person with Parkinson’s
Debi Brooks, Co-founder of the Michael J. Fox Foundation
Host: Michael J. Fox Foundation (MJFF)
Register here on the MJFF website.
A recording of this webinar will be posted to the MJFF webinars page.
Saturday, April 24, 12pm
Families with Dr. Liz
Description:
What should you look for in assisted-living for elders with dementia especially when they have challenging behaviors? Some of them look like a fancy hotel but is that the best? How do you know? What do you do when things don’t work?
Speaker: Elizabeth Landsverk, MD
Host: ElderConsult Geriatric Medicine
Tune in here.
A recording of the webinar will be posted to Dr. Liz Geriatrics Facebook videos page.
Tuesday, April 27, 9am (a teleconference, not a webinar)
The Trouble with Adult Siblings
Description:
Caregiving for an aging parent is difficult enough, but when adult siblings
argue over the extent of a parent’s condition and needs, the caregiving
plan, and who should be in charge, it makes caregiving harder and more
frustrating. Those sibling bonds may become so frayed during caregiving
that those relationships are weakened forever afterwards. In this teleconference, learn how siblings can pull together, not apart, to better serve their parents and themselves.
Speaker: Barry Jacobs, PsyD
Host: Wellmed Caregiver TeleConnection
Register here.
The teleconference recording will be posted to the WellMed Caregiver TeleConnection SoundCloud station.
Friday, April 30, 10am
Integrated Care – Building a One-Stop Shop for all your Parkinson’s Needs
Description:
The team at the Integrated Movement Disorders Program in Toronto, Canada are working to develop new and innovative models of care for individuals using a patient-centered approach with a focus on the integration of mental health and physical therapy. Tune in to learn about their pursuit of a one-stop shop for Parkinson’s care, and what this model could mean one day for the care of everyone with Parkinson’s.
Hosts:
Indu Subramanian, MD
Ben Stecher, author and PD advocate
Speaker: Sarah Lidstone, MD, PhD, director and research lead of the Integrated Movement Disorders Program in Toronto, Canada
Host: PMD Alliance
Register here.
A recording of the webinar may be posted to the PMD Alliance YouTube channel.