Every month, Stanford Parkinson’s Community Outreach produces a list of Parkinson’s-related webinars and virtual meetings with speakers. Here’s our July 2021 list.
What’s the difference between a webinar and a virtual meeting? A “webinar” has a handful of speakers at most, and attendees have both audio and video muted. A “virtual meeting” usually allows attendees to be seen and heard.
We recommend you register NOW for anything of interest. That way, if there’s a recording, as a registrant you’ll receive an email alerting you to the recording availability. Also, note that a few webinars have registration deadlines well in advance of the webinar dates.
Stanford Parkinson’s Community Outreach will try to attend as many of these events as possible and share our notes. Our notes about PD webinars are often posted here to our blog. We email our notes to the “Stanford PD Info” and “PD Caregivers” email lists, depending on the relevance to those audiences.
We publish to our blog an additional caregiver-specific webinar and virtual event list, which is sent to those on our “PD Caregivers” list. That list includes some events not included here since those events are for caregivers only.
If you are a caregiver to someone with PD, we encourage you to be added to our “PD Caregivers” email list.
Unless indicated, the webinar and virtual meetings listed below are:
- Times listed as PT. (We are based in California, after all.)
- One-hour in duration. We suggest you join five minutes before the official start-time. (Usually, the speaker talks for 30-40 minutes and there’s a question-and-answer session for the remaining time.)
- For a general audience. (Again, caregiver-specific events are on our other list.)
- Not focused on a single medication or single, branded treatment. (Those are excluded.)
- Free.
After that long preamble, here’s our list of PD-related webinars and virtual meetings in July 2021…
– Denise
http://med.stanford.edu/parkinsons.html
Thursday, July 1, 12pm
Book Club: Ending Parkinson’s Disease (Chapters 6-8)
Description:
Discussion of three chapters of the book “Ending Parkinson’s Disease,” led by Michael Okun, MD, one of the authors.
Speaker: Michael Okun, MD
Host: PMD Alliance
The webinar recording may be posted to the PMD Alliance YouTube channel.
Friday, July 2, 12pm
Cramping, Dystonia & Spasticity: What’s The Difference?
Description:
Having Parkinson’s and related disorders can often be painful! Twisting postures, curling toes, a tight neck, which are a form of dystonia, as well as cramping, and even spasticity involves muscles in various parts of the body but what is the difference between these painful symptoms and how do we treat them?
Speaker: Johan Samanta, MD
Host: PMD Alliance
The webinar recording may be posted to the PMD Alliance YouTube channel.
Wednesday, July 7, 10am
Hallucinations and Delusions in Parkinson’s
Description:
A discussion of the common types of symptoms people with Parkinson’s can experience with a focus on hallucinations and delusions, risk factors for their development, and methods for management.
Speaker: Samantha Holden, MD
Host: Parkinson Association of the Rockies
The webinar recording will be posted to the Parkinson Association of the Rockies YouTube channel.
Wednesday, July 7, 10am
Reducing the Impact of Thinking Changes in PD with Occupational Therapy
Description:
Learn how occupational therapists can support quality of life for people with PD and help reduce the functional impact of cognitive changes associated with Parkinson’s disease.
Speaker: Julia Wood, MOT, ORTL
Host: Parkinson’s Foundation
The recording will be posted to the PF Wellness Wednesdays webpage.
Wednesday, July 7, 12pm-1:30pm
The Art & Practice of Planning: Planning for the Future (Part I)
Description:
A hands-on 90-minute conversation including breakout sessions and supplemental materials to help you begin making plans as we cover WHY you should plan, WHAT you should plan, HOW to plan and WHERE to go for information.
Speakers:
Elizabeth C. Smith, Esq, elder law attorney
Amy O’Rourke CMC, MPH, Aging Life Care Specialist
Host: PMD Alliance
The webinar recording may be posted to the PMD Alliance YouTube channel.
Thursday, July 8, 12pm
Book Club: Ending Parkinson’s Disease (Chapters 9-10)
Description:
Discussion of two chapters of the book “Ending Parkinson’s Disease,” led by Bastiaan Bloem, MD, one of the authors.
Speaker: Bastiaan Bloem, MD
Host: PMD Alliance
The webinar recording may be posted to the PMD Alliance YouTube channel.
Friday, July 9, 10am
Immediate, Controlled, & Extended Release Carbidopa/Levodopa: Let’s Sort It Out
Description:
This webinar will sort through the various forms of carbidopa/levodopa with information about the pros and cons of each type, a recent paper on the extended release impact on OFF time as well as research happening as we speak!
Speaker: Robert Hauser, MD
Host: PMD Alliance
The webinar recording may be posted to the PMD Alliance YouTube channel.
Sunday, July 11, 10am
So Many Parkinson’s Organizations – So Little Time (Part I)
Description:
There are a lot of Parkinson’s Organizations competing for our time and our donations. Learn about the different Parkinson’s organizations and what they have to offer you as a person with PD. This is the first of two meetings. Each will have 3-4 representatives from the different organizations to talk about what they do and how you can get involved.
Invited Organizations: American Parkinson Disease Association, Michael J Fox Foundation, Parkinson’s Foundation, PMD Alliance, Davis Phinney Foundation, Brian Grant Foundation and PD Avengers.
Audience: ONLY women with PD
Host: Twitchy Woman
Register here.
The recording may be posted to the Twitchy Woman blog on the Sunday Mornings with Twitchy Woman page.
Tuesday, July 13, 10am
Driving Wellness for Parkinson’s Disease
Description:
Parkinson’s disease and Parkinsonism can lead to changes in vision, physical movement, and thinking skills which can impact driving safety over the course of the disease. This presentation will heighten awareness of how to continue to drive safe now, what changes to watch for in the progression of the disease, and how to address those changes in the future.
Speaker: Jaclyn Davin, Occupational Therapist
Host: American Parkinson Disease Association Massachusetts (APDA MA)
A recording of the webinar will be posted to the APDA MA YouTube channel.
Tuesday, July 13, 7pm
Balancing Health, Family, & Work for People with YOPD
Description:
Those with YOPD are faced with managing health, work demands, and life’s responsibilities. This webinar will discuss those challenges and possible solutions to create more balance in your daily experience.
Audience: Those with young onset Parkinson’s disease (YOPD)
Speaker: Elaine Book, Clinical Social Worker
Host: Parkinson Society British Columbia (PS BC)
The webinar recording may be posted to the PS BC YouTube channel.
Wednesday, July 14, 8am
Planning for the Future as PD Progresses
Description:
Learn more about planning for the future as Parkinson’s disease progresses. This program will discuss topics including future planning, health care directives, community resources, home modifications, orienting paid caregivers, if/when to transition to care out of home, and end of life decisions.
Speaker: Anushka Shiell, APDA Information and Referral Center Coordinator
Host: American Parkinson Disease Association Minnesota (APDA MN)
A recording of the webinar will be posted to the APDA MN YouTube channel
Thursday, July 15, 9am
What Comes Next? Living with Parkinson’s Years after Diagnosis
Description:
Expert panelists will discuss social, emotional and physical changes you may notice after living with Parkinson’s for some time. Topics covered include tips for managing changes and symptoms and sharing opportunities to take action in your Parkinson’s journey. Bring your questions for the experts!
Host: Michael J. Fox Foundation (MJFF)
A recording of this webinar will be posted to the MJFF webinars page.
Thursday, July 15, 12pm
The Many Faces of Parkinson’s Advocacy
No description available.
Audience: Those with young onset Parkinson’s disease (YOPD)
Speakers: YOPD Council Members
Host: Davis Phinney Foundation (DPF)
The webinar recording will be posted to the DPF YOPD Council webpage under Past Webinar Recordings.
Friday, July 16, 10am
Movers & Shakers – Science for Scientists
Description:
The foundation for how biomedical science works, what parts of it slow down our ability to create new therapies, and how it has changed over time. The conversation will also cover the challenges scientists face in actually trying to answer questions and do science as well as the role of funders and industry and patients.
Speaker: Heidi McBride, PhD
Host: PMD Alliance
The webinar recording may be posted to the PMD Alliance YouTube channel.
Tuesday, July 20, 11am
Managing Mood and Anxiety in Parkinson’s
Description:
Approximately 50-60% of people living with Parkinson’s experience varying levels of depression and anxiety. Learn the difference between these common mood disorders so you can accurately explain how you’re feeling to your doctor and get the care you need. This talk will discuss depression, anxiety, and apathy; the causes and treatments of them; and much more.
Speaker: Roseanne Dobkin, PhD
Host: Davis Phinney Foundation (DPF)
The webinar recording will be posted to the DPF YouTube channel
Wednesday, July 20, 12pm-1:30pm
The Art & Practice of Planning: Planning for the Future (Part II)
Description:
Part two of this class will address some tough topics like: the strain of care on care partners, the risk of declining health in care partners, how to build a support network and who and how to ask for help before you hit the wall. This session will include breakout sessions and supplemental materials to help you get the support you need.
Speaker: Erin Cecchi, LCSW
Host: PMD Alliance
The webinar recording may be posted to the PMD Alliance YouTube channel
Wednesday, July 21, 10am
Parkinson’s 101: What You and Your Family Should Know (for Newly Diagnosed)
Description:
This program will provide a basic overview of Parkinson’s disease. Learn about what Parkinson’s is, what causes it, common symptoms, treatments, and strategies for managing symptoms.
Audience: Newly diagnosed
Speaker: Jori Fleisher, MD MSCE
Host: Parkinson’s Foundation
The recording will be posted to the PF Wellness Wednesdays webpage
Wednesday, July 21, 11am
Loneliness in Parkinson’s
Description:
Review the history and science of loneliness in our culture, explore the research on loneliness and Parkinson’s disease, and identify the impact of loneliness on our mental and physical wellbeing. Discuss ways to cultivate meaningful connections and minimize the experience of loneliness at this time.
Speaker: Mary O’Hara, LCSW
Host: Parkinson Association of the Rockies
The webinar recording will be posted to the Parkinson Association of the Rockies YouTube channel
Sunday, July 25, 10am
So Many Parkinson’s Organizations – So Little Time (Part II)
Description:
There are a lot of Parkinson’s Organizations competing for our time and our donations. Learn about the different Parkinson’s organizations and what they have to offer you as a person with PD. This is the second of two meetings. Each will have 3-4 representatives from the different organizations to talk about what they do and how you can get involved.
Invited Organizations: American Parkinson Disease Association, Michael J Fox Foundation, Parkinson’s Foundation, PMD Alliance, Davis Phinney Foundation, Brian Grant Foundation and PD Avengers.
Audience: ONLY women with PD
Host: Twitchy Woman
The recording may be posted to the Twitchy Woman blog on the Sunday Mornings with Twitchy Woman page