September 2021 – Parkinson’s Webinars and Virtual Meetings with Speakers

September 2021 – Parkinson’s Webinars and Virtual Meetings with Speakers

Every month, Stanford Parkinson’s Community Outreach produces a list of Parkinson’s-related webinars and virtual meetings with speakers.  Here’s our September 2021 list. 

What’s the difference between a webinar and a virtual meeting?  A “webinar” has a handful of speakers at most, and attendees have both audio and video muted.  A “virtual meeting” usually allows attendees to be seen and heard.

We recommend you register NOW for anything of interest.  That way, if there’s a recording, as a registrant you’ll receive an email alerting you to the recording availability. Also, note that a few webinars have registration deadlines well in advance of the webinar dates.

Stanford Parkinson’s Community Outreach will try to attend as many of these events as possible and share our notes.  Our notes about PD webinars are often posted here to our blog. We email our notes to the “Stanford PD Info” and “PD Caregivers” email lists, depending on the relevance to those audiences.

We publish to our blog an additional caregiver-specific webinar and virtual event list, which is sent to those on our “PD Caregivers” list.  That list includes some events not included here since those events are for caregivers only.

If you are a caregiver to someone with PD, we encourage you to be added to our “PD Caregivers” email list.  

Unless indicated, the webinar and virtual meetings listed below are:

  • Times listed as PT. (We are based in California, after all.)
  • One-hour in duration.  We suggest you join five minutes before the official start-time.  (Usually, the speaker talks for 30-40 minutes and there’s a question-and-answer session for the remaining time.)
  • For a general audience.  (Again, caregiver-specific events are on our other list.)
  • Not focused on a single medication or single, branded treatment. (Those are excluded.)
  • Free.

After that long preamble, here’s our list of PD-related webinars and virtual meetings in September 2021…

Denise


Wednesday, September 1, 9am

Understanding Deep Brain Stimulation (DBS)

Description:

Learn about DBS as a treatment option for Parkinson’s disease, essential tremor, and dystonia. Q&A will follow the presentation.

Speaker:  Sarah Zurek, RN, BSN, Deep Brain Stimulation Program Coordinator

Host:  Hartford HealthCare

Register here

This webinar will not be recorded.


Wednesday, September 1, 10am

The Parkinson’s Journey: Understanding Progression

Description:

Parkinson’s disease (PD) impacts every person living with the disease in different ways — from early signs to symptoms and progression. Learn more about patterns of progression, where you or your loved one tracks in the course of Parkinson’s, and how to navigate changes along the way working alongside your care team.

Speakers:

Annie Killoran, MD

Lance M. Wilson, MSS, LSW

Host:  Parkinson’s Foundation (PF)

Register here

The recording will be posted to the PF YouTube channel


Wednesday, September 8, 10am

Social Engagement: Sing Out Loud with Parkinson’s

Description:

Learn from a speech language pathologist about a fun way to exercise your voice, speech, and swallowing muscles – through SINGING!

Speaker: Alyson Chananie, MS, CCC/SLP

Host:  Parkinson’s Foundation (PF)

Register here.

The recording will be posted to the Parkinson’s Foundation YouTube channel in the Wellness Wednesdays playlist.


Wednesday, September 8, 12:30pm

Cognitive Decline in Parkinson’s 

Description:

The speaker will address causes, assessment, diagnosis, and management of cognitive decline. This presentation will also explore signs and symptoms of cognitive change across various stages of disease progression. Co-existing conditions with Parkinson’s that may worsen cognitive dysfunction will also be covered.

Speaker:  Claire Hinnell, MD

Host:  Parkinson Society British Columbia (PS BC)

Register here.

The webinar recording may be posted to the PS BC YouTube channel


Friday, September 10, 12pm

Hey Doc, What About Cannabis?

Description:

This episode of Lunch With Docs discusses medical cannabis and it’s uses for Parkinson’s disease.

Speakers:  

Johan Samanta, MD

Laurie Mischley, ND, PhD, MPH

Host:  PMD Alliance

Register here.

The webinar recording may be posted to the PMD Alliance YouTube channel.


Sunday, September 12, 10am

Hormones and Women with Parkinson’s

Description:

This is the first Sunday Morning Chat with host Cindy Guthrie. Cindy will share her story with you, and then it is your turn. If you have questions about hormones and PD or want to share your story, please join us.

Audience: Women with PD

Speaker:  Cindy Guthrie

Host:  Twitchy Woman

Only women with PD should participate.  Register here.

The webinar recording will be posted to the events page of the Twitchy Woman website.


Tuesday, September 14, 10am

Intentionally Optimistic with Parkinson’s Disease

Description:

A virtual panel discussion on how to live optimistically with a diagnosis of Parkinson’s.

Speakers:  

Bill Rasmussen, founder of ESPN

A local person with Parkinson’s

Moderator:  Bill Patjane, APDA Massachusetts Chapter  Executive Director

Host:  American Parkinson Disease Association Massachusetts (APDA MA)

Register here.

A recording of the webinar may be posted to the APDA MA YouTube channel.


Tuesday, September 14, 6am

Genetic forms of Parkinson’s disease

No description available.

Speaker:   Thomas Gasser, Professor of Neurology at the University Tübingen, Tübingen, Germany.

Hosts:  European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN EuroNMD), and the European Academy of Neurology  

Register here.

The webinar recording may be posted to the ERN past webinars webpage.


Wednesday, September 15, 10am-11:30am

Newly Diagnosed: Building a Better Life with Parkinson’s

Description:

If you or a loved one has been recently diagnosed with Parkinson’s disease, this program will discuss resources and tools to help you live well with Parkinson’s disease. This program will also help you understand the physical and emotional impact of Parkinson’s on the individual and family.

Audience: Newly diagnosed

Speakers:  

Nina M. Browner, MD

Jessica Shurer, MSW, LCSW

Host:  Parkinson’s Foundation (PF)

Register here.

The recording will be posted to the PF YouTube channel Wellness Wednesdays playlist 


Wednesday, September 15, 12pm

The Impact of Cognitive Decline on Daily Living

Description:

Cognitive decline can pose significant challenges to quality of life in people with Parkinson’s when it affects their ability to perform activities of daily living. In this session an occupational therapist (OT) will discuss how OTs assess cognitive dysfunction and collaborate with patients to improve their function and skill. Cognitive rehabilitation, including some of the strategies and interventions involved, will be highlighted.

Speaker:  Lisa Wechzelberger, occupational therapist  

Host:  Parkinson Society British Columbia (PS BC)

Register here.

The webinar recording may be posted to the PS BC YouTube channel.


Thursday, September 16, 9am

Too Much or Not Enough: Dyskinesia and “Off” Time in Parkinson’s

Description:

Expert panelists will discuss common Parkinson’s issues — “off” time and dyskinesia — and how to treat them. “Off” time is when symptoms return between medication doses. Dyskinesia is uncontrolled, involuntary movement. Also covered will be tips for managing these problems and the latest research.  

Host:  Michael J. Fox Foundation (MJFF)

Register here

A recording of this webinar will be posted to the MJFF webinars page


Friday, September 17, 8am-12pm

Victory Summit:  Mental Health and Wellness

Description:

Learn from and interact with experts who specialize in symptoms related to mood, anxiety, and depression. Hear advice on actions you can take to reduce these symptoms and thrive with PD.  Meet some Davis Phinney Foundation Ambassadors who are available to support you at any time.

Multiple speakers

Host:  Davis Phinney Foundation (DPF)

View the summit agenda here

Register here

The webinar recording may be posted to the DPF YouTube channel


Friday, September 17, 9am

Clinical Trials and Research Participation for Parkinson’s Disease

Description:

This episode of “Dr. Gilbert Hosts” discusses who research studies are looking for and how to get involved as well as why your involvement is so important.  Also hear directly from someone living with PD who has participated in a clinical trial so you can learn firsthand about the experience.  

Speaker:  Lisa M. Shulman, MD

Host:  American Parkinson Disease Association (APDA)

Register here.

A recording of the webinar will be posted to the APDA YouTube channel


Saturday, September 18, 8am

Telemedicine and Your Future

Description:

Insight into the future of telemedicine and what it means to you.

Speaker:  Jaime Hatcher-Martin, MD

Host:  American Parkinson Disease Association (APDA) Georgia Chapter

Register here.

A recording of the webinar may be posted to the APDA YouTube channel.


Saturday, September 18, 10am-12pm

Exercise is Medicine

Description:

Dr. Nijee Luthra will speak on the science and her research behind what we’ve all heard, that “Exercise Is Medicine for PD.” 

Speaker:  Dr. Nijee Luthra, Neurologist at UCSF

Host:  PD Active

Register here

A recording of the webinar may be posted to the PD Active YouTube channel


Sunday, September 19, 10am

What should you know about participating in clinical trials?

Description:

People who have participated in clinical trials will talk about their experience and staff from the Penn Movement Disorders clinic will explain what goes into clinical trials, recruitment and more.

Audience:  Women with PD

Speakers:  

Lauren Simmons, person with Parkinson’s

Susan Lehman, person with Parkinson’s

Andrew Siderowf, MD, movement disorders specialist

Ellen Indik, Penn Movement Disorders Clinic

Host:  Twitchy Woman

Only women with PD should participate.  Register here.

The webinar recording will be posted to the events page of the Twitchy Woman website


Monday, September 20, 11am

Language Impairment

Description:

In this session, a speech language pathologist will discuss communication challenges common in people with PD, as well as general interventions and self-management strategies for patients and caregivers. This talk will also cover strategies for working through difficulties such as following complex commands, word retrieval, and organizing thought in conversation.

Speaker:  Jamie Russell, speech language pathologist

Host:  Parkinson Society British Columbia (PS BC)

Register here

The webinar recording may be posted to the PS BC YouTube channel


Monday, September 20, 12pm

Auditory Processing and Impact on Communication

Description:

People with Parkinson’s exhibit more central auditory processing deficits which can contribute to decreased quality of life, social isolation, frustration, and depression.  This webinar will break down common hearing deficits in PD patients, plus how to navigate these changes.

Speaker:  Robert Folmer, PhD

Host:  PMD Alliance

Register here

The webinar recording may be posted to the PMD Alliance YouTube channel


Tuesday, September 21, 11am

Constipation and the Gut in Parkinson’s

Description:

A deep dive into the gut and how you can best manage your bowel and urinary symptoms to live well with Parkinson’s.

Speaker:  Cherian Karunapuzha, MD 

Host:  Davis Phinney Foundation (DPF)

Register here

The webinar recording will be posted to the DPF Live Well Today Webinar Series webpage under Past Webinar Recordings 


Thursday, September 23, 1:30pm

Deep Brain Stimulation

Description:

Deep Brain Stimulation (DBS) is a surgical therapy used to alleviate advanced motor symptoms that cannot be otherwise managed by medication. This webinar will explore who makes a good DBS candidate, how the procedure is performed, and outcomes to expect.

Speakers:  

Dr. Christopher Honey, movement disorder specialist

Leslie Davidson, person with Parkinson’s

Naomi Ford, Leslie’s daughter and carepartner

Host:  Parkinson Society British Columbia (PS BC)

Register here

The webinar recording may be posted to the PS BC YouTube channel


Friday, September 24, 12pm

Review of Non-Motor Symptoms in PD

Description:

This episode of Lunch With Docs will provide an overview of non-motor symptoms like mood, sleep, psychosis, blood pressure and more.

Speaker:  Deborah Boland, DO

Host:  PMD Alliance

Register here

The webinar recording may be posted to the PMD Alliance YouTube channel


Saturday, September 25, 7:30am-11am

8th Annual Parkinson’s Disease Symposium

Description:

Free educational event given by a team of experts to update the community about Parkinson’s disease including topics such as medication and therapy overview, gut-brain connection, nutrition for PD, palliative and supportive care, and research updates.

Multiple speakers

Hosts:  University of Colorado Movement Disorders Clinic and the Parkinson’s Foundation

See the agenda and register here

The webinar recording will be posted to the University of Colorado Movement Disorders Center’s YouTube channel 


Sunday, September 26, 10am

An “Open Mic” Chat

Description:

The opportunity to talk about living with PD and just have fun with other Twitchy Women from many different places. The mic is yours!

Audience: Women with PD

Speakers:  

Shelley Savoy

Darlene Santos

Host:  Twitchy Woman

Only women with PD should participate.  Register here

The webinar recording will be posted to the events page of the Twitchy Woman website


Wednesday, September 29, 10am-11:30am

SPARK: Robin Williams and His Battle with Lewy Body Dementia

Description:

This 45-minute documentary about Robin Williams and his battle with Lewy Body Dementia (LBD) provides a deeper dive into the disease including its biology, clinical symptoms and its impact on both the person with LBD and the primary caregiver. This program will include a brief introductory presentation and conclude with a panel discussion.

Panelist: Yasar Torres-Yaghi, MD

Host:  Parkinson’s Foundation (PF)

Register here

A recording of the panel discussion will be posted to the PF YouTube channel Wellness Wednesdays playlist.