Every month, Stanford Parkinson’s Community Outreach produces a list of Parkinson’s-related webinars and virtual meetings with speakers. Here’s our May 2022 list.
What’s the difference between a webinar and a virtual meeting? A “webinar” has a handful of speakers at most, and attendees have both audio and video muted. A “virtual meeting” usually allows attendees to be seen and heard.
We recommend you register NOW for anything of interest. That way, if there’s a recording, as a registrant you’ll receive an email alerting you to the recording availability. Also, note that a few webinars have registration deadlines well in advance of the webinar dates.
Stanford Parkinson’s Community Outreach will try to attend as many of these events as possible and share our notes. Our notes about PD webinars are often posted to our blog. We email our notes to the “Stanford PD Info” and “PD Caregivers” email lists, depending on the relevance to those audiences.
We publish to our blog an additional caregiver-specific webinar and virtual event list, which is sent to those on our “PD Caregivers” list. That list includes some events not included here since those events are for caregivers only.
If you are a caregiver to someone with PD, we encourage you to be added to our “PD Caregivers” email list.
Unless indicated, the webinar and virtual meetings listed below are:
Times listed as PT. (We are based in California, after all.)
One-hour in duration. We suggest you join five minutes before the official start-time. (Usually, the speaker talks for 30-40 minutes and there’s a question-and-answer session for the remaining time.)
For a general audience. (Again, caregiver-specific events are on our other list.)
Not focused on a single medication or single, branded treatment. (Those are excluded.)
Free.
After that long preamble, here’s our list of PD-related webinars and virtual meetings in May 2022…
– Denise
Tuesday, May 3, 12pm
Swallowing and Drooling Issues in PD
Description:
The speaker will address how Parkinson’s impacts swallow strength, function, and safety and the challenges of swallowing difficulties and disorders.
Speaker: Heather Hodges, MA, CCC-SLP
Host: PMD Alliance
The webinar recording will be posted to the PMD Alliance YouTube channel.
Wednesday, May 4, 9am
Understanding Deep Brain Stimulation (DBS)
Description:
Learn about DBS as a treatment option for Parkinson’s disease, essential tremor and dystonia. Q&A will follow the presentation.
Speaker: Sarah Zurek, RN, BSN, DBS program coordinator
Host: Hartford Healthcare
Call 855-442-4373 or use this registration webpage.
This webinar is offered monthly and will not be recorded.
Wednesday, May 4, 10am
Advanced Care Planning for Neurologic Diseases
Description:
Experts will address how to get started planning for your future care needs, including types of care or aging-in-place options.
Speakers:
- Erin Cecchi, MSW, LCSW
- Linda Egan, PT
- Debi Crystal, MSW, LCSW
Host: Parkinson’s Foundation (PF)
This webinar will be posted on PF’s Past Wellness Wednesdays webpage.
Wednesday, May 4, 11am
Global Symposium Series: Breakthrough Therapies for Parkinson’s
Description:
The speaker will discuss breakthrough therapies for Parkinson’s. Developments in the understanding and treatment of PD over the years will also be explored.
Speaker: Michael Okun, MD
Host: Parkinson Society British Columbia (PSBC)
A recording of the webinar may be posted to the PSBC YouTube channel.
Thursday, May 5, 6:30pm
Parkinson’s in the African American Community
Description:
Panelists will discuss why there are disparities in diagnosis and treatment, resources for living well with PD, and more.
Moderator: Donna White Carey, MD, Medical Director of Case Management at Alameda Alliance for Health
Speakers:
- Indu Subramanian, MD, UCLA Medical Center
- Deborah Whittle, PD Active member and co-owner of Social Research and Training Group
Host: PD Active
No need to register. Link to Dr. Donna’s live-stream YouTube channel at the time of the program.
A recording of the webinar will be posted to the Dr. Donna’s YouTube channel.
Sábado, 7 de mayo, 9 am-1 pm
Parkinson: La vida más allá de lo básico Conferencia de educación sobre el Parkinson en español
Description:
Los temas que se cubrirán incluyen la creación de su equipo de atención de Parkinson; terapia del habla para el Parkinson; fisioterapia y ejercicio; investigación de Parkinson; medicamentos y tratamiento; y danza y boxeo para el Parkinson.
Múltiples presentadores
Host: Parkinson’s Association Los Angeles (PCLA)
Programa de la conferencia y página web de registro
Este evento será grabado para nuestro canal de Youtube.
Monday, May 9, 11am
Global Perspectives on Parkinson’s
Description:
A panel of experts will explore Parkinson’s healthcare disparities across the world, giving you a glimpse of what it’s like to live with a movement disorder throughout the globe. They’ll also dive into the huge opportunity this presents for us to improve access to treatment for all. When we learn from and collaborate with other countries on their approach to Parkinson’s and access to care, the entire PD community benefits, no matter where on Earth you reside.
Moderator: Indu Subramanian, MD
Panelists:
- Camilla Kilbane, MD, neurologist born in Norway, educated in Ireland, and practicing in the US
- Natasha Fothergill-Misbah, PhD, research focuses on PD in Africa
- Omotola Thomas, MA, born in Nigeria, diagnosed with PD in 2016, founder of ParkinStand
Host: PMD Alliance
The webinar recording may be posted to the PMD Alliance YouTube channel.
Wednesday, May 11, 10am
Smile Through Art – Part II
Description:
Through creativity, cognition, and movement, Creative Neurology’s Smile Through Art® Workshops target specific areas of Parkinson’s disease. Those living with Parkinson’s disease are able to find relief in their symptoms, including a heightened level of mood and increased fine motor abilities through attending the Smile Through Art workshop. No art background is necessary! Bring: 3 pieces of unlined paper and a black (or blue) pen or marker.
Speaker: Smile Through Art, Southampton, MA
Host: Parkinson’s Foundation (PF)
This webinar will be posted on PF’s Past Wellness Wednesdays webpage.
Wednesday, May 11, 11:30am
Gyro-Kinetics for Parkinson’s
Description:
The speaker developed a breakthrough method called Gyro-Kinetics to help manage and decrease Parkinson’s disease (PD) symptoms. This breakthrough, holistic technique involves movement, rhythm, expression, music, and energy, as well as martial arts techniques. The speaker will discuss applications of Gyro-Kinetics, as well as perform a demonstration of the technique. Part of the Global Symposium Series.
Speaker: Alex Kerten, founder of Gyro-Kinetics
Host: Parkinson Society British Columbia (PSBC)
A recording of the webinar may be posted to the PSBC YouTube channel.
Wednesday, May 11, 12pm
Anxiety and Depression in Parkinson’s
Description:
The speaker developed a breakthrough method called Gyro-Kinetics to help manage and decrease The speaker will provide an overview of mental health and Parkinson’s disease, with a focus on depression and anxiety and ways to manage these common symptoms.
Speaker: Joel Mack, MD
Host: Brian Grant Foundation (BGF)
A recording of the webinar may be posted to the BGF YouTube channel.
Thursday, May 12, 10am
The Pros and Cons of Canes and Walkers
Description:
In this episode of Let’s Keep Moving with APDA, you’ll learn when it is time to consider using an assistive device, the pros and cons of different devices for people with PD, how to choose a device based on your needs and your goals, and who can help you decide.
Moderator: Tim Nordahl, PT, DPT, Center for Neurorehabilitation
Speaker: Teresa Baker, PT, DPT, Center for Neurorehabilitation
Host: American Parkinson Disease Association (APDA)
A recording of the webinar will be posted to the APDA YouTube channel’s Let’s Keep Moving with APDA playlist.
Tuesday, May 17, 10am
Hearing and Cognition in Parkinson’s
Description:
In this episode of Let’s Keep Moving with APDA, you’ll learn when it is time to consider using an assistive The speaker will discuss the connection between hearing loss and cognition for people with Parkinson’s.
Speaker: Sara Mamo, AuD, PhD, University of Massachusetts Amherst
Host: American Parkinson Disease Association Massachusetts (APDA MA)
A recording of the webinar may be posted to the APDA Massachusetts YouTube channel.
Tuesday, May 17, 12pm
Medical Myths (about Parkinson’s)
Description:
One of the blessings and curses of the time we live in is that anyone can hit publish and push their ideas, products, treatments, and advice out to anyone with an internet connection. Sifting through this information and evaluating it is no easy task. The speaker will address many myths about Parkinson’s, the proliferation of medical bullsh*t, and important clues to look out for when it’s time to evaluate the merits of a Parkinson’s article, product, treatment, or cure.
Speaker: Benzi Kluger, MD, University of Rochester Medical Center
Host: Davis Phinney Foundation (DPF)
This webinar will be posted to the past webinar recordings of the DPF Live Well Today webinar series.
Tuesday, May 17, 12pm
The Origins of Speech Disorders in PD
Description:
The speaker will unpack the underlying causes of Parkinson’s-related speech disorders. The hope is this webinar will empower you with the key ingredients of effective speech treatment so you can experience lasting improvements in communication.
Speaker: Cynthia Fox, PhD, CCC-SLP, co-founder LSVT Global
Host: PMD Alliance
The webinar recording may be posted to the PMD Alliance YouTube channel.
Wednesday, May 18, 10am
Newly Diagnosed: Building a Better Life with Parkinson’s
Description:
TA program to learn about resources and tools to help you live well with Parkinson’s disease. This program will also help you understand the physical and emotional impact of Parkinson’s on the individual and family.
Speaker: Kathryn P.L. Moore, MD MSc, Duke University School of Medicine
Host: Parkinson’s Foundation (PF)
This webinar will be posted on PF’s Past Wellness Wednesdays webpage.
Wednesday, May 18, 11am
Life after LSVT LOUD® and LSVT BIG®: A step-by-step guide to help you maintain your treatment gains
Description:
Learn how to optimize your success during LSVT treatment and maintain your gains for years to come with information on homework resources, tune-up sessions, the LSVT Companion® software program (which supports in-home LSVT LOUD practice), and BIG for LIFE and LOUD for LIFE maintenance classes for LSVT graduates.
Host: LSVT Global
This webinar may be posted to the LSVT Global YouTube channel.
Wednesday, May 18, 12pm
Parkinson’s Disease and the Gut
Description:
The speaker will discuss gastrointestinal symptoms common in PD, potential treatments for the GI symptoms of PD, the gut microbiome in PD, the effects of PD medications on the gut, answer questions, and offer tips to help improve GI issues.
Host: American Parkinson Disease Association (APDA)
This webinar will be posted to the Dr. Gilbert Hosts Playlist on the APDA YouTube channel.
Wednesday, May 18, 1:30pm
PD101
Description:
If you or your loved one have been recently diagnosed with Parkinson’s, chances are you are looking beyond your doctor for answers to your questions and for support on how to live well on this new journey!
Host: NeuroChallenge
No information is available about the recording of this webinar.
Thursday, May 19, 9am
What’s in Your DNA? Understanding Parkinson’s Genetics
Description:
If you or your loved one have been recently diagnosed with Parkinson’s, chances are you are looking Expert panelists will discuss Parkinson’s genetics and what to know if you have a Parkinson’s genetic mutation (or think you might), how genetic discoveries may help speed a cure, genetic testing and the latest advancements in genetic research.
Multiple speakers
Host: Michael J. Fox Foundation (MJFF)
A recording of the webinar will be posted to the MJFF website.
Friday, May 20, 10am
Parkinson’s Disease: More than Motor Symptoms
Description:
The speaker will introduce non-motor symptoms of PD (hallucinations and delusions), describe the symptoms of PD-related hallucinations and delusions, and explore how you can talk to your healthcare provider about your symptoms and establish a treatment plan.
Speaker: Martha T. McGraw, MD, Central DuPage Hospital/Northwestern Medicine Winfield, IL
Host: American Parkinson Disease Association Iowa (APDA IA)
A recording of the webinar may be posted to the APDA Iowa YouTube channel.
Friday, May 20, 11am
Personality and Behavior Changes
Description:
If you or your loved one have been recently diagnosed with Parkinson’s, chances are you are looking EThe speaker will discuss personality and behavior changes, like apathy, aloofness, irritability, and emotional bluntness, that can develop for individuals with PD. These changes may sometimes seem unpredictable, and frequently leave loved ones unsure of how to respond. Impulse control problems will also be explored, such as hypersexuality and compulsive gambling and/or eating. Part of the Global Symposium Series.
Speaker: Antonio Strafella, MD, movement disorder specialist
Host: Parkinson Society British Columbia (PSBC)
A recording of the webinar may be posted to the PSBC YouTube channel.
Sunday, May 22, 10am
Genetics of PD
Description:
If you or your loved one have been recently diagnosed with Parkinson’s, chances are you are looking The speaker will talk about the genetics of PD and what it means for precision medicine and treating Parkinson’s in the near future.
Speaker: Ignacio Mata, PhD, Cleveland Clinic
Host: Twitchy Woman
Only women with PD should participate. Registration webpage
The webinar recording will be posted to the events page of the Twitchy Woman website.
Monday, May 23, 1pm
Not So Sweet Dreams: A Discussion of PD Sleep Issues
Description:
If you or your loved one have been recently diagnosed with Parkinson’s, chances are you are looking The speaker will discuss the sleep issues associated with Parkinson’s disease, take questions, and also share tips and treatments for managing sleep problems so that you can get a good night’s rest.
Speaker: Kimmy Su, MD, University of Washington & VA Medical Center, Seattle
Host: American Parkinson Disease Association Northwest (APDA NW)
A recording of the webinar will be posted to the APDA Northwest YouTube channel.
Wednesday, May 25, 8am
Stem Cells for treating PD – hope or hype?
Description:
If you or your loved one have been recently diagnosed with Parkinson’s, chances are you are looking Dr. Malin Parmar and her lab have shown how human fibroblasts can be converted into neurons, how glial cells can be reprogrammed into neurons in vivo, and how functional dopamine neurons can be generated from human embryonic stem cells. Her research has a strong translational focus, she leads the European effort STEM-PD, designed to bring stem cell-derived dopamine neurons to clinical trials, and she collaborates within European and International networks as well as Industry partners to develop new, cell-based therapies for brain repair with focus on PD.
Speakers:
- Malin Parmar, PhD, Lund University, Sweden
- Agnete Kirkeby, PhD, University of Copenhagen, Denmark, and University of Lund, Sweden
Host: World Parkinson Coalition
A recording of the webinar will be posted to the WPC Research Spotlight 2022 page.
Wednesday, May 25, 11am
Transgender and Non-Binary People and Parkinson’s
Description:
This webinar will address care team selection and communications, disclosure to Parkinson’s care team members, gender-affirming treatments (including hormones and surgery) and PD, psychosocial and mental health issues in trans and non-binary with Parkinson’s, and advanced care directive discussions.
Speakers:
- Wissam Deeb, MD, University of Massachusetts
- Chi-Ying (Roy) Lin, MD, MPH, Baylor College of Medicine, Houston
Host: Davis Phinney Foundation (DPF)
This webinar will be posted to the past webinar recordings of the DPF Live Well Today webinar series.
Wednesday, May 25, 11am
Let’s Talk Stigma
Description:
The speaker will discuss how stigma related to Parkinson’s can negatively impact the emotional and physical wellbeing of both the person living with Parkinson’s, and their care partners. The speaker’s daughter will share her knowledge surrounding non-pharmacological treatments of neuropsychiatric Parkinson’s symptoms, and how stigma can be a barrier to accessing treatment. They will then be joined by a person with PD and a PD care partner for a panelist-style discussion on Parkinson’s and stigma, sharing their experiences and how subtle shifts in mindset led them to become champions for others and improved their own quality of life.
Speakers:
- Soania Mathur, MD, person with Parkinson’s
- Neha Mathur, medical student, Soania Mathur’s daughter
- Brock Carlton, retired CEO, person with Parkinson’s, Parkinson’s Canada ambassador
- Lydia Anderson, Parkinson’s care partner
Host: Parkinson’s Canada
This webinar may be posted to the past webinar recordings of the Parkinson’s Canada YouTube channel.
Wednesday, May 25, 12pm
Speech Treatment for Parkinson’s Disease
Description:
Get a deeper understanding of speech and voice challenges in people with PD and discover how LSVT LOUD exercises can improve communication and expression, including boosting loudness and variation in pitch while speaking, enhancing articulation, improving swallowing and facial expressions, and even supporting speech-related cognition.
Speaker: Elizabeth Peterson, MA, CCC-SLP
Host: PMD Alliance
The webinar recording will be posted to the PMD Alliance YouTube channel.
Thursday, May 26, 11am
Speech Therapy for Parkinson’s: What are the options?
Description:
An interactive virtual event with speech language pathologist. Bring your questions!
Speaker: Julia Nicholls, MA, CCC-SLP
Host: Parkinson’s Association Los Angeles (PCLA)
A recording of the webinar will be posted to the PCLA Archived Events webpage.