Parkinson’s can make travel challenging, as can winter weather. No matter how far you’re traveling this holiday season, Parkinson’s organizations have tips to help make your trip more smooth, safe, and enjoyable. Advice from the American Parkinson Disease Association (APDA) and Parkinson Society British Columbia (PSBC) does overlap, but they have the most comprehensive tip sheets I’ve seen. Here are some highlights and links to all their suggestions.
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These blogs, podcasts and other online publications are about caregiving. They are by caregivers, journalists, experts and staff writers. Most are about taking care of yourself as a caregiver, getting your affairs in order, advocating for your loved one, etc. Some are personal experiences with tips for caregiving.
Pick a few and have a read or a listen. You may learn something and you will definitely not feel alone in being a caregiver.
In the middle to late stages, it is common for Parkinson’s to cause changes in cognitive function, including forgetfulness and trouble with concentration. One large study found that about three-quarters of people who live with Parkinson’s for more than 10 years will develop dementia.
Caregiving for someone with Parkinson’s and dementia is stressful, which can negatively impact health. Learning how to best communicate with someone who has dementia and to manage dementia behaviors will reduce caregiver stress. The resources listed here provides tips from experts and other dementia caregivers so you can more calmly and confidently care for your loved one.
The Parkinson Association of Northern California (PANC) is hotsting its annual conference both in person and virtually again this year. The program features a highly sought-after group of PD experts, movement disorder specialists, neurophysical therapists, and other experts who will guide an information and resource-packed day. Everyone is welcome to learn about Parkinson’s, its impact, and options for living well. Attendees will receive a recording after the event. Keep reading for all the details.
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On Tuesday, June 10, from 7-8:30pm, Stanford movement disorders specialist Margaret Ferris, MD, will be speaking to the Stanford Young Onset Parkinson’s Disease (YOPD) Support Group. Topics will include traveling, children, genetics, work, PD mimics, and a bit about upcoming stem cell trials. People in Northern California with YOPD can get the login details by contacting Robin Riddle.
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