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June 2023 – Parkinson’s Webinars and Virtual Meetings with Speakers

May 31, 2023 By Parkinson's Community Help

Every month, Stanford Parkinson’s Community Outreach produces a list of Parkinson’s-related webinars and virtual meetings with speakers. Here’s our June 2023 list.

What’s the difference between a webinar and a virtual meeting? A “webinar” has a handful of speakers at most, and attendees have both audio and video muted. A “virtual meeting” usually allows attendees to be seen and heard.

We recommend you register NOW for anything of interest. That way, if there’s a recording, as a registrant you’ll receive an email alerting you to the recording availability. Also, note that a few webinars have registration deadlines well in advance of the webinar dates.

Stanford Parkinson’s Community Outreach will try to attend as many of these events as possible and share our notes. Our notes about PD webinars are often posted to our blog. We email our notes to the “Stanford PD Info” and “PD Caregivers” email lists, depending on the relevance to those audiences.

If you are a caregiver to someone with PD, we encourage you to be added to our “PD Caregivers” email list.

Unless indicated, the webinar and virtual meetings listed below are:

  • Times listed as PT. (We are based in California, after all.)
  • One-hour in duration. We suggest you join five minutes before the official start time. (Usually, the speaker talks for 30-40 minutes and there’s a question-and-answer session for the remaining time.)
  • For a general audience. (Again, caregiver-specific events are on our other list.)
  • Not focused on a single medication or single, branded treatment. (Those are excluded.)
  • Free

After that long preamble, here’s our list of PD-related webinars and virtual meetings in June 2023…


Saturday, June 3, 11am-2pm

Understanding and Managing Pain in PD:  Midwest Chapter Symposium

Description:  Learn about physical pain in Parkinson’s disease, including why it happens, tools to manage pain, and the importance of movement.

Speakers:

Matthew Wodziak, MD, Rush University Medical Center

Ala Elyaman, DO, Shirley Ryan AbilityLab

Mary Zalinger, DPT, Shirley Ryan AbilityLab

Caitlyn Seuschek, DPT, Shirley Ryan AbilityLab

Host:  Parkinson’s Foundation Midwest Chapter

Registration webpage

No information is available about the recording of this event.


Sunday, June 4, 10am

The My Moves Matter App

Audience:  Women with PD

Description:  A discussion about the app, specifically for women with PD.

Speaker:  Richelle Flanagan, creator, My Moves Matter app

Host:  Twitchy Woman

Only women with PD should participate.  Registration webpage.

The webinar recording will be posted to the Events page of the Twitchy Woman website.


Monday, June 5, 11am

Ask the Doc [About PD]

Description:  The speaker will discuss PD and provide answers to your questions.

Speaker:  Maria Cristina Ospina, MD, movement disorders neurologist, University of Arizona

Host:  PMD Alliance

Registration webpage

The webinar recording may be posted to the PMD Alliance YouTube channel


Monday, June 5, 2:30pm

How to Turn Challenges into Gifts – A Care Partner’s Perspective

Description:  The speaker will share her hard-earned lessons. She’ll provide the tools to build a village of care and coach you on how to turn the challenges of caregiving into gifts for those living with the disease as well as yourself. Her presentation will include a framework for beginning the journey, and then discuss the importance of integrating components of self-care into practice. Lastly, she will share the voices of other caregivers she has mentored and worked with so you can learn from their combined wisdom. 

Speaker:  Helen Bundy Medsger

Host:  PD-Connect

Registration webpage

A recording of the webinar may be posted to the PD-Connect YouTube channel


Tuesday, June 6, 12pm

A New Outcome Measure in PD:  Focusing on the Research Participant’s Perspective

Description:  Learn about the process of developing a new research study, specifically LEOPARD-PD (Longitudinal Endpoint Optimization to Provide an Assessment of Relevant Drugs in Parkinson’s Disease), and how you can participate.

Host:  PMD Alliance

Registration webpage

The webinar recording may be posted to the PMD Alliance YouTube channel


Monday, June 5, 12pm

Non-motor, Dementia, Psychological, Hallucinations (In Spanish)

No description available.  Part of the “Everything Parkinson’s” webinar series.

Host:  Pacific Movement Disorders Center, Pacific Neuroscience Institute (PNI), Santa Monica, CA

At the meeting time, join by using this link:  bit.ly/PD-Webinars

Or participate by phone:  669-900-6833.  You may have to enter the webinar ID – 821 8048 1494

For more information contact Giselle Tamula, 310-582-7433, giselle.tamula@providence.org

The recording of the webinar will be posted on the Movement Disorders section of the PNI Health and Wellness webinars page


Wednesday, June 7, 9am

Understanding Deep Brain Stimulation (DBS)

Description:  The speaker addresses DBS as a treatment option for PD, essential tremor, and dystonia.   

Speaker:  Sarah Zurek, RN, DBS program coordinator

Host:  Hartford Healthcare

Call 855-442-4373 or use this registration webpage

This webinar is offered monthly and is not recorded.


Wednesday, June 7, 9:30am

Clinical Trials Targeting Alpha-Synuclein

Description:  A panel of experts in the field of alpha-synuclein research will answer basic questions about alpha-synuclein.

Speakers:

Tilo Kunath, Edinburgh University

Hilal Lashuel, Brain Mind Institute

Carroll Siu, person living with Parkinson’s

Host:  Cure Parkinson’s

Registration webpage

A recording of the webinar will be posted to the Cure Parkinson’s YouTube channel


Wednesday, June 7, 10am

Parkinson’s 101:  What You and Your Family Should Know

Audience: Newly Diagnosed

Description:  This program will provide a basic overview of Parkinson’s disease.  Learn about what Parkinson’s is, what causes it, common symptoms, treatments, and strategies for managing symptoms.  Part of the Wellness Wednesday educational series.

Speaker:  Kelly McWilliams, RN, coordinator, Corewell Health Movement Disorders

Host:  Parkinson’s Foundation (PF)

Registration webpage

A recording of the webinar will be posted to the PF YouTube channel in the Wellness Wednesday playlist


Wednesday, June 7, 11am

Speech Therapy: Ways to Live Well with PD

No description available.  Part of the Parkinson Association of the Carolinas monthly speaker series.

Speaker:  Kara SimonKuhn, speech language pathologist

Host:  Parkinson Association of the Carolinas (PAC), Charlotte, NC

Registration webpage

A recording of the webinar will be posted to PAC YouTube channel


Wednesday, June 7, 12pm

Exercise to Improve Brain Health [in PD]

Description:  A physical therapist will get you moving by focusing on alternating seated and standing exercises to help target the signs and symptoms of PD.  We will alternate aerobic, balance, flexibility, and strength training exercises to help you manage the physical signs of PD.  

Speaker:  Sergio Ramos, neurologic physical therapist  

Host:  PMD Alliance

Registration webpage

The webinar recording may be posted to the PMD Alliance YouTube channel


sábado, 10 de junio, 7-10:30am

Unidos:  Aprendamos sobre la enfermedad de Parkinson

Descripción:  Los asistentes aprenderán cómo progresa la enfermedad de Parkinson, cómo afecta la salud mental, los beneficios del ejercicio, el estudio PDGENEration y cómo participar en el estudio.

Anfitriona:  Parkinson’s Foundation

Inscripción

La grabación del seminario web se puede publicar en el canal de YouTube de la Parkinson’s Foundation


Sunday, June 11, 10am

Early PD Rehabilitation for Newly Diagnosed PD Individuals

Audience: Newly Diagnosed Women with PD

Description:  A physical therapist will discuss early PD rehabilitation for newly diagnosed PD individuals (0-5 years) and secondary care preventative models for PD.

Speaker:  Apurva Zawar, DPT, PMP®

Host:  Twitchy Woman

Registration webpage

The webinar recording will be posted to the Events page of the Twitchy Woman website


Monday, June 12, 10am

Sex, Intimacy, and Parkinson’s Disease

Description:  The speaker will discuss how PD symptoms can interfere with a sexual relationship, how to broach the subject of intimacy with your partner, when to talk to your doctor about intimacy or sexual issues, and strategies for people with PD and their partners to strengthen (or rebuild) intimacy, and connection.  This is part of the “Dr. Gilbert Hosts” webinar series.

Moderator:  Rebecca Gilbert, MD, PhD, APDA Chief Scientific Officer

Speaker:  Regina Koepp, PhD, clinical psychologist

Host:  American Parkinson Disease Association (APDA)

Registration webpage

A recording of the webinar will be posted to the APDA YouTube channel in the Dr. Gilbert Hosts playlist


Monday, June 12, 3-4:30pm

Common Dementias – Lewy Body, Parkinson’s, & Frontotemporal

Description:  The speaker will discuss current research, treatments, and medicines available to treat Lewy body, Parkinson’s, and frontotemporal dementias.  The various stages and progressions of the disease will be covered.  Caregivers will receive advice and tips for the care of their loved one.

Speaker:  Patricio Reyes, MD, neurologist, VA Medical Center, Phoenix 

Host:  Meaning & Hope Institute, Phoenix

Registration webpage

No information is available about the recording of this event.


Tuesday, June 13, 7pm

Psychological Flexibility: What is it and why is it important for YOPD?

Audience:  People with young onset PD (and their partners)

Description:  Participants will be introduced to several potential mental health consequences of a YOPD diagnosis that can negatively affect emotional well-being.  Topics include emotional well-being, how a YOPD diagnosis can affect mental health, common manifestations of a YOPD diagnosis, and the role of meaning in life and psychological flexibility.

Speaker:  Brad McDaniels, PhD, Department of Rehabilitation and Health Services, University of North Texas

Host:  Young Onset Parkinson’s Network (YOPN)

Registration website

A recording of the webinar will be posted to the Past Events section of the YOPN Events webpage


Wednesday, June 14, 10am

Improv for Parkinson’s Taster

Description:  Speakers will demonstrate improv games, explain about the research and benefits of improv for Parkinson’s, and share what programs the theater has to offer.  Part of the Wellness Wednesday social engagement series.

Speakers: 

Dan Dumsha, director, Improv for Work and Wellness, Tightrope Theatre, Vancouver, Canada

Rosemary Morrison, wellness coordinator, Improv for Work and Wellness, Tightrope Theatre Vancouver, Canada

Host:  Parkinson’s Foundation (PF)

Registration webpage

A recording of the webinar will be posted to the PF YouTube channel in the Wellness Wednesday playlist


Wednesday, June 14, 11am

[Parkinson’s] Medications Explained

Audience:  Newly Diagnosed

Description:  The speaker will explore the medications used to treat PD and how they work in the body.  Topics include current medications and medications that may be prescribed in the future.  Part of the Parkinson’s Disease Learning & Educational Resource (PDLER) series.

Speaker:  movement disorders specialist, Banner Sun Health Research Institute

Host:  Banner Health

Registration webpage

 or call 800-230-2273.

This webinar will not be recorded.


Wednesday, June 14, 12pm

DBS:  What is it and how can it help PD?

Description:  The speaker will explain what symptoms deep brain stimulation (DBS) can treat, who is a good candidate for the procedure – or not, and what can be expected after having DBS implanted.

Speaker:  Christa Cooper, PA, movement disorders clinic, Rush University Medical Center, Chicago

Host:  PMD Alliance

Registration webpage

The webinar recording may be posted to the PMD Alliance YouTube channel


Wednesday, June 14, 12pm

Global Perspectives on Parkinson’s

Description:  The speaker will discuss global perspectives on PD and the medication equity efforts of the PD Avengers.  Part of the Wellness Webcast series.

Speaker:  Soania Mathur, MD, movement disorder specialist, UCLA

Host:  Brian Grant Foundation (BGF)

Registration webpage

A recording of the webinar will be posted to the BGF website


Thursday, June 15, 9am

[Replay] From Low Blood Pressure to Bladder Problems:  A Look at Lesser-Known Parkinson’s Symptoms

Description:  Panelists discuss autonomic issues of low blood pressure, bladder problems, constipation and sweating, and ways to treat them.  This is a replay of a previous webinar.

Multiple speakers

Host:  Michael J. Fox Foundation (MJFF)

Registration webpage

A recording of the June 6, 2022, webinar can be viewed any time on the MJFF YouTube channel


Thursday, June 15, 9:30am-1pm

Treatment Options for PD:  Mid Atlantic Parkinson’s Symposium

Description:  This program will cover various treatment options for PD, from exercise, therapies, medications, and surgery options.

Speakers:

Fernando Pagan, MD, Georgetown University

More to be announced

Host:  Parkinson’s Foundation Mid Atlantic Chapter

Registration webpage

No information is available about the recording of this symposium.


Thursday, June 15, 11am

Medication Options for Parkinson’s Symptoms: A to Z Review

Description:  The speaker will discuss the different pharmacological medications for the management of PD, including advanced therapies such as enteric levodopa and subcutaneous levodopa/apomorphine.

Speaker:  Juan Ramirez-Castaneda, MD, movement disorder specialist, Methodist Physician Practices and Biggs Institute, Austin, TX

Host:  PMD Alliance

Registration webpage

The webinar recording may be posted to the PMD Alliance YouTube channel


Friday, June 16, 6am-2pm

Boldly Living with PD! – Iowa Parkinson’s Disease Conference 

Description:  Topics include managing exercise as PD progresses, urinary issues and constipation, and research into gait and balance.  There will also be a panel discussion highlighting the stories of people with PD.

Multiple speakers

Host:  APDA Iowa

Agenda webpage

Virtual registration fee to live-stream:  $15.  Session handouts will be available on APDA Iowa website.

Registration webpage

Most sessions will be recorded and available on the APDA Iowa website after the conference


Friday, June 16, 11am

A Closer Look: Eye Issues in Parkinson’s

Description:  The speaker will discuss some of the common eye-related issues and conditions that are sometimes seen in people with PD, and how to treat them.

Speaker:  Alexander Solomon, MD, neuro-ophthalmologist, Pacific Neuroscience Institute

Host:  Parkinson’s Community Los Angeles (PCLA)

Registration website

A recording of the webinar will be posted to the PCLA YouTube channel


Tuesday, June 20, 12pm

How to Travel Better [with Parkinson’s]: Insider Travel Tips

Description:  The speaker will explain how a travel agent can help, how to request a wheelchair at the airport if needed, what time you should fly, whether it’s better to schedule the short flight first or the long flight first when using connecting flights.  He will also discuss international travel, cruises, and solo travel.

Speaker:  Adam Rog, travel consultant

Host:  PMD Alliance

Registration webpage

The webinar recording may be posted to the PMD Alliance YouTube channel


Tuesday, June 20, 4pm

Anesthesia and Parkinson’s Disease

No description available

Speaker:  Nicholas Watson, MD, Corewell Health

Host:  Michigan Parkinson Foundation (MPF)

At the webinar time visit here

Meeting ID:  660 963 7129

Password:  MPF2020 (letters are all capitalized)

Or participate by phone:  646-558-8656

The webinar recording may be posted to the MPF YouTube channel


Wednesday, June 21, 10am

Actively Pursuing Well-being in PD

Description:  Learn from people living with Parkinson’s and PD specialists about ways to actively influence your mental narrative and improve your overall health in a candid, virtual conversation.  Part of the Wellness Wednesday educational series.

Speakers:

Paul French, person with Parkinson’s

Lou Eisenbrandt, person with Parkinson’s

Gregory Pontone, MD, MHS, Johns Hopkins

​​​​​​​Terry Ellis, PhD, PT, Boston University

Bradley McDaniels, PhD, University of North Texas

Host:  Parkinson’s Foundation (PF)

Registration webpage

A recording of the webinar will be posted to the PF YouTube channel in the Wellness Wednesday playlist


Wednesday, June 21, 11am

Pelvic Floor Dysfunction: Providing Solutions with Parkinson’s

No description available. Part of the Wellness Wednesday virtual education series.

Speaker: Rachel Selman, Physical Therapist, Synthesis Physical Therapy

Host:  Parkinson Association of the Carolinas (PAC)

Registration webpage

A recording of the webinar will be posted to the PAC YouTube channel in the Wellness Wednesday playlist


Wednesday, June 21, 11am

Simplifying Daily Living [with PD] with Gizmos, Gadgets, and More

Description:  An occupational therapist will discuss an assortment of useful gadgets — including some new ones you may not have heard of before — and ways to repurpose some everyday household items to make life easier and safer, and a person with PD will share some tools and tips he has discovered on his own journey with Parkinson’s that have enriched and simplified his life.

Speakers:

Valerie Metcalfe, occupational therapist

Ron Begg, person with Parkinson’s

Host:  Parkinson Canada

Registration webpage

A recording of the webinar may be posted to the Parkinson Canada YouTube channel.


Wednesday, June 21, 1:30pm

PD 101

Audience:  Newly Diagnosed

Description:  If you or your loved one have been recently diagnosed with Parkinson’s, chances are you are looking beyond your doctor for answers to your questions and for support on how to live well on this new journey.

Host:  Neuro Challenge, Sarasota, FL

Registration webpage

This webinar is offered monthly and is not recorded.


miércoles, 21 de junio, 2pm

¿Por qué necesitamos una comunidad de apoyo mutuo?

Descripción: Los líderes de los grupos de apoyo para personas con Parkinson de diferentes partes del mundo compartirán sus experiencias sobre cómo reunir a los participantes para crear una comunidad de apoyo mutuo.

Moderadora:  Sabela Avión (EE. UU y España)

Invitados especiales: 

José Julio Delgado (EE.UU.)

Paqui Ruiz (España)

Ana María Tamayo (Perú)

Beatriz Navarro (Argentina)

Roberto Escobedo-Graham (México)

Anfitriona:  PMD Alliance

Inscripción

La grabación del seminario web se puede publicar en el canal de YouTube de la PMD Alliance


miércoles, 28 de junio, 10am

May not be specific to Parkinson’s Disease.

Decisiones para el final de la vida

Descripción:  Aprenda a tomar decisiones informadas sobre la atención al final de la vida, incluida la planificación anticipada, los cuidados paliativos y los cuidados paliativos. Conozca la importancia de tener conversaciones abiertas y honestas con sus seres queridos y profesionales de la salud para garantizar una atención adecuada y de calidad al final de la vida.

Presentadores:

Leslie Martinez, Compassion & Choices

Maria Otero, Compassion & Choices

Anfitriona:  Parkinson’s Foundation

Inscripción

La grabación del seminario web se puede publicar en el canal de YouTube de la Parkinson’s Foundation.


Thursday, June 29, 1-2:30pm

Resources for Veterans with Parkinson’s

Description:  The speakers will explore the resources and support services that veterans have access to through the VA and the Parkinson’s Foundation.

Speakers: 

Gretchen Glenn, LCSW, VA Med Ctr, Philadelphia

Christina Ketron, DNP, VA Med Ctr, Charleston

Welma James Jackson Jr., Louisiana Dept of Veterans Affairs

Shawn Katalinas, MSOT, OTR/L, VA Med Ctr

Host:  Parkinson’s Foundation (PF)

Registration webpage

A recording of the webinar will be posted to the PF YouTube channel in the Wellness Wednesday playlist

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