We are cleaning house! Our list of Parkinson’s blogs, podcasts, and vlogs has gotten so long, we are no longer including those that have been inactive since early 2024.
But some of those are still worthwhile reading, listening, or viewing. Check out our list below of inactive work.
Inactive Blogs About PD
The Crooked Path
Blogger: Corey King, diagnosed with PD at age 47
Frequency: Inactive (2011-2024)
Topics covered: Observation of the joys and challenges of life, occasionally focusing on living well in defiance of early-onset Parkinson’s disease
Defeat Parkinsons
Blogger: Dr. Maria De León, retired movement disorder specialist and person with young onset Parkinson’s (YOPD)
Frequency: Inactive (2013-2023)
Topics covered: Medication management; dental hygiene; tips for good sleep; treatment of overactive bladder; end-stage Parkinson’s disease; tardive dyskinesia; combating apathy; weight gain after DBS in women; and women’s health and sexuality series; some posts are in Spanish
Kathleen Kiddo, Parkinson’s Advocacy
Blogger: Heather Kennedy
Frequency: Inactive (2017-2022)
Topics covered: Heather Kennedy (aka Kathleen Kiddo) is a writer, speaker, and Parkinson’s advocate diagnosed in 2011. She underwent Deep Brain Stimulation surgery in 2021. Her website features YouTube videos and podcasts addressing misunderstood symptoms of early-onset Parkinson’s and palliative care. She has collaborated with the Davis Phinney Foundation, Brian Grant Foundation, and other Parkinson’s organizations.
Living Well with Parkinsons Disease
Blogger: Sheryl Jedlinski, diagnosed with Parkinson’s at age 44
Frequency: Inactive (2016-2022)
Topics covered: Thankfulness, second opinions, taking control, nocturnal leg cramps, keeping calm, putting health and well-being first, Sinemet shortage, saved by my walker, and more
Parkinson’s Diva
Blogger: Maria De León, neurologist (retired), person with Parkinson’s
Frequency: Inactive (2015-2023)
Topics covered: Beauty tips for PD, making the most of PD, health and PD, PD Advocacy, fashion tips for women with PD, care partners, Women&PD Initiative, marriage and PD, weight changes in PD, and more!
Parky Boy
Bloggers: Rob, person with PD
Frequency: Inactive (2020-2023)
Topics covered: Living with Parkinson’s: to help others with Parkinson’s by talking about it openly, to help the author make sense of things and process the PD experience
Tim Hague Sr., Live Your Best
Bloggers: Tim Hague, author, PD advocate, winner of Great Race Canada, RN (ret), person with PD
Frequency: Inactive (2014-2022)
Topics covered: Newly diagnosed, 10 years a Parkie, accepting limits, PD’s silver lining, taking advantage of opportunities, live your best life, and more
Women’s Parkinson’s Project
Bloggers: Reader submissions and project founders: Richelle Flanagan, Kat Hill, and Sree Sripathy
Frequency: Inactive (June 2021-December 2023)
Topics covered: Personal stories from women who have Parkinson’s and how they cope with life’s daily challenges.
Inactive Podcasts and Vlogs
Living with Lewy Body Dementia
Vloggers: Leslie and Jason Weiser
Frequency: Inactive (2019-2022)
Topics covered: Jason Weiser was diagnosed with Lewy Body Dementia (LBD) at age 45 after military service and a head injury; the series documents his experience trying to continue a full life with LBD and his wife, Leslie’s, experience as his care partner, discussing symptoms, doctor appointments, decline, grief, getting on with life, and more
PD Lemonade
Podcaster: Kat Hill
Frequency: Inactive (2021)
Topics covered: Interviews with caregivers and advocates in the YOPD community, with particular emphasis on women with PD
Trembling EMT: My Parkinson’s Journey
Podcaster: Eric Aquino, EMT, person with young onset Parkinson’s, and Founder of the Gray Strong Foundation
Frequency: Inactive (June 2018-February 2023)
Topics covered: Eric, who was diagnosed in his 40s with Parkinson’s, debunks the myth that Parkinson’s is an “old people disease,” with candid stories and interviews with people living with Parkinson’s, physical therapists and others involved with Moving Forward with Parkinson’s