Every month, Stanford Parkinson’s Community Outreach produces a list of Parkinson’s-related webinars and virtual meetings with speakers. Here’s our June 2022 list.
What’s the difference between a webinar and a virtual meeting? A “webinar” has a handful of speakers at most, and attendees have both audio and video muted. A “virtual meeting” usually allows attendees to be seen and heard.
We recommend you register NOW for anything of interest. That way, if there’s a recording, as a registrant you’ll receive an email alerting you to the recording availability. Also, note that a few webinars have registration deadlines well in advance of the webinar dates.
Stanford Parkinson’s Community Outreach will try to attend as many of these events as possible and share our notes. Our notes about PD webinars are often posted here to our blog. We email our notes to the “Stanford PD Info” and “PD Caregivers” email lists, depending on the relevance to those audiences.
We publish to our blog an additional caregiver-specific webinar and virtual event list, which is sent to those on our “PD Caregivers” list. That list includes some events not included here since those events are for caregivers only.
If you are a caregiver to someone with PD, we encourage you to be added to our “PD Caregivers” email list.
Unless indicated, the webinar and virtual meetings listed below are:
- Times listed as PT. (We are based in California, after all.)
- One-hour in duration. We suggest you join five minutes before the official start-time. (Usually, the speaker talks for 30-40 minutes and there’s a question-and-answer session for the remaining time.)
- For a general audience. (Again, caregiver-specific events are on our other list.)
- Not focused on a single medication or single, branded treatment. (Those are excluded.)
- Free.
After that long preamble, here’s our list of PD-related webinars and virtual meetings in June 2022…
– Denise
Wednesday, June 1, 11am
Debunking Myths About Grief
Description:
The speaker will discuss six myths of grief and provide some tools that may help us live today in the present moment rather than focusing on the past or worrying about the future.
Speaker: Louanne Stanton, certified grief recovery specialist, founder, Loss101 (formerly Reflections Grief Recovery)
Host: Parkinson Association of the Carolinas (PANC)
When joining the meeting, IF prompted enter the following meeting information: ID: 824 1483 9345 | Passcode: 793980
This is a meeting of the PANC virtual support group with a special speaker. As such, it is unlikely the event will be recorded or posted online.
Wednesday, June 1, 12pm
Navigating Hospitalizations with Parkinson’s
Description:
The speaker will present vital information you need to know when you or your loved one with PD is hospitalized. Like the most common reasons people with Parkinson’s visit the ER, whether healthcare providers in the ER and on general medical floors are equipped to understand PD symptoms, complications, and timing of medications, the risks of complications while hospitalized and how can they be minimized, even if the medical team isn’t familiar with PD, how care partners can best communicate their loved one’s unique needs…and more
Speaker: Michael Okun, MD
Host: PMD Alliance
The webinar recording may be posted to the PMD Alliance YouTube channel
Thursday, June 2, 8am
The Pride of Caring: The Pride of Innovative Programming
Description:
A conversation with a representative from the Area Agency on Aging of Suburban Cook County, IL, one of few such agencies nationally to have earned the highest level of SAGECare credentialing, to discuss their LGBTQ+ program – Thrive with Pride.
Moderators:
Elliot Montgomery Sklar, PhD
Lucy Barylak, MSW
Speaker: Kate Spelman, AgeOptions
Host: Wellmed Caregiver Teleconnection
The webinar will be recorded and posted to the Caregiver Teleconnection website. Use the search box or click on “<<Previous Events” to find archived webinars and teleconferences.
Thursday, June 2, 11am
Stress and the Dementia Caregiver
Description:
This webinar will explore the stress, grief, and reality of care at home. Tools for measuring caregiver stress will be shared, including measurements for grief, stress, anxiety, and depression.
Speaker: Tam Cummings, PhD
Host: Wellmed Caregiver Teleconnection
The webinar will be recorded and posted to the Caregiver Teleconnection website. Use the search box or click on “<<Previous Events” to find archived webinars and teleconferences.
Friday, June 3, 11am
Panel: Our Caregiving Stories [for Parkinson’s]
Description:
A panel of PD carepartners/family caregivers discusses what being a carepartner/caregiver means to them and how they have advocated for themselves in the role. The challenges and rewards of caregiving, as well as wisdom acquired through lived experience, will be explored. This is the first of a three-part PSBC caregiver webinar series.
Moderator: Madelaine Ross, Parkinson Society BC
Host: Parkinson Society British Columbia (PSBC)
A recording of the webinar may be posted to the PSBC YouTube channel
Tuesday, June 7, 8am
Disaster Preparedness 101 for Caregivers
Description:
As hurricane season approaches (in TX), there are specific tips and preparations that caregivers and seniors should make. This session will outline key preparedness plans to maintain safety.
Speakers:
Elliot Montgomery Sklar, PhD
Lucy Barylak, MSW
Host: Wellmed Caregiver Teleconnection
The webinar will be recorded and posted to the Caregiver Teleconnection website. Use the search box or click on “<<Previous Events” to find archived webinars and teleconferences.
Thursday, June 9, 8am
The Pride of Caring: The Pride of Aging
Description:
A discussion about aging within the LGBTQ+ community, and some of the unique challenges that LGBTQ+ seniors and caregivers face.
Moderators:
Elliot Montgomery Sklar, PhD
Lucy Barylak, MSW
Speakers:
G.J. Hodson, Coalition for Aging LGBTQ+, Texas
Mann Hanson, MD, Coalition for Aging LGBTQ+, Texas
Host: Wellmed Caregiver Teleconnection
The webinar will be recorded and posted to the Caregiver Teleconnection website. Use the search box or click on “<<Previous Events” to find archived webinars and teleconferences.
Thursday, June 9, 10am-12pm
Debriefing the Caregiver Role [for Parkinson’s]
Audience:
For those who have lost a loved one with PD within the last two years.
Description:
Attendees will learn and share experiences about loss and grief.
Speakers:
Elaine Book, social worker, Pacific Parkinson’s Research Centre
Madelaine Ross, clinical counselor, PSBC
Host: Parkinson Society British Columbia (PSBC)
Registration closes June 6. Registration webpage
For privacy reasons, this workshop will not be recorded.
Thursday, June 9, 3pm
Care Partner Panel: Caring for Someone with PD from a Distance
Description:
Adult children, siblings, parents, family and friends who care for someone with PD from a distance are often unsure about how they can help and be supportive. Being far away can lead to feelings of being overwhelmed or disillusioned about the disease and their PwP’s challenges. Because of lack of information, they have less perspective about what the PwP is able to do, and what their most significant challenges may be.
Moderator: Julie Carter, RN, MN, ANP
Panelists:
Jill McClure, Parkinson’s Foundation Helpline information specialist
Maggie Rowland Wortendyke, adult child PD caregiver
Jennifer Irving, adult child PD caregiver
Host: World Parkinson’s Coalition (WPC)
Past webinars are available to view or read as a downloadable written summary on the WPC 2022 Care Partner Virtual Panel page
Saturday, June 11, 10:30am-12pm
“Winter Stars: An elderly mother, an aging son, and life’s final journey”
Description:
The speaker will present a short reading from his book, and he will field questions about the book and about caregiving in general.
Speaker: Dave Iverson, journalist and author
Host: PD Active
Speaker bio and registration webpage
A recording of the webinar may be posted to the PD Active YouTube channel
Monday, June 11, 4pm
A Discussion with Parkinson’s Care Partners
Description:
Three care partners to people with Parkinson’s disease with a range of experiences at different stages of the disease will share their insights on planning for PD over the long term, navigating the healthcare system, raising a family when your partner has PD, negotiating finances and employment, taking care of the care partner, and whatever else is on your mind! Part of the “Dr. Gilbert Hosts” webinar series.
Moderator: Rebecca Gilbert, MD, APDA
Panelists:
Jennifer Corser
Greg Chesmore
Mario Valbuena
Host: American Parkinson Disease Association (APDA)
This webinar will be posted to the “Dr. Gilbert Hosts” playlist on the APDA YouTube channel
Monday, June 13, 10am
Personal Services
Description:
The speakers will explain what personal services are, how it differs from home health, how much it costs, and what questions I should ask.
Speakers:
Elliot Montgomery Sklar, PhD
Lucy Barylak, MSW
Host: Wellmed Caregiver Teleconnection
The webinar will be recorded and posted to the Caregiver Teleconnection website. Use the search box or click on “<<Previous Events” to find archived webinars and teleconferences.
Monday, June 13, 7pm
Let’s Talk Care Partners: Practical tips and tricks for life with PD
Description:
An interactive, virtual roundtable discussion among PD care partners.
Multiple speakers
Host: Parkinson’s Community Los Angeles (PCLA)
The webinar will be recorded and posted to the PCLA YouTube channel’s “Let’s Talk Parkinson’s playlist
Wednesday, June 15, 10am
Male Care Partners [for Parkinson’s]
Description:
The first of its kind webinar for male carepartners who want to understand more about how PD impacts male care partners differently than female care partners.
Host: Parkinson’s Foundation (PF)
This webinar will be posted on PF’s Past Wellness Wednesdays webpage
Wednesday, June 15, 11am
Helpful Ways to Manage Parkinson’s Disease for Patients and Caregivers
Description:
The speaker will explain treatment options and how to manage Parkinson’s disease.
Speaker: Maighan Mears, LPN
Host: Parkinson Association of the Carolinas (PAC)
A recording of this webinar may be posted to the PAC YouTube channel
Wednesday, June 15, 12:30pm
[Parkinson’s] Caregiving Stages: Learn Optimism, Discover Hope
Description:
The speaker will discuss the stages of caregiving and what Parkinson’s carepartners/caregivers can expect at each stage (for Parkinson’s), and how caregivers can learn optimism and discover hope, even in the most challenging times. The speaker will offer concrete methods to cultivate practical optimism in caregiving, and will explore how hope is an important psychological resource. This is the third of a three-part PSBC webinar series.
Speaker: Sky Lee, clinical counselor
Host: Parkinson Society British Columbia (PSBC)
A recording of the webinar may be posted to the PSBC YouTube channel
Wednesday-Friday, June 15-16
“Living with Lewy” and Joint Session
Description:
These two programs are part of the International Lewy Body Dementia (LBD) Conference 2022. While the conference brings together researchers, academics and medical professionals to discuss the latest developments in LBD research and care, the “Living with Lewy” section is designed specifically for people living with dementia and carers. The joint session brings the “Living with Lewy” attendees together with the scientific strand.
Multiple speakers
Host: The Lewy Body Society, UK
Registration webpage for “Living with Lewy” patients and carers
Thursday, June 16, 8am
The Pride of Caring: The Pride of Community
Description:
A discussion on the importance of LGBTQ+ community engagement across all ages to support LGBTQ+ seniors and caregivers.
Moderators:
Elliot Montgomery Sklar, PhD
Lucy Barylak, MSW
Speakers:
World Famous *BOB*
Richard Bondi, Austin LGBT Elder Task Force
Host: Wellmed Caregiver Teleconnection
The webinar will be recorded and posted to the Caregiver Teleconnection website. Use the search box or click on “<<Previous Events” to find archived webinars and teleconferences.
Saturday, June 18, 12pm
Pressure Ulcers
Description:
The speaker, a geriatrician, will educate about pressure ulcers and answer attendee questions. Pressure ulcers, or bedsores, can develop in a matter of hours if a person can’t move all or part of their body. They are painful and, left untreated, can result in serious infection.
Host: Dr. Liz Geriatrics
No registration required. Click on “Live” just under Dr. Liz’s photo on the Dr. Liz Geriatrics Facebook page:
A recording of the webinar will be posted to Dr. Liz’s Facebook page
Monday, June 20, 7pm
Let’s Talk Caregiving: Practical tips and tricks for life with PD
Description:
A panel discussion among PD caregivers. Bring your questions!
Host: Parkinson’s Community Los Angeles (PCLA)
A recording of the webinar will be posted to the PCLA Archived Events webpage
Tuesday, June 21, 9am
Worry Warts: How to Take Action and Take Care of Business
Description:
This speaker identifies the primary worry themes and shares strategies and resources to address each. Session attendees are also encouraged to share the resources that have made the most significant impact in their caregiving journey.
Speaker: Elizabeth Miller, certified caregiver consultant
Host: Wellmed Caregiver Teleconnection
The webinar will be recorded and posted to the Caregiver Teleconnection website. Use the search box or click on “<<Previous Events” to find archived webinars and teleconferences.
Tuesday, June 23, 9am
Your Mental Health as Caregiver in the Times of COVID
Description:
While Covid-19 vaccination has helped some Americans experience a joyful summer, a large number of caregivers are still at home, struggling with the fallout from ongoing isolation, anxiety, and lack of support. This presentation exposes a national failure to support this vital part of our society — one that many of us will depend on at some point in life and what we need to do to support our own mental health in the face of this ‘new normal’ using tried and proven tools.
Speaker: James Huysman, PsyD, LCSW
Host: Wellmed Caregiver Teleconnection
The webinar will be recorded and posted to the Caregiver Teleconnection website. Use the search box or click on “<<Previous Events” to find archived webinars and teleconferences.
Wednesday, June 29, 9am
Daily Challenge of Mental Wellness
Description:
Start early each day and get ahead of anxiety, worry, and depression! Don’t get caught in the downward spiral of self-neglect. Get motivated and learn simple exercises to ward off negative thinking and to feel better every day.
Speaker: Evalyn Greb, MSW
Host: Wellmed Caregiver Teleconnection
The webinar will be recorded and posted to the Caregiver Teleconnection website. Use the search box or click on “<<Previous Events” to find archived webinars and teleconferences.