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Attend meeting of advisory council working on national plan to end Parkinson’s, and join the listserv

June 2, 2026 By Parkinson's Community Help

National Plan to End Parkinson’s
National Plan to End Parkinson’s

The inaugural meeting of the Advisory Council on Parkinson’s Research, Care, and Services (ACPRCS) will be held on Monday, June 29  from 7am-1pm PT.  Those in the Parkinson’s community may submit public comments and attend the meeting, to be webcast live by the US Department of Health and Human Services.  Federal agencies will provide an overview of their Parkinson’s programs.  Three members of the council are affiliated with American Parkinson Disease Association (APDA).  For updates related to the National Parkinson’s Plan, subscribe to an NIH listserv. 

From American Parkinson Disease Association (APDA):

The National Plan to End Parkinson’s will be developed with input from the ACPRCS, with representation from all aspects of the PD community.  Three council members are affiliated with APDA:  Cathi Ann Thomas, MS, RN, CNRN, APDA Information & Referral Program Director at Boston University; David G. Standaert, MD, PhD, Chair of APDA’s Scientific Advisory Board; and Sara Whittingham, MD, member of APDA’s National Board.

All stakeholders are encouraged to attend the inaugural meeting of the advisory council:

Monday, June 29
7am to 1pm PT

The meeting will be webcast live on the U.S. Department of Health and Human Services (HHS) Livestream

At this first meeting, HHS will introduce and swear in Advisory Council members. Federal agencies will also provide an overview of Parkinson’s programs, and the Advisory Council will strategize on their initial workplan.  

For more information about the ACPRCS and how to submit a public comment, please see the HHS National Plan to End Parkinson’s webpage

For updates related to the National Parkinson’s Plan, subscribe to the National Institutes of Health’s National Plan to End Parkinson’s Listserv. 

Please see Advocacy at APDA for additional information about APDA advocacy and public policy priorities and sign up for APDA Advocacy Alerts. 

Filed Under: Events

Stanford Parkinson’s Community Outreach provides vital resources and support to individuals living with Parkinson’s disease (PD), caregivers, family members, and friends. We curate a comprehensive list of PD-related webinars and virtual meetings, sharing insightful summaries through our blog and dedicated email lists.

Whether you seek online support groups, educational webinars, or access to helpful blogs and podcasts, we are here to empower you with the knowledge and connection you need on your Parkinson’s journey.

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