You can participate in a web-based seminar — or webinar — from the privacy of your home. Join either live or view the archived version within a few days of the live webinar (in most cases). All webinars listed are free. All times listed are Pacific Time. Here are webinars that may be of interest to those living with Parkinson’s in August 2020…
Monday, August 3, 12:00-1:00pm
“A Conversation with Professor Bhatia”
Program: Join us to speak with Professor Bhatia about his work merging clinical, genetic and electrophysiology to better understand the pathophysiology of Parkinson’s and dystonia. Dystonia is an involuntary and often painful muscle spasm caused by incorrect signals from the brain. These spasms pull the body into abnormal postures through repetitive twisting and sustained muscle contractions. We’ll learn about current treatment approaches, promising treatments in development, and the research revealing potential genetic links between Parkinson’s and dystonia.
Presenter: Kailash Bhatia, MD, Professor of Clinical Neurology in the Sobell Department of Movement Neuroscience at the Institute of Neurology, UCL, Queen Square, London
Presented by: PMD Alliance
Tuesday, August 4, 9:00-10:00am
“Top Tips from “Living with Parkinson’s Disease: A Complete Guide for Patients and Caregivers”
Program: Dr. Okun will be sharing tips from his latest book and answering your questions about living with Parkinson’s and providing care and support for a person with Parkinson’s.
Presenter: Michael S. Okun, MD, Executive Director of the University of Florida’s Norman Fixel Institute for Neurological Diseases and Chair of Neurology, National Medical Director, Parkinson’s Foundation
Presented by: Parkinson’s Foundation
Register (you will view the presentation on the Parkinson’s Foundation Facebook page)
Wednesday, August 5, 10:00-11:00am
“Recognizing Communication Challenges in PD”
Program: Noticing challenges with expressing your thoughts, ideas, or needs? Join the Parkinson’s Foundation and an expert in Neuropsychology to learn more on how Parkinson’s disease may impact your skill to effectively communicate. We will explore practical tips to reduce barriers that will help you to improve your communication with loved ones, friends, and providers.
Presenter: Danielle Carns, Psy.D, Neuropsychology Fellow, Department of Neurology, University of Miami Miller School of Medicine
Presented by: Parkinson’s Foundation
Wednesday, August 5, 12:00-1:00pm
“The Neuropsychology of Parkinson’s”
Program: Parkinson’s can cause changes in some cognitive functions that range from mild impairment to more complex, including dementia. Understanding these changes and how to cope with them is an important part of the comprehensive management of PD. Neuropsychological testing done by a neuropsychologist, a psychologist who specializes in understanding the relationship between the brain and behavior, can detect even mild cognitive changes and provide valuable insight to patients and family members.
Presenter: Anthony Logalbo, PhD, board certified neuropsychologist specializing in the assessment and treatment of those living with a neurological disorder.
Presented by: PMD Alliance
Thursday, August 6, 10:00-11:30am
“On the Menu: Nutrition & Parkinson’s”
Program: This is a 2-part program presented over two days. A balanced diet is a foundation of good health. For people with Parkinson’s disease, a balanced diet is even more important. In Parkinson’s, there are some foods that may help to ease symptoms and support brain health, while others can affect the way medications work. The informed choice of diet can help people to live better with the disease.
Join us as Dr. Mischley discusses the role nutrition plays for those living with Parkinson’s. Specifically, we will explore: the importance of healthy eating and how some foods and supplements may promote brain health; the relationship of meal timing and food interaction with Parkinson’s medications; and the connection between the brain and gut as it relates to Parkinson’s.
Presenters: Laurie Mischley, ND, PhD, MPH, Bastyr University Research Institute and Seattle Integrative Medicine
Taylor Drake, PT, DPT, Rochester University (Stretch Break)
Presented by: Parkinson’s Foundation
Thursday, August 6, 11:00am-12:00pm
“Health Disparities and Parkinson’s: Understanding the Issue”
Program: We will begin this series by identifying what health disparities look like in the Parkinson’s community. Our expert panelists, who have extensive experience in research, medical care, hospital management, community outreach, and community programming, will help define the problem and share their experiences to help us root our understanding and identify future actions.
Presenters: Nabila Dahodwala, MD, Director, Parkinson’s Disease and Movement Disorders Center, University of Pennsylvania
Jonathan Jackson, PhD, Founder and Executive Director of the Community Access, Recruitment, & Engagement (CARE) Research Center at Massachusetts General Hospital
Nicte Mejia, MD, MPH, Director, MGH Neurology Diversity and Community Outreach Initiatives, Massachusetts General Hospital
Claudia Martinez, MD, Hispanic Outreach Coordinator, Muhammad Ali Parkinson Center at Barrow Neurological Institute
Altaf Saadi, MD, MSc, General Academic Neurologist and Associate Director of Asylum Clinic at Massachusetts General Hospital
Moderator, David Leventhal, Program Director, Dance for PD®, Mark Morris Dance Group, and Board of Directors, Davis Phinney Foundation
Presented by: Davis Phinney Foundation for Parkinson’s
Thursday, August 6, 12:00-1:00pm
‘Lunch with Docs – Different from Alzheimer’s: Lewy Body Dementia”
Program: What is the difference between Alzheimer’s and Lewy Body Dementia? How do you know if symptoms are just part of Parkinson’s or related to dementia? Join us for discussion on understanding the differences between Alzheimer’s and Lewy Body dementia with our speaker as he explains the symptoms of Lewy Body dementia, how it is diagnosed and treated and what research is relevant for those diagnosed.
Presenter: Davis Shprecher, DO, MSCI, FAAN, Banner Health
Presented by: PMD Alliance
Friday, August 7, 9:00-10:00am
“The Tebow Family’s Brave Battle with Parkinson’s”
Program: Join our panelists in learning about one family’s experience with Parkinson’s. Joining the discussion is a leading Parkinson’s researcher and clinician. A question and answer session will follow the panel discussion.
Presenters: Bob and Pam Tebow, friends of the Parkinson’s Community
Michael Okun, MD, Executive Director, Norman Fixel Institute for Neurological Diseases at UF Health, Chair and Professor, Department of Neurology
Presented by: Ending Parkinson’s Disease
Friday, August 7, 10:00-11:30am
“On the Menu: Day 2:-Discussion and Cooking Demonstration”
Program: Join our expert speaker as she shares tips related to Parkinson’s concerns, like loss of smell or taste, eating to maintain weight, cooking tools and adaptive silverware. Beth will show us how she prepares no heat meals, perfect for hot summer! We will also hear from people affected by Parkinson’s share their story and experiences with eating well.
Presenter: Beth Kitzis, Registered Dietician, Community Servings
Presented by: Parkinson’s Foundation
Saturday, August 8, 9:00-10:30am
“Alleviating ON/OFF Periods in Parkinson’s”
Program: Our presenter will discuss the motor symptoms of Parkinson’s and how different medications interact with the body to treat those symptoms. The presenter will also provide information about ON/OFF periods, their causes and available rescue treatment options. Participants will also have the opportunity to hear from a patient advocate on their experiences with rescue medications.
Presenter Laxman Bahroo, DO, FAAN, is an assistant professor and co-director of the Neurology Residency Program at MedStar Georgetown University Hospital
Presented by: Parkinson Association of the Rockies
Monday, August 10, 9:00-10:00am
“Dr. Gilbert Hosts: Intentional Optimism-A Conversation with Bill Rasmussen”
Program: Dr. Gilbert has been hosting conversations with leading figures in the Parkinson’s community. This month’s conversation focuses on the role of optimism while living with the challenges of Parkinson’s disease
Presenters: Rebecca Gilbert, MD, PhD, Medical Director, American Parkinson Disease Association (APDA)
Bill Rasmussen, founder, ESPN
Presented by: American Parkinson Disease Association (APDA)
Tuesday, August 11, 11:00am-12:00pm
“Living Well with Parkinson’s Through Dance and Movement with David Leventhal”
Program: Dancing has been shown to improve gait and balance, reduce tremor, slow cognitive decline, and improve overall coordination and mobility in people with Parkinson’s. And, as a result, it has become one of the more popular activities that people with Parkinson’s do to improve their quality of life.
Presenter: David Leventhal, Program Director, Dance for PD®, Mark Morris Dance Group, and Board of Directors, Davis Phinney Foundation
Presented by: Davis Phinney Foundation for Parkinson’s
Wednesday, August 12, 10:00-11:00am
“Let’s Keep Moving with APDA: Assessing Balance with a Physical Therapist”
Program: A discussion about the key components of a physical therapy visit to assess balance.
Presenter: Teresa Baker, PT, NPT, Boston University <link>Center for Neurorehabilitation
Wednesday, August 12, 10:00-11:15am
“Technology Can Work For You!”
Program: Staying connected and utilizing technology for communication, is more important than ever…but what if technology is not your cup of tea? This webinar will focus on increasing your knowledge and confidence, as well as exploring useful resources you can utilize, to make technology work for you! We will discuss a variety of topics such as: the importance of staying connected, telehealth, and more.
Presenter: To be advised at time of webcast
Presented by: Parkinson’s Foundation
Wednesday, August 19, 10:00-11:00am
“Putting Your Best Voice Forward with PD”
Program: People with Parkinson’s disease (PD) may experience conversation breakdowns due to PD-related symptoms such as speech changes, decreased facial expression called “facial masking,” anxiety, and isolation. Guided by our expert moderator, a panel of people with PD and those who care for them will explore these communication challenges. People with PD, loved ones, families, and health providers are invited to join and learn about tools and strategies to strengthen communication, relationships, and one’s sense of self, helping people with PD feel heard and understood.
Presenter: To be advised at time of webcast
Presented by: Parkinson’s Foundation
Wednesday, August 19, 11:00am-12:00pm
“A Crash Course for Care Partners: How to Help People Receiving LSVT LOUD and BIG”
Program: Do you help support and care for someone who is receiving LSVT LOUD or LSVT BIG? You can be a key part of optimizing their success. Learn our top tips on how to help support daily exercise practice, homework and carryover of a louder voice and bigger movements into daily life. Also hear ideas of how to motivate and encourage, as well as what NOT to do!
Presenters: LSVT clinicians
Presented by: LSVT Global
Thursday, August 20, 8:00-10:30am
“Virtual Summer Symposium”
Program:
“ Non-Motor Symptoms”- Roger Albin, MD
“ Staging Parkinson’s Disease”- Eleanor Orehek, MD
“ Research and Advocacy”-Karlin Schroeder
Presenters: Roger Albin MD, University of Michigan Udall Center
Eleanor Orehek, MD, Medical Director, Noran Neurological Clinic, APDA Minnesota
Karline Schroeder, Senior Director of Community Engagement, Parkinson’s Foundation
Presented by: APDA Minnesota Chapter, Parkinson’s Foundation Minnesota and the Dakotas, Udall Center, University of Minnesota
Thursday, August 20, 9:00-10:00am
“Environment’s Role in Parkinson’s Disease”
Program: Our panelists will discuss studies into how factors such as pesticide and toxicant exposure and head injury can lead to Parkinson’s. We’ll also cover policies and legislation that may help limit those exposures and protect people from disease and answer questions from the audience.
Presenters: To be advised at time of webcast
Presented by: Michael J. Fox Foundation for Parkinson’s Research
Thursday, August 20, 12:00-1:00pm
“YOPD Council: Work, Money, Meaning, and Parkinson’s”
Program: One of the more difficult issues people who are diagnosed with Parkinson’s at a young age face is how they are going to manage their work life.
During this session, the seven members of our Council will discuss; How (and if) to share your diagnosis with your boss and colleagues; how to continue working and still do all it takes to live well with Parkinson’s; how to plan for an uncertain future of employment; how to advocate for yourself at work
How to change careers and/or find more meaning along your career path
Presenters: Davis Phinney Foundation YOPD Council
Presented by: Davis Phinney Foundation for Parkinson’s
Sunday, August 23, 10:00-11:00am
“Ending Parkinson’s Disease”
Program: We are pleased that co-author Ray Dorsey, MD will join us for a book discussion of the new MUST READ book about Parkinson’s Disease for everyone with Parkinson’s and their care partners.
Presenter: Ray Dorsey, MD, MBA, University of Rochester
Presented by: Twitchy Woman
Tuesday, August 25, 11:00am-12:00pm
“Q&A: The Impact of COVID-19 on Daily Life with PD”
Program: Our speaker will discuss ways to handle stress and anxiety, and how to avoid feeling isolated while staying home.
Presenter: Arik C. Johnson, Psy.D., UCLA
Presented by: PCLA
Thursday, August 27, 12:00-1:00pm
“Parkinson’s Disease Psychosis: The What, When, Why & How”
Program: In this webinar, Dr. Goetz will answer the following: What causes Parkinson’s disease psychosis; what are hallucinations and delusions and are their different types; do hallucinations happen while sleeping; are they the same as vivid dreams and nightmares; what makes some people more likely to experience hallucinations and delusions than others; what can a person with Parkinson’s do to reduce or manage them; what treatments are available (pharmacological and non-pharmacological); what can a Parkinson’s care partner do when their person with Parkinson’s is experiencing them; when should someone see a doctor about them?
Presenter: Christopher Goetz, MD, Neurologist, Professor, Rush Parkinson’s and Movement Disorders Program
Presented by: Davis Phinney Foundation for Parkinson’s
Friday, August 28, 8:00-11:00am
“Online HOPE Conference: Relationships on Parkinson’s Journeys”
Program: Join us for an exciting opportunity to be a part of NW Parkinson’s online HOPE Conferences®! We are embracing the challenge of bringing our robust, traditionally in-person, conference to our community members virtually, by curating an intentional program that meets the needs of everyone we serve. More details to come soon
Presenters: See agenda
Presented by: Northwest Parkinson Foundation