November 2020 Webinars and Virtual Events about Parkinson’s

November 2020 Webinars and Virtual Events about Parkinson’s

Every month, Stanford Parkinson’s Community Outreach produces a list of Parkinson’s-related webinars and virtual events (conferences and symposia). Here’s our November 2020 list of PD webinars and virtual events. There seems to be no slow-down in the pandemic-time webinar parade, despite the fact that the holidays are approaching.  Since November is National Caregivers Month, there are several virtual events for PD caregivers. Most of the webinars listed are for a general audience and most are free. Be sure to register in advance! 

If you are a PD caregiver, we encourage you to be added to our “PD Caregivers” email list. We publish an additional caregiver-specific webinar and virtual event list to “PD Caregivers”.

Our staff will try to attend as many of these events as possible, and share our notes.  Our notes about PD webinars are often posted here to the blog.

And we often email our notes to the “Stanford PD Info” and “PD Caregivers” email lists, depending on the relevance to those audiences.

About the list below, unless indicated, all webinars and virtual events are:

  • Times listed as PT. (We are based in California, after all.)
  • One-hour in duration. (Usually the speaker talks for 30-40 minutes and there’s a question-and-answer session for the remaining time.)
  • For a general audience.
  • Not focused on a single medication. (Those are excluded.)
  • Free.

After that long pre-amble, here’s our list of PD-related webinars and virtual events in November 2020….

Robin

parkinsons.stanford.edu


Monday, November 2, 2020, 11am

Parkinson’s and The Good Life

Description: During the first half of this webinar, Dr. Santos will discuss what new results in psychological science teach us about how to be happier, how to feel less stressed, and how to flourish more no matter your situation.  During the second half of the webinar, Davis Phinney and Connie Carpenter Phinney will help us unpack what we learned. At the end, we’ll offer some ideas for “rewirement” activities to help you create new happiness habits, boost your mood, and improve your overall well-being.

Speaker: Laurie Santos, PhD, professor of psychology, Yale

Host:  Davis Phinney Foundation (DPF)

Register with DPF (from this webpage)

In about a week, the webinar recording will be posted to the DPF website


Monday, November 2, 2020, noon

COVID Fatigue & PD:  Social Connection as Medicine

Description: We are social creatures and our need for connection goes beyond just wanting to see people and have fun. We know that social isolation can have a negative impact on one’s health but never has it been forced upon our society collectively as it has this year. The medical community recognizes now more than ever the impact human connection and socialization has on the wellbeing of everyone, especially those dealing with Parkinson’s. The speakers discuss their recent co-authored paper about social connection as medicine, and how you can be involved in their future study.  (Waiting Room opens 5 minutes before the start-time.)

Speakers:
Laurie Mischley, ND, PhD, MPH
Indu Subramanian, MD

Host: 
PMD Alliance

Register with PMD Alliance

Within days, the recording will be posted to PMD Alliance’s YouTube channel


Wednesday, November 4, 2020, 10am

10 Strategies to Thrive with Parkinson’s Disease during a Pandemic

Description: 
Much has been written about how we are all coping or not coping during this global pandemic.  Add living with a chronic disease to that equation, and the bar is raised even higher. The speaker will address some of the top strategies for coping amidst the challenges of PD and our current global health crisis.  Learn about simple lifestyle choices including ways to take care of yourself mentally and physically, right now, in order to strengthen your networks and relationships to better navigate through this pandemic.

Speaker:
Amy Chesire, LCSW-R, University of Rochester Movement Disorders, Rochester, NY

Host: 
Parkinson’s Foundation (PF)

Register on PF’s website

At some point, a recording will be posted to PF’s website


Wednesday, November 4, 2020, 11am

Holistic & Supportive Care for Living Well with Parkinson’s

Description:
If you’ve been living with Parkinson’s for any length of time, you’ve probably heard the terms holistic care, supportive care, or palliative care. But you may not know what they mean when it comes to your care, now and in the future.  The speaker will discuss:  what your medical team means when they talk to you about palliative care; types of providers who deliver palliative care; how to advocate and receive the kind of supportive care you need even if your community doesn’t have a palliative care center for people with PD; and how to build your Parkinson’s roadmap.

Speaker: 
Dr. Christopher Tarolli

Host: 
Davis Phinney Foundation (DPF)

Register with DPF (from this webpage):

In about a week, the webinar recording will be posted to the DPF website.


Thursday, November 5, 2020, 9am

Dr. Gilbert Hosts: Advances in DBS

Description:
This is a question-and-answer session about advances in deep brain stimulation (DBS) for PD.  

Speaker:
Alon Mogilner, MD, neurosurgeon, Center for Neuromodulation, NYU Langone Medical Center

Host: 
American Parkinson Disease Association (APDA)

Register

At some point, webinar recording will be posted to the APDA website.


Thursday, November 5, 2020, noon

How the Brain Progresses with PD

Description:
Cognitive changes are common and vary widely in Parkinson’s. Tracking these changes is important for physicians to manage the complexities of symptoms and how they can be interrelated with other neuropsychological symptoms, but understanding the decline and how to effectively track often subtle changes can be challenging. The webinar’s focus is how the brain progresses with PD and how to effectively communicate these changes with your doctor.  (Waiting Room opens 5 minutes before the start-time.)

Host: 
PMD Alliance

Register with PMD Alliance.

Within days, the recording will be posted to PMD Alliance’s YouTube channel.


Friday, November 6, 2020, noon

Driving and Road Safety for People with PD

Description:
Driving equates to independence as well as providing the means to do necessary things such as going to the grocery, seeing your doctor, or getting out to socialize. We can’t deny that Parkinson’s can impact driving in a variety of ways and safety should be a priority, but how do you know for sure when it’s time to give up the keys and are there things you can do to maintain your ability to drive longer? The speaker discusses his research regarding prediction of driver safety in PD and the effects of exercise in driver rehabilitation.  (Waiting Room opens 5 minutes before the start-time.)

Speaker:
Ergun Uc, MD

Host: 
PMD Alliance

Register with PMD Alliance.

Within days, the recording will be posted to PMD Alliance’s YouTube channel.


Monday, November 9, 2020, noon

A Conversation with Rasheda Ali-Walsh

Description:
Rasheda Ali-Walsh was just twelve years old when her father Muhammad Ali was diagnosed.  She later went on to write a book, “I’ll Hold Your Hand So You Won’t Fall: A Child’s Guide to Parkinson’s” to encourage education and communication among children and family members. (Waiting Room opens 5 minutes before the start-time.)

Speaker:
Rasheda Ali-Walsh, author and advocate

Host: 
PMD Alliance

Register with PMD Alliance.

Within days, the recording will be posted to PMD Alliance’s YouTube channel.


Tuesday, November 10, 2020, 10am

Partnering: The Dance of Relationships and Romance 

Audience:
Patients with Young Onset Parkinson’s Disease (YOPD)

Description:
The stress of work, family and PD symptoms can be taxing on intimate relationships.  For the patient and their partner, learning how to reconnect when they feel distant and putting in place behaviors that support closeness and intimacy is key.  This presentation will offer strategies that help couples stay connected, both emotionally and physically.

Speaker: 
Sheila Silver, PhD, board-certified clinical sexologist in private practice in Portland

Hosts: 
Parkinson’s Foundation (PF)

Register with PF.

Within a few days, webinar recording will be posted to the PF website.


Wednesday, November 11, 2020, noon

Defining a Multidisciplinary Approach to PD

Description:
Seeing a movement disorder specialist is important in managing a movement disorder, however, it should not stop there. The complexity of symptoms warrants a more holistic, team approach utilizing the expertise of other practitioners.  The speaker defines what a multidisciplinary approach encompasses and how this can improve care and quality of life.  (Waiting Room opens 5 minutes before the start-time.)

Speaker:
Suketu Khandhar, MD

Host: 
PMD Alliance

Register with PMD Alliance.

Within days, the recording will be posted to PMD Alliance’s YouTube channel.


Thursday, November 12, 9am

Sleep Tight! Night-Time Issues in Parkinson’s

Description:
The speaker will discuss sleep issues in Parkinson’s including insomnia, restless legs, nightmares, and hallucinations.

Speaker: 
Mary Jenkins, MD, movement disorders neurologist, Western University, London (Ontario)

Host: 
Parkinson Society Southwestern Ontario (Canada)

Register with Parkinson Society Southwestern Ontario.


Thursday, November 12, 2020, 11am

Mental Wellness for Parkinson’s Care Partners

Audience: 
Parkinson’s care partners

Description:
The speaker will discuss:  common challenges of being a Parkinson’s care partner; signs you might be on the verge of burnout; strategies for avoiding burnout; a common challenge many care partners face and how to reduce the stress it causes; and a simple roadmap for daily mental health care. 

Speaker: 
Elaine Book, social worker

Host: 
Davis Phinney Foundation (DPF)

Register with DPF (from this webpage):

In about a week, the webinar recording will be posted to the DPF website.


Thursday, November 12, 2020, noon

What’s in Your Pill Box?

Description:
Have you heard the term “polypharmacy”? This is the use of multiple medications by a single person for one or more conditions. While confusing, frequently multiple medications are necessary and important in maximizing symptom management for this complex disease but must be balanced by risk of adverse events.  We discuss what is in your pillbox and the reason polypharmacy is used as well as how it can maximize quality of life.  (Waiting Room opens 5 minutes before the start-time.)

Host: 
PMD Alliance

Register with PMD Alliance

Within days, the recording will be posted to PMD Alliance’s YouTube channel


Friday, November 13, 10am-noon

New Frontiers in Research & Care

Audience:
Northern California PD community

Description:
Topics include what is PD research; how to participate in research remotely from home; and updates on studies and trials in the Northern California area.

Speakers:
Caroline Tanner, MD, movement disorder neurologist, UCSF
Mark Sedrak, MD, functional neurosurgeon, Kaiser Redwood City

Hosts: 
Parkinson’s Association of Northern California (PANC), Sacramento, and Parkinson’s Foundation (PF)

Register with PF


Friday, November 13, 10:30am

Parkinson’s Disease and the Eye: How PD affects your vision

Description:
The speaker will review the many ways PD and its mimickers can adversely affect a patient’s vision. He will make practical suggestions on things that can be done to improve vision in PD patients and how to work with your eyecare provider to maximize your functional vision.  

Speaker: 
Steven Hamilton, MD, neuro-ophthalmologist, Swedish Neuroscience Institute, Seattle

Register with APDA Northwest

At some point, webinar recording to be posted to the APDA Northwest’s YouTube channel


Saturday, November 14, 7:30am-1pm

PD Caregiver Conference

Audience: 
Those caring for individuals with PD

Description:
Speakers will address specific symptoms that can make caring for an individual with Parkinson’s challenging, discuss positive and proactive caregiving strategies, celebrate the dedication with which caregivers face each day, and discuss the importance of self-care.  Specific topics include nutrition, hallucinations, REM sleep disorders, driving with PD, and navigating care transitions.  (Event recording is still being arranged.)

Speakers:
Kathleen Crist, LMSW
Sue Levin, PhD
Joohi Jimenez-Shahed, MD
Celeste Harris, LMSW
Christine Salinas, OTR
Maggie Abbott, DPT

Host: 
Houston Area Parkinson Society (HAPS)

Agenda

Register here by November 5th


Saturday, November 14, 2020, 10:30am-12:30pm

Surgical Options for PD: DBS and Beyond

Description:
The speaker will address various surgical alternatives for Parkinson’s Disease, including deep brain stimulation (DBS) surgery.  

Speaker:
Jaimie Henderson, MD, neurosurgeon, Stanford University

Host: 
PD Active

Suggested donation to the host (pdactive.org):  $10

Register with PD Active


Monday, November 16, 2020, noon

Dyskinesia in Parkinson’s

Description:
Wiggling, writhing, jerky or slow dance-like movements. These are commonly seen in Parkinson’s, but they are not a symptom of the disease. Dyskinesias are a side-effect of medication and while they do affect many people, there are a significant number of people despite prolonged use of medications, who never develop them.  We discuss the clinical features, pathogenesis and treatment options for levodopa-induced dyskinesia.  (Waiting Room opens 5 minutes before the start-time.)

Speaker:
Oscar Gershanik, MD

Host: 
PMD Alliance

Register with PMD Alliance

Within days, the recording will be posted to PMD Alliance’s YouTube channel


Tuesday, November 17, 2020, noon

Celebrating 20 Years of Scientific Progress Closer to Cures

Description: 
Learn about recent progress in the Parkinson’s therapeutic pipeline and what’s to come next.  

Host: 
Michael J. Fox Foundation (MJFF)

Register


Wednesday, November 18, 2020, 10 am

Care Partner Town Hall: Self-Care @ Home

Audience: 
Those providing care and support for a loved one living with Parkinson’s

Description: 
Self-care is an essential part of your caregiving tools. The speakers will discuss ways to help you stay well in this critical role by carving out time to focus on you. We will also explore caregiving resources and recognize National Family Caregiving Month, with a special shout-out to our Parkinson’s care partners.

Speakers:
Amanda Janicke, LCSW, Parkinson’s Foundation Helpline Information Specialist
Anna Hedges, MSW, Parkinson’s Foundation Helpline Information Specialist

Host: 
Parkinson’s Foundation (PF)

Register on the PF website

Within a few days, webinar recording will be posted to the PF website


Thursday, November 19, 7:30-11:30am and Friday, November 20, 7:30-11:30am

Virtual Parkinson’s Symposium (two-day event)

Description:
This two-day virtual symposium features speakers from the upper midwest.  On Thursday, speakers address what’s new in PD treatment; challenging non-motor symptoms; and hallucinations and delusions.  On Friday, speakers address thriving with purpose in this uncertain world; exercise research; and the what/why of PD medications.  (Note: agenda will appear online soon.)

Speakers:
Kristine Domingo, MD, DO, movement disorders specialist, University of Minnesota
Susan Vold, RN, PD specialty nurse, M Physicians, Minneapolis
Mary Helen Conroy, life reinvention coach
Kristen Pickett, PhD, assistant professor of kinesiology and occupational therapy, University of Wisconsin, Madison
Lynn Struck, MD, movement disorders specialist, UnityPoint, Des Moines, IA

Hosts:
Three American Parkinson Disease Association (APDA) chapters including APDA Iowa, APDA Minnesota, APDA Wisconsin

Register on the APDA website


Thursday, November 19, 2020, 9am

What’s Next for Parkinson’s: Big Trials, New Treatments and Steps toward Prevention

Description: 
Hear the latest news in Parkinson’s research.  Our panelists will look ahead to treatments up for approval soon, new trials starting early next year and a major expansion of our landmark PPMI study to enable preventive therapies.  We’ll also discuss initiatives to better understand Parkinson’s genetics across populations.  Presenters include researchers and MJFF staff.

Host: 
Michael J. Fox Foundation (MJFF)

Register on the MJFF website

At some point, the webinar recording will be posted to the MJFF website


Thursday, November 19, 10am

Fall Prevention and Living Safely at Home with Parkinson’s

Description:
One-third of people over 65 have a fall each year and the risk of falling increases as people age. People with PD experience an additional set of unique challenges particularly as Parkinson’s symptoms change over time and can increase your risk of falling.  Learn the best ways to manage and prevent falls in your home especially if you are experiencing postural instability, backwards balance loss and freezing.  Understand how to get up safely if you do fall, key ‘tips and tricks’ and when to consider a “home safety evaluation”.   Learn about the AARP’s HomeFit Guide.

Speakers:
Rose Wichmann, PT, director of Parkinson’s programs, Struthers Parkinson’s Center
Danielle Arigoni, director of livable communities, AARP

Hosts: 
Parkinson’s Foundation (PF) and AARP

Register on the PF website


Thursday, November 19, 2020, noon

Introducing the PD Care Website Tool

Description:
How do you communicate all your symptoms and changes when you visit the doctor or communicate your medication schedule, symptoms, and other needs when you go to the hospital? The speaker introduces the PD Care website and tool that goes beyond existing hospital kits, helping to prepare for appointments, communicate information to providers and assist individuals when they arrive at a hospital on an emergency basis.  (Waiting Room opens 5 minutes before the start-time.)

Speaker:
Yasar Torres-Yaghi, MD

Host: 
PMD Alliance

Register with PMD Alliance

Within days, the recording will be posted to PMD Alliance’s YouTube channel


Friday, November 20, 2020, 10am

Behavior & PD And What the Family Should Know

Description:
Mood, behavioral, and psychological changes in Parkinson’s are common but not always fully understood by family members. Understanding what is caused by changes in the brain or a reaction to the disease can be helpful in responding to loved ones.  (Waiting Room opens 5 minutes before the start-time.)

Host: 
PMD Alliance

Register with PMD Alliance

Within days, the recording will be posted to PMD Alliance’s YouTube channel


Saturday, November 21, 2020, 9-11am 

Care Partner Summit

Audience: 
Care partners of people with Parkinson’s

Description: 
This summit aims to give care partners a better understanding of PD and strategies on maintaining a healthy mindset and positive outlook.  A speaker will address being a care partner during the holidays and another will address the importance of self-compassion.  Participants will be able to choose from breakout rooms with assigned topics to share their experiences and ideas openly with other care partners.  (Event is open one hour before and one hour after to visit sponsors.)

Speakers:
Cari Friedman, LCSW, social worker, Parkinson Association of the Rockies
Evan Plys, PhD, clinical psychologist, University of Colorado

Host: 
Parkinson Association of the Rockies (PAR), Denver

Register on the PAR website

At some point, the recordings of the presentations (minus the Q&A) will be posted to the PAR YouTube channel


Monday, November 23, 2020, noon

Overcome PD Barriers & Stay Active: Strategies from a Physical Therapist

Description:
Exercise in Parkinson’s can be challenging when you are faced with barriers such as fatigue, apathy, pain, and stiffness.  The battle between inactivity and fighting to stay independent is real.  The speaker will address ways to overcome these barriers in order to stay active and strategies for consistency in self-management.  (Waiting Room opens 5 minutes before the start-time.)

Speaker:
Alison Kraus, PT, DPT, NCS

Host: 
PMD Alliance

Register with PMD Alliance

Within days, the recording will be posted to PMD Alliance’s YouTube channel


Monday, November 30, 2020, noon

Keeping Active and Motivated in Winter

Description:
As the winter season sets in, you might be finding yourself indoors more often and being less active.  The speaker shares ideas on how you can keep active and motivated. She will offer practical tips, new exercises, and recommendations on frequency and intensity of exercise.

Speaker:
Shelly Yu, physiotherapist, PSBC

Host: 
Parkinson Society British Columbia (PSBC)

Register with PSBC by November 25th!

The recording will be posted to PSBC’s website