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“Neurogenic Orthostatic Hypotension: Diagnosis, Management, and Research” – Lecture Notes

November 16, 2020 By Parkinson's Community Help

The Multiple System Atrophy Coalition hosted a two-day conference in late October on various aspects of multiple system atrophy (MSA), which is a disorder similar to Parkinson’s disease (PD). (MSA is called an atypical parkinsonism disorder.) One of the talks, presented by Katie Kompoliti, MD, a movement disorder specialist at Rush University, focused on neurogenic orthostatic hypotension (nOH), which can occur in PD as well. Neurogenic orthostatic hypotension refers to a neurological disorder causing a large decrease in blood pressure when a person stands after sitting or lying down. 

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Filed Under: Webinars - Announcements & Notes

“Blood Pressure Issues” – Lecture Notes

November 16, 2020 By Parkinson's Community Help

The Multiple System Atrophy Coalition offered a two-day conference in late-October on various aspects of multiple system atrophy (MSA), which is a disorder similar to Parkinson’s disease (PD) (MSA is called an atypical parkinsonism disorder). One of the talks, presented by Tom Chelimsky, MD, a neurologist at Wisconsin Medical College, focused on blood pressure issues in multiple system atrophy patients, but his advice applies to Parkinson’s patients. 

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Filed Under: Webinars - Announcements & Notes

Nature: Synergy of pandemics-social isolation is associated with worsened Parkinson severity and quality of life

November 13, 2020 By Parkinson's Community Help

This recently published research article in the journal Nature demonstrates the importance of “belonging” to a social network, such as a support group, if you have Parkinson’s Disease (PD).  This is especially true during the pandemic of isolation within the larger pandemic of COVID-19.  The data suggest that people who have regular opportunities for socialization do better with PD, and that it is “neuroprotective,” just like exercise.  No doubt this applies to us all — whether we have PD or not! 

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Filed Under: News

NYT: When It Comes to Living With Uncertainty, Michael J. Fox Is a Pro

November 13, 2020 By Parkinson's Community Help

In his fourth memoir, “No Time Like the Future,” the actor and activist opens up about his newfound, uniquely upbeat brand of pessimism.

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Filed Under: News

“Fireside Chat with Soania Mathur, MD” – Discussion Notes

November 13, 2020 By Parkinson's Community Help

The Parkinson Association of Northern California (PANC) hosted a day-long conference on Parkinson’s disease (PD). One of the talks was a fireside chat on living with Parkinson’s. The moderator was Suketu Khandhar, MD, movement disorder specialist at Kaiser Permanente. The keynote speaker was Soania Mathur, MD, who was diagnosed with Parkinson’s at 28 years old and has been living with Parkinson’s for 21 years. 

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Filed Under: Webinars - Announcements & Notes

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Stanford Parkinson’s Community Outreach provides vital resources and support to individuals living with Parkinson’s disease (PD), caregivers, family members, and friends. We curate a comprehensive list of PD-related webinars and virtual meetings, sharing insightful summaries through our blog and dedicated email lists.

Whether you seek online support groups, educational webinars, or access to helpful blogs and podcasts, we are here to empower you with the knowledge and connection you need on your Parkinson’s journey.

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