“Beyond the tremor: A look at the non-motor symptoms of Parkinson’s disease” (APDA)

“Beyond the tremor: A look at the non-motor symptoms of Parkinson’s disease” (APDA)

Since Parkinson's disease (PD) is known as a movement disorder, the non-motor symptoms can often be overlooked.  Common non-motor symptoms can include depression and anxiety, sleep issues, fatigue, gastrointestinal problems, sexual issues, and more.  The American Parkinson Disease Association (APDA) recently published a list of resources on these non-motor symptoms in PD. 

New York Times: Social Isolation May Increase Your Risk of Falls

New York Times: Social Isolation May Increase Your Risk of Falls

People who lived alone or who had few social contacts were up to 24 percent more likely to have falls than their socially connected peers.

Happy Holidays!

Happy Holidays!

Stanford Parkinson's Community Outreach office is closed from December 14, re-opening on January 4, 2021.

Northwest Parkinson’s Foundation – Blogger writes about things he did right and wrong, 19 years into PD

Northwest Parkinson’s Foundation – Blogger writes about things he did right and wrong, 19 years into PD

Peter Dunlap-Shohl, a blogger for the Northwest Parkinson's Foundation, posted an interesting exploration of the things he did right and got wrong over the last 19 years coping with Parkinson's disease (PD).  He makes six points, including:  "Don’t let Parkinson’s tell you what you may or may not do."  He uses the term FUBAR, which means ruined. 

Nature: Synergy of pandemics-social isolation is associated with worsened Parkinson severity and quality of life

Nature: Synergy of pandemics-social isolation is associated with worsened Parkinson severity and quality of life

This recently published research article in the journal Nature demonstrates the importance of "belonging" to a social network, such as a support group, if you have Parkinson's Disease (PD).  This is especially true during the pandemic of isolation within the larger pandemic of COVID-19.  The data suggest that people who have regular opportunities for socialization do better with PD, and that it is "neuroprotective," just like exercise.  No doubt this applies to us all -- whether we have PD or not! 

NYT: When It Comes to Living With Uncertainty, Michael J. Fox Is a Pro

NYT: When It Comes to Living With Uncertainty, Michael J. Fox Is a Pro

In his fourth memoir, “No Time Like the Future,” the actor and activist opens up about his newfound, uniquely upbeat brand of pessimism.

New York Times: Dizziness Upon Standing Can Lead to Falls and Fractures

New York Times: Dizziness Upon Standing Can Lead to Falls and Fractures

The problem, a brief but precipitous drop in blood pressure that causes lightheadedness or dizziness when standing up, is called orthostatic hypotension. New York Times: Dizziness Upon Standing Can Lead to Falls and Fractures

Those with Parkinson’s Disease Suffer from Pandemic’s Disruptions, According to Study

Those with Parkinson’s Disease Suffer from Pandemic’s Disruptions, According to Study

This spring, over 5400 Parkinson's patients, including 51 who had COVID-19, took an online Fox Insight survey, organized by the Michael J. Fox Foundation for Parkinson's Research.  According to Caroline Tanner, MD, PhD, of the University of California San Francisco, "What was really remarkable was the number of people who didn't have COVID, but who did suffer from the experience of the pandemic."  MedPageToday noted that "Medical care (64%), exercise (21%), and social activities (57%) were disrupted for these patients, and many reported worse Parkinson's motor (43%) and non-motor (52%) symptoms."  While the survey showed the resilience of the Parkinson's community, it also highlighted disparities, Tanner pointed out. "People with lower incomes or people who are nonwhite have less

CalHOPE offers a mental health call-line for Californians struggling with COVID-19

CalHOPE offers a mental health call-line for Californians struggling with COVID-19

California HOPE (CalHOPE), a program run by the California Department of Health Care Services, delivers crisis support for communities impacted by a national disaster, such as the COVID-19 pandemic.  CalHOPE builds community resiliency and helps people recover from disasters through free outreach, crisis counseling, and support services.  For California residents, CalHOPE offers a call-line — (833) 317-HOPE (4673) -— to talk about your struggles and get emotional support from someone who has persevered through tough situations.

New York Times: Oleh Hornykiewicz, Who Discovered Parkinson’s Treatment, Dies at 93

New York Times: Oleh Hornykiewicz, Who Discovered Parkinson’s Treatment, Dies at 93

His research into dopamine led to the mainstay treatment still used today to treat millions of people with Parkinson’s.