Stanford PD Community Blog

In November, the American Parkinson Disease Association’s (APDA’s) Minnesota chapter hosted a session on adaptive technologies, with occupational therapist Matthew White.  Mr. White discussed different device’s, such as electronics (computer, mouse, stylus, TV access, home environment control, phone access, cell phone access), daily activity helpers (cognitive aids, item tracker, medication reminders, daily living tasks, inclusive products (made with accessibility in mind)), digital assistants, academic and vocational skills, and fall detection.  Mr. White also recommended some do-it-yourself options.

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In July, PMD Alliance held a webinar during which the speaker, social worker Erin Cecchi, focused on how important it is for care partners to ask for help.  The speaker addressed barriers to asking help, the strain of care on care partners, the risk of care partners’ own declining health, how to build a support network, and whom to ask before you “hit the wall.”  Erin said that there is a wealth of information available by speaking to other caregivers who can provide many ideas on caring for your loved one with Parkinson’s disease (PD) as well as enjoying your own life.  As care partners can experience high levels of physical and mental stress, Erin noted that caregivers taking care of their own mental health needs is just as important as taking care of their physical health. 

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Last week, the American Parkinson Disease Association’s Connecticut chapter (APDA CT) hosted a webinar on psychosocial strategies for the holidays with social worker Jennifer Lambert.  Parkinson’s disease (PD) can present new and different challenges during the holidays as there is a change in people and activities as compared to the daily routine.  The speaker provided some strategies for coping during the holiday season as a person with PD or a caregiver. 

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