“Alan Alda’s decision to disclose his PD diagnosis likely reverberated with many of our APDA community who are also in the midst of deciding what to do about their own disclosure. Should I tell my immediate family? My extended family? My friends? My employer?”
Archives for 2018
Registration Now Open – MSA Conference – Sept. 28 and Sept. 29, Burlingame, CA
Registration is now open for the Multiple System Atrophy Conference on Friday, September 28 and Saturday, September 29 in Burlingame. Stanford is co-organizing this conference with the MSA Coalition. Saturday’s talks will feature Stanford’s Mitchell Miglis, MD, autonomic disorders specialist, and Kathleen Poston, MD, movement disorder specialist.
When:
Friday, September 28, 2018, 10am-9pm
Saturday, September 29, 2018, 8am-5pm
Where:
Hyatt San Francisco Airport, 133 Bayshore Highway, Burlingame
Cost:
Free
Register Here:
The tentative conference schedule is provided below.
Friday’s talks will focus on practical information for living with MSA, support services, and therapies.
Saturday’s talks will feature Stanford’s Kathleen Poston, MD, movement disorders specialist, and Mitchell Migliss, MD, autonomic disorders specialist. Other physicians from Stanford and various Bay Area clinics will address topics of sleep, urology, bowel dysfunction, etc. Researchers from around the US will give updates on the latest MSA research.
Volunteers are needed to help with registration on both days. Please contact the Northern California MSA support group, Brain Support Network, if you can help.
To make a hotel reservation, call Hyatt Reservations, 800-233-1234. Ask for the MSA Coalition rate ($216/night). If you require handicap accessible features in your room, call the hotel directly (Hyatt SFO, 650-696-3032). Note that only a limited number of ADA rooms are available. Walk-in showers are available in standard king-size rooms. If this will meet your needs, please book accordingly and leave ADA rooms for those with greater mobility needs.
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Friday, September 28, 2018
[We are assuming registration begins around 9 a.m.]
10 a.m. – 10:15 a.m. Welcome –
- Stanford University Hosts – Dr. Kathleen Poston & Dr. Mitchell Miglis
- MSA Coalition Board Chair – Cynthia Roemer
10:15 a.m. -11:00 a.m. Overview – MSA & Research 101 – Dr. Kathleen Poston
11:00 a.m. – 12:00 p.m. Participant Mixer & Support Group Meetings
12:00 p.m. – 1:00 p.m. Lunch
1:00 p.m. – 4:00 p.m. Afternoon Workshop Sessions
There will be multiple time slots with two or three sessions per time slot and selected sessions will be repeated. Topics will ranch from practical information for living with MSA, support services, therapeutic approaches to address symptoms, and research information and participation opportunities.
5:15 p.m. – 6:00 p.m. Reception
6:00 – 9:00 p.m. Dinner Program
Saturday, September 29, 2018
8:00 a.m. – 8:30 a.m. Registration & Breakfast
8:30 a.m. – 8:45 a.m. Welcome
- Stanford Hosts – Dr. Kathleen Poston & Dr. Mitchell Miglis
- MSA Coalition Board Chair – Cynthia Roemer
8:45 a.m. – 9:45 a.m. Symptoms & Treatment Management
- Movement Disorder Issues – Dr. Kathleen Poston
- Autonomic Issues – Dr. Safwan Jaradeh and Dr. Mitchell Miglis
- Sleep Issues- Dr. Mitchell Miglis and Dr. Michelle Cao
9:45 a.m. – 10:30 a.m. Medical Q & A
10:30 a.m. – 10:45 a.m. Break/Activity
10:45 a.m. – 11:45 a.m. Interdisciplinary Panel – Dr. Kathleen Poston will facilitate a panel discussion among medical specialists in areas such as urology, gastroenterology, and cardiology with specific respect to MSA.
11:45 a.m. – 12:15 p.m. Panel Q & A
12:15 p.m. – 1:30 p.m. Lunch & Exhibits
1:30 p.m. – 3:00 p.m. MSA Research
- Natural History Study & Update from 6th International MSA Congress -Dr. Mitchell Miglis & Dr. Lucy Norcliffe-Kaufmann
- Clinical Trials & Relevant Studies– Dr. Daniel Claassen
- Research Highlights & Future Directions – Dr. Vik Khurana
3:00 p.m. – 3:15 p.m. Break/Activity
3:15 p.m. – 3:45 p.m. Research Q & A
3:45 p.m. – 4:00 p.m. Closing Remarks
4:00 p.m. – 5:00 p.m. Support Group Meetings
August 2018 – Parkinson’s Support Group Mtgs – Guest Speakers/Programs – Northern and Central California
Some Northern and Central California Parkinson’s Disease (PD) support groups are not meeting in August (summer vacation or social events). For those that are meeting, here’s information about guest speakers or discussion programs at a support group near you in August…
Stanford specialist to discuss Fall Prevention in Parkinson’s in Menlo Park, August 8
Ellen Corman, manager of Stanford Health Care’s Farewell to Falls program, will be talking about “Fall Prevention in Parkinson’s” at the Menlo Park Parkinson’s Support Group meeting on Wednesday, August 8th, 2-3:30pm at Little House, 800 Middle Ave., Menlo Park. This event is free and open to the public. No need to RSVP.
NYT: Alan Alda Reveals He Has Parkinson’s Disease
“I thought it’s probably only a matter of time before somebody does a story about this from a sad point of view; but that’s not where I am,” the M*A*S*H actor said.
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