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Archives for November 2021

Stanford’s ADAPT-PD clinical trial seeking participants with PD who already have a Medtronic DBS system

November 30, 2021 By Parkinson's Community Help

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Stanford’s Human Motor Control and Neuromodulation Lab is seeking those with Parkinson’s disease (PD) who already have the Medtronic Percept PC deep brain stimulation (DBS) system to participate in the ADAPT-PD clinical trial.  ADAPT-PD stands for Adaptive DBS Algorithm for Personalized Therapy in Parkinson’s Disease.   The trial is testing the use of adaptive DBS — a mode that adjusts or adapts DBS therapy automatically based on certain brain signals. 

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Filed Under: Webinars - Announcements & Notes

“Conscious Self-care” [for the caregiver] – Session Notes

November 29, 2021 By Parkinson's Community Help

Game pieces spelling out self care

In October, Duke Health hosted a virtual session for caregivers on conscious self-care. The session featured geriatric social worker Bryan Godfrey, who reviewed how stressors a caregiver might face, and how self-care can prevent burnout.  Burnout is feeling like you no longer find pleasure in things you once found enjoyable, difficulty concentrating, difficulty sleeping, or weight changes.  According to the speaker, a high-stress environment combined with unrealistic expectations will lead to burn out.  In comparison, a change to a lower stressful environment combined with saying “no,” having realistic expectations, and practicing proactive self-care can lead to growth.  (There was nothing Parkinson’s-specific about this session.)

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Filed Under: Webinars - Announcements & Notes

“How to Outsmart Parkinson’s Disease: Tips & Tricks from an Occupational Therapist” – Webinar Notes

November 22, 2021 By Parkinson's Community Help

Ocean waves

In mid-October, the American Parkinson Disease Association (APDA) hosted a webinar with advice from an occupational therapist on how those with Parkinson’s disease (PD) can organize surroundings and improve daily routines.  Occupational therapist Dr. Erin Foster described new approaches to using the computer, using a cell phone, writing, preparing meals, organizing a home, and more tips that can make life easier with PD.  This webinar is part of the APDA’s “Dr. Gilbert Hosts” series.  We at Stanford Parkinson’s Community Outreach attended this interesting webinar and are sharing our notes.

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Filed Under: Webinars - Announcements & Notes

“The Role of Research in Parkinson’s Disease”- APDA Webinar Notes

November 22, 2021 By Parkinson's Community Help

In early November, the American Parkinson Disease Association (APDA) hosted a webinar on research in Parkinson’s disease (PD). The webinar featured expert physical therapist for PD Dr. Terry Ellis and movement disorder specialist Dr. Marie Saint-Hilaire. Dr. Saint-Hilaire discussed the role of clinical trials in PD, how to find ongoing trials, and the benefits of participating in a trial.  Dr. Ellis reviewed two current exercise trials.

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Filed Under: Webinars - Announcements & Notes

Register Now for “Coping with Caregiving” Workshops for Caregivers to Those with Memory Issues, November 2021 to March 2022

November 16, 2021 By Parkinson's Community Help

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Stanford’s Neuroscience Supportive Care Program is offering nine virtual workshops for caregivers to those dealing with memory issues, regardless of the diagnosis (whether it be Alzheimer’s Disease, Parkinson’s Disease Dementia, mild cognitive impairment, vascular dementia, stroke, etc.).  The workshops are every first and third Wednesday, 10-11:30am PT.  The series began November 3, 2021 and will run through March 2, 2022.  Sign up for one or all.

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Filed Under: Events

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