In early December 2023, Stanford Parkinson’s Community Outreach (med.stanford.edu/parkinsons) and Brain Support Network (brainsupportnetwork.org) co-hosted a discussion for caregivers to share the top three things they have learned about caregiving. Caregivers offered advice to each other, including advice caregivers wished they could tell their younger selves.
Participants in this discussion were members of local San Francisco Bay Area caregiver support groups run by Stanford and Brain Support Network. Participants have experience caring for those with Parkinson’s disease, Lewy body dementia, progressive supranuclear palsy, multiple system atrophy, and corticobasal degeneration. Very little of the advice was disease-specific.
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