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Parkinson’s Disease Compared to Atypical Parkinsonism Disorders – Webinar Notes

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In late July, PMD Alliance (pmdalliance.org) hosted a one-hour webinar with Irene Litvan, MD, movement disorder specialist at UCSD.  The title of the webinar was “Doc, why don’t I have PD?”  Dr. Litvan says that some of her patients ask her this, pointing out that they have slowness, stiffness, and tremor.  Her presentation focused on atypical parkinsonism disorders as a whole and the differences between Parkinson’s Disease (PD) and these atypicals.  Of all the atypical parkinsonism disorders, she spent the most time on progressive supranuclear palsy and multiple system atrophy, just a bit of time on Lewy body dementia, and almost no time on corticobasal degeneration.  The question-and-answer session included a lot of comments on PD.  We at Stanford Parkinson’s Community Outreach listened to the webinar and are sharing our notes. 

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Those with Parkinson’s Disease Suffer from Pandemic’s Disruptions, According to Study

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This spring, over 5400 Parkinson’s patients, including 51 who had COVID-19, took an online Fox Insight survey, organized by the Michael J. Fox Foundation for Parkinson’s Research.  According to Caroline Tanner, MD, PhD, of the University of California San Francisco, “What was really remarkable was the number of people who didn’t have COVID, but who did suffer from the experience of the pandemic.”  MedPageToday noted that “Medical care (64%), exercise (21%), and social activities (57%) were disrupted for these patients, and many reported worse Parkinson’s motor (43%) and non-motor (52%) symptoms.”  While the survey showed the resilience of the Parkinson’s community, it also highlighted disparities, Tanner pointed out. “People with lower incomes or people who are nonwhite have less opportunity to use alternative means of health care and connection,” she said. “That’s something we continue to need to work on.” 

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CalHOPE offers a mental health call-line for Californians struggling with COVID-19

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California HOPE (CalHOPE), a program run by the California Department of Health Care Services, delivers crisis support for communities impacted by a national disaster, such as the COVID-19 pandemic.  CalHOPE builds community resiliency and helps people recover from disasters through free outreach, crisis counseling, and support services.  For California residents, CalHOPE offers a call-line — (833) 317-HOPE (4673) -— to talk about your struggles and get emotional support from someone who has persevered through tough situations.

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Neuropalliative and Supportive Care – Webinar Notes

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On June 8th, PMD Alliance presented a webinar called “Neuropalliative and Supportive Care.”

Palliative care is often associated with hospice care and terminal illnesses such as cancer. There is a growing expansion of the palliative care model into neurological diseases to support a range of health-related quality of life concerns. This includes the management of medical, psychiatric, psychosocial and spiritual well-being. 

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July 2020 Webinars about Caregiving

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Many caregivers cannot leave home due to caregiving responsibilities. You can participate in a web-based seminar — or webinar — from the privacy of your home. Join either live or view the archived version within a few day of the live webinar (in most cases). All webinars listed are free. All times shown are Pacific Time. Here are webinars that may be of interest to caregivers in July 2020…

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