On Saturday, June 14, 2025, 10am to 3pm PT, Stanford’s Movement Disorders Center and Brain Support Network are co-hosting a PSP-MSA-CBD caregiving symposium. This upcoming event is for caregivers, partners, and family members who care for those with progressive supranuclear palsy (PSP), multiple system atrophy (MSA), or corticobasal degeneration (CBD). Plan to join us either virtually or in-person at Stanford. Registration will open by May 1.
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On Friday, March 21, 2025, the California Attorney General issued an urgent customer alert to those who have a 23andMe account. In its alert, the AG’s office provides instructions for how to delete your genetic data; request 23andMe destroy your test sample; and revoke permission for your genetic data to be used for research. There are still concerns about what data will be retained by 23andMe.
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Many people associate palliative care with exclusively end-of-life care, but that’s a misconception. In November 2024, the Palo Alto PD Support Group hosted a talk with Stanford’s Dr. Jocelyn Jiao who shed light on the true nature of palliative care and its profound impact on individuals living with Parkinson’s disease. Dr. Jiao is a movement disorder and palliative care specialist. Read our notes from her talk.
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Stanford’s Movement Disorders Center and Brain Support Network are pleased to present Carla Abdelnour, MD, speaking on Lewy Body Dementia: Future Directions, on Thursday, April 17, 1pm PT. Dr. Abdelnour’s talk will focus on recent research findings and future research that may affect treatment of those with LBD. She will provide a short overview of Lewy body dementia (LBD), which is an umbrella term that includes Parkinson’s Disease Dementia and Dementia with Lewy Bodies.
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It affects your mood, your sleep, even your motivation to exercise. There’s convincing evidence that it’s the starting point for Parkinson’s disease and could be responsible for long COVID’s cognitive effects. And it sits about 2 feet below your brain.
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