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Robin Riddle to address “If it’s not Parkinson’s Disease, what is it?” at the Santa Cruz area PD support group meeting, October 3rd

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Robin Riddle, coordinator of Stanford’s APDA Parkinson’s Information & Referral Center and CEO of Brain Support Network, will be speaking at the Wednesday, October 3rd Parkinson’s support group meeting in Soquel at 2pm.  Her talk is titled “If it’s not Parkinson’s Disease, what is it?”  She will be providing an overview of the four atypical parkinsonism disorders.  The event is free and open to the public. … Full Story>

Stanford Movement Disorder Specialist to Discuss Non-Motor Symptoms of PD at San Jose Support Group, September 7, 10:00am-12:00pm

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Kathleen Poston, MD, MS, movement disorder specialist, Stanford, will discuss non-motor symptoms of Parkinson’s (focusing specifically on fatigue, drowsiness, and depression) at the Willow Glen Parkinson’s Support Group meeting on September 7th at 10:00am. The program is free and open to anyone interested in learning more about these non-motor symptoms. An RSVP is not required for this meeting…. Full Story>

Registration Now Open – MSA Conference – Sept. 28 and Sept. 29, Burlingame, CA

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Registration is now open for the Multiple System Atrophy Conference on Friday, September 28 and Saturday, September 29 in Burlingame.  Stanford is co-organizing this conference with the MSA Coalition.  Saturday’s talks will feature Stanford’s Mitchell Miglis, MD, autonomic disorders specialist, and Kathleen Poston, MD, movement disorder specialist. 

When:
Friday, September 28, 2018, 10am-9pm
Saturday, September 29, 2018, 8am-5pm

Where:
Hyatt San Francisco Airport, 133 Bayshore Highway, Burlingame

Cost:
Free

Register Here:  

https://www.eventbrite.com/e/2018-msa-coalition-patient-and-family-conference-registration-38482349744

The tentative conference schedule is provided below.

Friday’s talks will focus on practical information for living with MSA, support services, and therapies.

Saturday’s talks will feature Stanford’s Kathleen Poston, MD, movement disorders specialist, and Mitchell Migliss, MD, autonomic disorders specialist.  Other physicians from Stanford and various Bay Area clinics will address topics of sleep, urology, bowel dysfunction, etc.  Researchers from around the US will give updates on the latest MSA research.

Volunteers are needed to help with registration on both days.  Please contact the Northern California MSA support group, Brain Support Network, if you can help.

To make a hotel reservation, call Hyatt Reservations, 800-233-1234.  Ask for the MSA Coalition rate ($216/night).  If you require handicap accessible features in your room, call the hotel directly (Hyatt SFO, 650-696-3032).  Note that only a limited number of ADA rooms are available.  Walk-in showers are available in standard king-size rooms.  If this will meet your needs, please book accordingly and leave ADA rooms for those with greater mobility needs.

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Tentative Conference Schedule  

Friday, September 28, 2018

[We are assuming registration begins around 9 a.m.]

10 a.m. – 10:15 a.m. Welcome – 

  • Stanford University Hosts – Dr. Kathleen Poston & Dr. Mitchell Miglis 
  • MSA Coalition Board Chair – Cynthia Roemer 

10:15 a.m. -11:00 a.m. Overview – MSA & Research 101 – Dr. Kathleen Poston

11:00 a.m. – 12:00 p.m. Participant Mixer & Support Group Meetings

12:00 p.m. – 1:00 p.m. Lunch

1:00 p.m. – 4:00 p.m. Afternoon Workshop Sessions

There will be multiple time slots with two or three sessions per time slot and selected sessions will be repeated. Topics will ranch from practical information for living with MSA, support services, therapeutic approaches to address symptoms, and research information and participation opportunities. 

5:15 p.m. – 6:00 p.m. Reception
6:00 – 9:00 p.m. Dinner Program

 

Saturday, September 29, 2018

8:00 a.m. – 8:30 a.m. Registration & Breakfast

8:30 a.m. – 8:45 a.m. Welcome

  • Stanford Hosts – Dr. Kathleen Poston & Dr. Mitchell Miglis
  • MSA Coalition Board Chair – Cynthia Roemer 

8:45 a.m. – 9:45 a.m. Symptoms & Treatment Management

  • Movement Disorder Issues – Dr. Kathleen Poston 
  • Autonomic Issues – Dr. Safwan Jaradeh and Dr. Mitchell Miglis 
  • Sleep Issues- Dr. Mitchell Miglis and Dr. Michelle Cao 

 9:45 a.m. – 10:30 a.m. Medical Q & A

10:30 a.m. – 10:45 a.m. Break/Activity

10:45 a.m. – 11:45 a.m. Interdisciplinary Panel – Dr. Kathleen Poston will facilitate a panel discussion among medical specialists in areas such as urology, gastroenterology, and cardiology with specific respect to MSA. 

11:45 a.m. – 12:15 p.m. Panel Q & A 

12:15 p.m. – 1:30 p.m. Lunch & Exhibits

1:30 p.m. – 3:00 p.m. MSA Research

  • Natural History Study & Update from 6th International MSA Congress -Dr. Mitchell Miglis & Dr. Lucy Norcliffe-Kaufmann
  • Clinical Trials & Relevant Studies– Dr. Daniel Claassen
  • Research Highlights & Future Directions – Dr. Vik Khurana

3:00 p.m. – 3:15 p.m. Break/Activity

3:15 p.m. – 3:45 p.m. Research Q & A

3:45 p.m. – 4:00 p.m. Closing Remarks

4:00 p.m. – 5:00 p.m. Support Group Meetings

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