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California Attorney General Urges Customers to Delete 23andMe Genetic Data

March 24, 2025 By Parkinson's Community Help

23andMe logo

On Friday, March 21, 2025, the California Attorney General issued an urgent customer alert to those who have a 23andMe account.  In its alert, the AG’s office provides instructions for how to delete your genetic data; request 23andMe destroy your test sample; and revoke permission for your genetic data to be used for research.  There are still concerns about what data will be retained by 23andMe. 

… Full Story>

Filed Under: News, Research

What’s the deal with the gut-brain connection?

March 10, 2025 By Parkinson's Community Help

Illustration of nutrients on a pathway to the brain
credit: Emily Moskal for Stanford Medicine

It affects your mood, your sleep, even your motivation to exercise. There’s convincing evidence that it’s the starting point for Parkinson’s disease and could be responsible for long COVID’s cognitive effects. And it sits about 2 feet below your brain.

… Full Story>

Filed Under: News

Women and Parkinson’s Disease (APDA Blog Post)

March 4, 2025 By Parkinson's Community Help

Three women
credit: Andrea Vumbaca via APDA

Did you know that March is Women’s History Month?  Check out this American Parkinson Disease Association (APDA) blog post from 2024 about the differences of PD in women.

… Full Story>

Filed Under: News

NextAvenue: Dance for PD Helps People with Parkinson’s Disease Move With Grace and Joy

February 17, 2025 By Parkinson's Community Help

in-person classes in 28 countries across the globe
Credit: Dance for PD via Facebook

For more than two decades, innovative program has focused on ‘what people with Parkinson’s can do, not what they can’t do.’

… Full Story>

Filed Under: News

WaPo: She was diagnosed with Parkinson’s at 27. These were her warning signs.

February 6, 2025 By Parkinson's Community Help

Hand with glitching effect
Source: The Washington Post

Soania Mathur was diagnosed with Parkinson’s disease at the age of 27.  Excerpts from this Washington Post article about her and young-onset Parkinson’s:  “Mathur and health-care experts said that more awareness of early-onset Parkinson’s is needed, since some studies suggest that its incidence is increasing, going against the common belief that the rise in Parkinson’s cases is due to an aging population. … One study found that patients under 45 had a much longer latency from disease onset to diagnosis — over two years compared with nine months for late-onset patients. … Dystonia, a movement disorder characterized by sustained or intermittent muscle contractions, is more often seen in early-onset Parkinson’s disease, particularly after exercise. However, dementia, gait disturbances, gastrointestinal issues and loss of sense of smell are less frequent, less severe or delayed in younger individuals. Perhaps most intriguing is that the progression of the disease is much slower in early-onset patients.” 

… Full Story>

Filed Under: News

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Stanford Parkinson’s Community Outreach provides vital resources and support to individuals living with Parkinson’s disease (PD), caregivers, family members, and friends. We curate a comprehensive list of PD-related webinars and virtual meetings, sharing insightful summaries through our blog and dedicated email lists. Whether you seek online support groups, educational webinars, or access to helpful blogs and podcasts, we are here to empower you with the knowledge and connection you need on your Parkinson’s journey.

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Featured Posts

“A New Path to Parkinson’s Prevention and Treatment” – Speaker Notes

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“Gut-Brain & Parkinson’s Disease” – Notes from Stanford Seminar, January 10, 2026

On January 10, 2026, Stanford Medicine hosted a seminar on “Gut-Brain & Parkinson’s Disease”, … [Read More...]

Life Hacks from People Living with Parkinson’s

In October 2025, the Brian Grant Foundation (BGF) hosted a webcast featuring three Parkinson's … [Read More...]

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