On June 17, 2018, Kanwarjit Bhutani stepped out of an elevator with his wife, unaware his life was about to change. A woman followed the couple from the elevator to the door of their condominium in New York City. Out of the blue, she recommended that Bhutani see Stanford Medicine researcher Peter Tass, MD, PhD, about his promising treatment for Parkinson’s — a vibrating glove.
… Full Story>“Creating a Self-Care Practice with a Toolbox, Flexibility, and Self-Love” (by a PD caregiver)
Angela Robb is a 25-year wife and care partner for her husband Karl, diagnosed with Young Onset Parkinson’s Disease (YOPD) for over 30 years. Here’s a short article Angela wrote on self-care for PD caregivers, recently published on the World Parkinson Congress blog.
… Full Story>Onset of Skin, Gut, and Genitourinary Prodromal Parkinson’s Disease: A Study of 1.5 Million Veterans
This interesting new research of 300,000 people with PD and 1.2 million matched controls explored prodromal Parkinson’s disease by studying the skin, genitourinary, and gastrointestinal issues reported. The researchers say that studying these systems “offers a unique window for understanding early disease pathogenesis and developing disease modifying treatments.”
APDA Blog Post: Why exercise is critical for people with Parkinson’s disease
Dr. Rebecca Gilbert with the American Parkinson Disease Association (APDA) shares the four major reasons why it is critical to exercise with Parkinson’s Disease (PD). One reason is that longevity in PD is associated with increased physical activity.
… Full Story>What It Feels Like to Live With Parkinson’s
By Steven Heller and Véronique Vienne. June 23, 2021 (paywall)
Steven Heller, 70, has lived with Parkinson’s for more than 10 years. Véronique Vienne, 79, only recently learned that she had the disease. Both have had long careers as art directors, and the two have been friends for more than three decades. Back in March, the pair exchanged a flurry of emails over a 10-day period, where they explored the “before” and “after” of a Parkinson’s diagnosis. Here is an edited version of their conversation.
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