In October, Duke Health hosted a virtual session for caregivers on conscious self-care. The session featured geriatric social worker Bryan Godfrey, who reviewed how stressors a caregiver might face, and how self-care can prevent burnout. Burnout is feeling like you no longer find pleasure in things you once found enjoyable, difficulty concentrating, difficulty sleeping, or weight changes. According to the speaker, a high-stress environment combined with unrealistic expectations will lead to burn out. In comparison, a change to a lower stressful environment combined with saying “no,” having realistic expectations, and practicing proactive self-care can lead to growth. (There was nothing Parkinson’s-specific about this session.)
… Full Story>“How to Outsmart Parkinson’s Disease: Tips & Tricks from an Occupational Therapist” – Webinar Notes
In mid-October, the American Parkinson Disease Association (APDA) hosted a webinar with advice from an occupational therapist on how those with Parkinson’s disease (PD) can organize surroundings and improve daily routines. Occupational therapist Dr. Erin Foster described new approaches to using the computer, using a cell phone, writing, preparing meals, organizing a home, and more tips that can make life easier with PD. This webinar is part of the APDA’s “Dr. Gilbert Hosts” series. We at Stanford Parkinson’s Community Outreach attended this interesting webinar and are sharing our notes.
… Full Story>“The Role of Research in Parkinson’s Disease”- APDA Webinar Notes
In early November, the American Parkinson Disease Association (APDA) hosted a webinar on research in Parkinson’s disease (PD). The webinar featured expert physical therapist for PD Dr. Terry Ellis and movement disorder specialist Dr. Marie Saint-Hilaire. Dr. Saint-Hilaire discussed the role of clinical trials in PD, how to find ongoing trials, and the benefits of participating in a trial. Dr. Ellis reviewed two current exercise trials.
… Full Story>“Prehabilitating Parkinson’s Disease” – Webinar Notes
This fall PMD Alliance hosted a mini webinar series on Pre-habilitating Parkinson’s Disease. Pre-habilitating means proactively addressing potential issues rather than reacting after they happen. This miniseries seeks to provide you with the tools to give you more control and a greater sense of peace when it comes to imagining the future – and it is a good one!
… Full Story>“Intentional Optimism” – APDA Webinar Notes
This summer, the American Parkinson Disease Association (APDA) hosted a webinar on how to be optimistic with Parkinson’s disease (PD), featuring Bill Rasmussen. In the webinar, Bill, diagnosed with PD in 2014, explained how he manages his life with optimism and described how optimism can be contagious with your family members. He shared examples of various exercises and activities that he performs to not let PD get in the way of his life. We at Stanford Parkinson’s Community Outreach are sharing our notes for this webinar.
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