Stanford PD Community Blog

CurePSP hosted a day-long conference for patients, families, and caregivers living with neurodegenerative diseases, including Progressive Supranuclear Palsy (PSP), an atypical parkinsonism disorder. The speaker was Jessica Shurer, LCSW at UNC Movement Disorders Center. She talked about informing family and friends of a diagnosis in order to gather support, and how family dynamics can change after a diagnosis. (We are sharing these notes with those in the Parkinson’s community since there was nothing PSP-specific about the talk.  The “diagnosis” could be any condition.)

On November 18th, the Parkinson’s Foundation held a Care Partner Town Hall on the topic of Self-Care @ Home.  Two social workers from the Parkinson’s Foundation took turns sharing information about self-care challenges caregivers face, tips for celebrating the holidays safely during the covid pandemic, self-care tips for a less stressful holiday, and their favorite web pages with self-care resources, including a caregiver assessment tool. 

This webinar/teleconference is part of the American Parkinson Disease Association (APDA) “Spotlight on Parkinson’s Disease” series. On December 10, two speakers — a movement disorder specialist and a physical therapist — will review how to keep the mind and body healthy with PD. Register now.

“Dr. Gilbert Hosts” is a webinar series sponsored by the American Parkinson Disease Association (APDA), featuring Dr. Rebecca Gilbert, a movement disorder specialist.  On December 9, Dr. Gilbert will host a question-and-answer session about Parkinson’s disease (PD) and the African American community. The speaker is neurologist Chantale Branson, MD.  

On November 13th, the American Parkinson Disease Association (APDA) hosted a webinar on the effects Parkinson’s has on vision- fun fact: did you know that dopamine plays a role in your retinas as well as your brain? The webinar was hosted by Jennifer Gillick, the program director of the Northwest chapter of the APDA, and the special guest was Dr. Steven Hamilton. After Dr. Hamilton presented an informative overview of PD’s effects on vision, Jennifer relayed to him questions from the audience.