Archives for 2019

Difficulty Swallowing (Dysphagia) – Webinar notes

Difficulty Swallowing (Dysphagia) – Webinar notes

The Parkinson and Movement Disorder (PMD) Alliance hosted a webinar on swallowing disorders by speaker Courtney Brimm, MS, CCC-SLP, a licensed speech-language pathologist at the Yavapai Regional Medical Center in Prescott Valley, AZ. She described how normal swallowing works, potential causes of swallowing problems (dysphagia), possible impacts of dysphagia on quality of life, and recommendations for next steps and ways to manage this condition.  We at Stanford Parkinson's Community Outreach listened to the webinar and are sharing our notes.   If you are looking for further information about dysphagia, check out our list of resources. The webinar will be uploaded to PMD Alliance’s YouTube channel If you wish to contact the speaker or have any questions about

APDA’s Free Online PD Training for Fitness Professionals Can Help Families Too

APDA’s Free Online PD Training for Fitness Professionals Can Help Families Too

We at the Stanford APDA (American Parkinson Disease Association) Information & Referral Center recently explored a free online training available from the APDA for fitness professionals to learn more about working with patients who have Parkinson’s disease (PD). Exercise is essential for those living with PD, but not everyone has access to a personal trainer or wellness coach who is already experienced with the disease. This one- to two-hour training can help fitness professionals become familiar with the basic symptoms of PD; understand the benefits clients can receive from exercise; put together useful, appropriate exercise programs at different stages of the disease; and ensure client safety during exercise.  Information in the training can also be helpful for those working out

Stanford Movement Disorder Specialist to discuss the latest Parkinson’s Research, Palo Alto, January 8

Stanford Movement Disorder Specialist to discuss the latest Parkinson’s Research, Palo Alto, January 8

Brent Bluett, DO, Stanford Movement Disorder Specialist, will discuss "The Latest Parkinson's Research: Is There Hope?" at the Palo Alto Support group on Wednesday, January 8, from 2:30-4:00pm, at Channing House in Palo  Alto. No RSVP is required to attend.

Happy Holidays from The Stanford Parkinson’s Community Outreach team

Happy Holidays from The Stanford Parkinson’s Community Outreach team

The Stanford Parkinson’s Community Outreach team would like to wish you and your family warm and happy holidays!  The office is closed until Monday, January 6th.

“Naturopathic Approach to Parkinson’s Disease” –  Webinar Notes

“Naturopathic Approach to Parkinson’s Disease” – Webinar Notes

The Parkinson and Movement Disorder (PMD) Alliance hosted a webinar on the "Naturopathic Approach to PD" by speaker Dr. Laurie Mischley, a naturopathic doctor who has done extensive research into nutrient deficiencies found in Parkinson’s disease (PD). She spoke about naturopathic medicine, essential nutrients in PD, and other types of deficiencies that patients should also try to address, such as sleep and social interaction. We at Stanford Parkinson's Community Outreach listened to the webinar and are sharing our notes. 

Research Summary: Basket Trials and Neurodegenerative Disease

Research Summary: Basket Trials and Neurodegenerative Disease

A recent drug trial by the UCSF Memory and Aging Center is the first of its kind for neurodegenerative disorders and represents an exciting new method for evaluating the effectiveness of a single drug on participants with the same underlying biology, but different diagnoses. First used in cancer research, basket trials lump together patients by disease pathology, not by diagnosis or symptoms. The UCSF trial evaluated the effectiveness of a drug, TPI-287, in treating toxic buildup of tau protein in the brains of patients with Alzheimer’s disease (AZ), corticobasal syndrome (CBS), and progressive supranuclear palsy (PSP). While the drug ultimately did not show promise, scientists still drew useful takeaways from the study, and future studies of neurodegenerative disease may benefit

NYT: Swimmers Beware of Deep Brain Stimulation

NYT: Swimmers Beware of Deep Brain Stimulation

Excerpt:  "Now, Dr. [Christian R.] Baumann warns all patients with stimulators never to go into deep water alone.  ... How the devices could interfere with swimming is not known. Dr. Baumann and his colleagues suggested that in some patients the signals may somehow affect a brain region that is crucial for coordinating limb movement. He said other complicated, learned skills might also be affected: Some patients said they could no longer ski after receiving stimulators, and one said he could not play golf anymore." 

December 2019 Webinars about Caregiving

December 2019 Webinars about Caregiving

Many caregivers cannot leave home due to caregiving responsibilities. You can participate in a web-based seminar — or webinar — from the privacy of your home. Join either live or view the archived version within a few day of the live webinar (in most cases). All webinars listed are free. All times shown are Pacific Time. Here are webinars that may be of interest to caregivers in December 2019…

December 2019 Webinars about Parkinson’s

December 2019 Webinars about Parkinson’s

You can participate in a web-based seminar — or webinar — from the privacy of your home.  Join either live or view the archived version within a few days of the live webinar (in most cases).  All webinars listed are free. All times listed are Pacific Time. Here are webinars that may be of interest to those living with Parkinson’s in December 2019…

Dec 2019 – Parkinson’s Support Group Mtgs – Guest Speakers/Programs – Northern and Central California

Dec 2019 – Parkinson’s Support Group Mtgs – Guest Speakers/Programs – Northern and Central California

While most Northern and Central California Parkinson's Disease (PD) support groups have holiday parties or are not meeting in December, a few groups do have meetings with speakers or programs.  See the list below of what is happening near you...