Stanford PD Community Blog

Stanford Parkinson's Community

“Primeros pasos en el cuidado del Parkinson” – Webinar Notes

By

Un zapato de caminar dando un primer paso sobre un camino sinuoso que lleva hacia montañas tormentosas, con flores silvestres a los lados y luz dorada sobre el sendero.
El camino es largo y el tiempo es incierto. Pero el primer paso es tuyo.

En febrero de 2026, la Parkinson Foundation (parkinson.org/recursos) presentó un webinar para personas recién diagnosticadas con la enfermedad de Parkinson y sus cuidadores. El Dr. Carlos Ceballos, especialista en trastornos del movimiento en Ochsner Medical Center en Nueva Orleans, explicó cómo se produce y diagnostica la enfermedad y qué pasos concretos pueden marcar la diferencia en la calidad de vida. Carla Velastegui, hija cuidadora de su madre Gina, quien lleva 16 años viviendo con Parkinson de inicio temprano, compartió estrategias para que esos 20 minutos con el neurólogo, dos veces al año, sean realmente productivos. Lo que une a los dos presentadores es una idea central: el paciente y su cuidador no son espectadores del proceso médico. Tienen información que el médico necesita, preguntas que merecen respuesta y un papel activo en las decisiones que dan forma a los meses que vienen.

… Full Story>

“Disclosure of Diagnosis” (of Parkinson’s Disease) – Webinar Notes

By

Middle-aged man sitting on a wooden chair, turned to look over his shoulder, with an empty chair beside him in a bare room.
It’s normal to be nervous about telling people you have Parkinson’s disease.

Telling people you have Parkinson’s disease is harder than it sounds. Even people who consider themselves open by nature can find themselves hesitating, calculating, and in some cases staying silent altogether, sometimes for years. A March 2026 webinar hosted by the Philadelphia & Richmond Veterans Administration addressed the emotional and practical dimensions of disclosure from diagnosis onward.  These webinar notes will be of most interest to those with young onset Parkinson’s who are still employed or those newly diagnosed, two groups most likely to delay disclosure and most likely to pay a price for delaying disclosure of the diagnosis.

… Full Story>

“The Brain’s Backup Plan: The Power of Neuroplasticity in Parkinson’s” – Webinar Notes

By

Older man with a cane standing on a hillside overlook, gazing down at a large brain-shaped maze glowing with golden light at its edges and dark at its center.

In a February 2026 NoSilverBullet4PD webinar, Rick Helmich, MD, with the Donders Institute for Brain, Cognition and Behaviour in The Netherlands, spoke on what he calls “the brain’s backup plan,” of the brain’s compensatory mechanism. This refers to the ability of cortical areas not directly damaged by Parkinson’s Disease (PD) to take over functions that dopamine-dependent circuits can no longer reliably perform. He also identified the two key brain regions involved in this compensation and what causes those regions to fail.

… Full Story>

Three Observational Studies at Stanford for GI-PD Research

By

In February 2026, Bianca Palushaj, MD, movement disorder neurologist at Stanford, spoke to Palo Alto Parkinson’s support group on the topic of “Rethinking the Gut in PD.” As part of that talk, she briefly described three observational gut-brain studies at Stanford that are recruiting participants. The studies welcome those with PD and healthy controls. View her talk and see relevant links.

… Full Story>

About

© 2025 Stanford PD Community Blog

 

Archive