Crucial Parkinson’s Patient and Family Survey Closes November 7

Crucial Parkinson’s Patient and Family Survey Closes November 7

The Michael J. Fox Foundation for Parkinson’s Research, in collaboration with the American Parkinson’s Disease Association (APDA), and other national organizations and industry groups, is conducting a study that seeks to capture the financial costs associated with Parkinson’s disease in the United States. An important component of this study is a survey to patients and families to learn more about the economic impact of the disease. Your feedback (de-identified and anonymized) is crucial. The survey closes November 7.  Follow the survey link and complete (one survey per family) by Wednesday, November 7.

This new survey, supported in part by the American Parkinson’s Disease Association, will help researchers learn more about the costs families incur as a result of a Parkinson’s diagnosis. Some costs are tangible, but others are more difficult to quantify, such as taking time off work to care for someone with PD. This survey, which will take about 40 minutes to complete, is a vital component to this overall study involving patients, families, national organizations, governmental organizations and industry groups.

Your input is very important and will make a difference in determining future governmental support for families living with PD as well as helping national Parkinson’s organizations advocate for increased federal funding or research and other policy changes that support access to affordable care. Remember that the information submitted will be de-identified and anonymized so there will be no link back to you or your family.

Please complete the survey (one survey per family)  no later than Wednesday, November 7

Go to the survey link