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Archives for August 2018

September 2018 Webinars About Parkinson’s

August 31, 2018 By Parkinson's Community Help

You can participate in a web-based seminar — or webinar — from the privacy of your home.  Join either live or view the archived version within a few days of the live webinar (in most cases).  All webinars listed are free. All times listed are Pacific Time. Here are webinars that may be of interest to those living with Parkinson’s in September 2018…
… Full Story>

Filed Under: Monthly List - PD Webinars, Webinars - Announcements & Notes

September 2018 Webinars about Caregiving

August 31, 2018 By Parkinson's Community Help

Many caregivers cannot leave home due to caregiving responsibilities. You can participate in a web-based seminar — or webinar — from the privacy of your home. Join either live or view the archived version within a few day of the live webinar (in most cases). All webinars listed are free.  Here is a webinar that be of interest to caregivers in September 2018…

… Full Story>

Filed Under: Monthly List - Caregiving Webinars, Webinars - Announcements & Notes

NYT: Heart Risks Tied to Parkinson’s Disease

August 27, 2018 By Parkinson's Community Help

“Symptoms of poor cardiovascular health may be linked to an increased risk for Parkinson’s disease, a new study has found.”

… Full Story>

Filed Under: News

APDA: To disclose or not to disclose: that is the question

August 22, 2018 By Parkinson's Community Help

“Alan Alda’s decision to disclose his PD diagnosis likely reverberated with many of our APDA community who are also in the midst of deciding what to do about their own disclosure. Should I tell my immediate family? My extended family? My friends? My employer?”

… Full Story>

Filed Under: News

Registration Now Open – MSA Conference – Sept. 28 and Sept. 29, Burlingame, CA

August 7, 2018 By Parkinson's Community Help

Registration is now open for the Multiple System Atrophy Conference on Friday, September 28 and Saturday, September 29 in Burlingame.  Stanford is co-organizing this conference with the MSA Coalition.  Saturday’s talks will feature Stanford’s Mitchell Miglis, MD, autonomic disorders specialist, and Kathleen Poston, MD, movement disorder specialist. 

When:
Friday, September 28, 2018, 10am-9pm
Saturday, September 29, 2018, 8am-5pm

Where:
Hyatt San Francisco Airport, 133 Bayshore Highway, Burlingame

Cost:
Free

Register Here:  

https://www.eventbrite.com/e/2018-msa-coalition-patient-and-family-conference-registration-38482349744

The tentative conference schedule is provided below.

Friday’s talks will focus on practical information for living with MSA, support services, and therapies.

Saturday’s talks will feature Stanford’s Kathleen Poston, MD, movement disorders specialist, and Mitchell Migliss, MD, autonomic disorders specialist.  Other physicians from Stanford and various Bay Area clinics will address topics of sleep, urology, bowel dysfunction, etc.  Researchers from around the US will give updates on the latest MSA research.

Volunteers are needed to help with registration on both days.  Please contact the Northern California MSA support group, Brain Support Network, if you can help.

To make a hotel reservation, call Hyatt Reservations, 800-233-1234.  Ask for the MSA Coalition rate ($216/night).  If you require handicap accessible features in your room, call the hotel directly (Hyatt SFO, 650-696-3032).  Note that only a limited number of ADA rooms are available.  Walk-in showers are available in standard king-size rooms.  If this will meet your needs, please book accordingly and leave ADA rooms for those with greater mobility needs.

—————–

Tentative Conference Schedule  


Friday, September 28, 2018

[We are assuming registration begins around 9 a.m.]

10 a.m. – 10:15 a.m. Welcome – 

  • Stanford University Hosts – Dr. Kathleen Poston & Dr. Mitchell Miglis 
  • MSA Coalition Board Chair – Cynthia Roemer 

10:15 a.m. -11:00 a.m. Overview – MSA & Research 101 – Dr. Kathleen Poston

11:00 a.m. – 12:00 p.m. Participant Mixer & Support Group Meetings

12:00 p.m. – 1:00 p.m. Lunch

1:00 p.m. – 4:00 p.m. Afternoon Workshop Sessions

There will be multiple time slots with two or three sessions per time slot and selected sessions will be repeated. Topics will ranch from practical information for living with MSA, support services, therapeutic approaches to address symptoms, and research information and participation opportunities. 

5:15 p.m. – 6:00 p.m. Reception
6:00 – 9:00 p.m. Dinner Program

 


Saturday, September 29, 2018

8:00 a.m. – 8:30 a.m. Registration & Breakfast

8:30 a.m. – 8:45 a.m. Welcome

  • Stanford Hosts – Dr. Kathleen Poston & Dr. Mitchell Miglis
  • MSA Coalition Board Chair – Cynthia Roemer 

8:45 a.m. – 9:45 a.m. Symptoms & Treatment Management

  • Movement Disorder Issues – Dr. Kathleen Poston 
  • Autonomic Issues – Dr. Safwan Jaradeh and Dr. Mitchell Miglis 
  • Sleep Issues- Dr. Mitchell Miglis and Dr. Michelle Cao 

 9:45 a.m. – 10:30 a.m. Medical Q & A

10:30 a.m. – 10:45 a.m. Break/Activity

10:45 a.m. – 11:45 a.m. Interdisciplinary Panel – Dr. Kathleen Poston will facilitate a panel discussion among medical specialists in areas such as urology, gastroenterology, and cardiology with specific respect to MSA. 

11:45 a.m. – 12:15 p.m. Panel Q & A 

12:15 p.m. – 1:30 p.m. Lunch & Exhibits

1:30 p.m. – 3:00 p.m. MSA Research

  • Natural History Study & Update from 6th International MSA Congress -Dr. Mitchell Miglis & Dr. Lucy Norcliffe-Kaufmann
  • Clinical Trials & Relevant Studies– Dr. Daniel Claassen
  • Research Highlights & Future Directions – Dr. Vik Khurana

3:00 p.m. – 3:15 p.m. Break/Activity

3:15 p.m. – 3:45 p.m. Research Q & A

3:45 p.m. – 4:00 p.m. Closing Remarks

4:00 p.m. – 5:00 p.m. Support Group Meetings

Filed Under: Events

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