Archives for July 2020

“The Neuroplastic Effects of Exercise” – Webinar Notes

“The Neuroplastic Effects of Exercise” – Webinar Notes

In July, PMD Alliance presented a talk by Dr. Giselle Petzinger, titled “The Neuroplastic Effects of Exercise.” Dr. Petzinger focuses on the role exercise plays in promoting neuroplasticity, the brain’s ability to form new connections and pathways, and how this strengthens cognitive and automatic components of motor control. We at Stanford Parkinson’s Community Outreach listened to the webinar and are sharing our notes. 

Current List of Parkinson’s and Atypical Parkinsonism Virtual Caregiver-Only Support Group Meetings, San Francisco Bay Area, Northern California, and Central California (as of July 2020)

Current List of Parkinson’s and Atypical Parkinsonism Virtual Caregiver-Only Support Group Meetings, San Francisco Bay Area, Northern California, and Central California (as of July 2020)

Caregivers need to have their own support group meetings or gatherings because they need to vent, share, learn tips and resources, and receive support from others walking the same path. Ideally, a caregiver to someone with Parkinson's Disease can attend a PD-specific caregiver support group. Or someone dealing with Lewy Body Dementia can attend an LBD-specific caregiver support group. And so on. With the pandemic, many support groups have moved to meet virtually while others have gone on hiatus until in-person meetings can occur once again.  Here's our list of the status of PD and atypical parkinsonism caregiver-only support group meetings in the SF Bay Area, other parts of Northern California, and Central California. 

New Frontiers in Neuroprotection – Webinar Notes

New Frontiers in Neuroprotection – Webinar Notes

In early July, PMD Alliance presented a talk by Dr. Anthony Lang titled “New Frontiers in Neuroprotection.” His analysis explores the many ways researchers are attempting to slow or modify the progression of Parkinson’s and, more importantly, how promising each one seems to him.  We at Stanford Parkinson's Community Outreach listened to the webinar and are sharing our notes. 

Social Connection and Parkinson’s – Webinar Notes

Social Connection and Parkinson’s – Webinar Notes

On April 15th, Davis Phinney Foundation for Parkinson’s presented a webinar entitled, “Social Connection and Parkinson’s.”  We are currently living in a time of enforced social isolation because of COVID-19. For a variety of reasons, many people living with Parkinson’s may have chosen to isolate themselves before this time. This webinar explores the difference between social isolation and loneliness, the biology of loneliness, and the value and health benefits relationships bring.

Parkinson’s Disease Compared to Atypical Parkinsonism Disorders – Webinar Notes

Parkinson’s Disease Compared to Atypical Parkinsonism Disorders – Webinar Notes

In late July, PMD Alliance (pmdalliance.org) hosted a one-hour webinar with Irene Litvan, MD, movement disorder specialist at UCSD.  The title of the webinar was "Doc, why don't I have PD?"  Dr. Litvan says that some of her patients ask her this, pointing out that they have slowness, stiffness, and tremor.  Her presentation focused on atypical parkinsonism disorders as a whole and the differences between Parkinson's Disease (PD) and these atypicals.  Of all the atypical parkinsonism disorders, she spent the most time on progressive supranuclear palsy and multiple system atrophy, just a bit of time on Lewy body dementia, and almost no time on corticobasal degeneration.  The question-and-answer session included a lot of comments on PD.  We at Stanford

Those with Parkinson’s Disease Suffer from Pandemic’s Disruptions, According to Study

Those with Parkinson’s Disease Suffer from Pandemic’s Disruptions, According to Study

This spring, over 5400 Parkinson's patients, including 51 who had COVID-19, took an online Fox Insight survey, organized by the Michael J. Fox Foundation for Parkinson's Research.  According to Caroline Tanner, MD, PhD, of the University of California San Francisco, "What was really remarkable was the number of people who didn't have COVID, but who did suffer from the experience of the pandemic."  MedPageToday noted that "Medical care (64%), exercise (21%), and social activities (57%) were disrupted for these patients, and many reported worse Parkinson's motor (43%) and non-motor (52%) symptoms."  While the survey showed the resilience of the Parkinson's community, it also highlighted disparities, Tanner pointed out. "People with lower incomes or people who are nonwhite have less

A Stanford neurosurgeon answered questions about Deep Brain Stimulation

A Stanford neurosurgeon answered questions about Deep Brain Stimulation

Stanford’s Parkinson’s Community Outreach Program hosts a quarterly deep brain stimulation (DBS) support group meeting for those wanting to learn more about this surgical treatment for Parkinson’s disease (PD). The June 2020 meeting featured Dr. Daniel Kramer, a neurosurgeon and clinical instructor at Stanford, who answered audience questions pertaining to DBS. We at Stanford Parkinson's Community Outreach viewed the discussion and are sharing our notes.

Wellness and remote care in PD during Covid-19 – Webinar notes

Wellness and remote care in PD during Covid-19 – Webinar notes

In early June, the Parkinson’s Foundation hosted a webinar on wellness and remote care for people with Parkinson’s disease (PD) during the coronavirus pandemic, featuring a panel of movement disorders specialists. They discussed how to maintain wellness in the face of the challenges presented by Covid-19, and how to access care going forward. We at Stanford Parkinson's Community Outreach viewed the webinar and are sharing our notes.  

CalHOPE offers a mental health call-line for Californians struggling with COVID-19

CalHOPE offers a mental health call-line for Californians struggling with COVID-19

California HOPE (CalHOPE), a program run by the California Department of Health Care Services, delivers crisis support for communities impacted by a national disaster, such as the COVID-19 pandemic.  CalHOPE builds community resiliency and helps people recover from disasters through free outreach, crisis counseling, and support services.  For California residents, CalHOPE offers a call-line — (833) 317-HOPE (4673) -— to talk about your struggles and get emotional support from someone who has persevered through tough situations.

Managing blood pressure – Webinar notes

Managing blood pressure – Webinar notes

In early June, the Parkinson’s Foundation offered a webinar on managing blood pressure in Parkinson’s disease (PD), featuring neurologist Albert Hung. He discussed how PD impacts blood pressure (BP) regulation, how to diagnose BP issues, and approaches to treating BP in those with PD. There was a short question and answer session as well. We at Stanford Parkinson's Community Outreach viewed the webinar and are sharing our notes.