Archives for December 2020

Parkinson’s and Speech – Lecture Notes

Parkinson’s and Speech – Lecture Notes

On December 11th PMD Alliance hosted a webinar on Parkinson's and Speech as part of the wHolistic series.  In this very informative hour CCC-SLP, Nicole Herndon, spoke about why speech changes occur with PD as well as treatment options and strategies for both the speaker and listener to improve communication.

NPR: Michael J. Fox Reflects On Life With Parkinson’s In ‘No Time Like The Future’

NPR: Michael J. Fox Reflects On Life With Parkinson’s In ‘No Time Like The Future’

The Family Ties star was diagnosed with early onset Parkinson's disease in 1991. He says that if he doesn't know if he can do something, he fakes it — a strategy that works 80 percent of the time.

Movement Disorders Society statement on COVID-19 Vaccines and Parkinson’s Disease (PD)

Movement Disorders Society statement on COVID-19 Vaccines and Parkinson’s Disease (PD)

"[Available] data indicate:  1. The approved mRNA-based vaccines and the vector vaccines under development induce immunization through mechanisms that do not interact with the neurodegenerative process in PD. ... 2. ...the types or incidence of side effects in patients with PD have not been different than in the general population. 3. ...COVID-19 vaccination does not interfere with the current therapies of PD.  4. ...more data will be available in the near future for further analysis of the impact of these vaccines on PD."

“Beyond the tremor: A look at the non-motor symptoms of Parkinson’s disease” (APDA)

“Beyond the tremor: A look at the non-motor symptoms of Parkinson’s disease” (APDA)

Since Parkinson's disease (PD) is known as a movement disorder, the non-motor symptoms can often be overlooked.  Common non-motor symptoms can include depression and anxiety, sleep issues, fatigue, gastrointestinal problems, sexual issues, and more.  The American Parkinson Disease Association (APDA) recently published a list of resources on these non-motor symptoms in PD. 

“Parkinson’s and Driving (From a Caregiver’s Perspective)” – Lecture Notes

“Parkinson’s and Driving (From a Caregiver’s Perspective)” – Lecture Notes

The Houston Area Parkinson’s Society (HAPS) hosted a day-long conference for caregivers in November. One of the lectures was presented by Christine Salinas, certified driver rehabilitation specialist in Houston. She discussed the biggest concerns around a person with Parkinson’s disease (PD) driving, as well as provided different techniques to evaluate if someone should continue driving or stop for their own safety. Although this conference was for caregivers, everyone in the PD community might be interested in these lecture notes. 

New York Times: Social Isolation May Increase Your Risk of Falls

New York Times: Social Isolation May Increase Your Risk of Falls

People who lived alone or who had few social contacts were up to 24 percent more likely to have falls than their socially connected peers.

Happy Holidays!

Happy Holidays!

Stanford Parkinson's Community Outreach office is closed from December 14, re-opening on January 4, 2021.

“Hallucinations and REM Sleep Disorders in Parkinson’s Disease” – Lecture Notes

“Hallucinations and REM Sleep Disorders in Parkinson’s Disease” – Lecture Notes

The Houston Area Parkinson’s Society (HAPS) hosted a day-long conference for caregivers. One of the lectures was presented by Joohi Jimenez-Shahed, MD, head of the movement disorders center at Icahn School of Medicine at Mount Sinai. She discussed REM sleep disorders, hallucinations, delusions, deliriums, etc. And she provided methods to improve healthy sleep for people with Parkinson’s disease (PD). (Though the talk was presented at a caregiver conference, there is nothing caregiver-specific about this talk).

How the Brain Progresses with PD – Webinar Notes

How the Brain Progresses with PD – Webinar Notes

On November 5th PMD Alliance hosted a webinar on How the Brain Progresses with PD.  Neurologist Yasar Torres-Yaghi shared how the pathology of Parkinson's disease begins in the gut, then progresses to the olfactory bulb before invading the entire brain.  Although Parkinson's is thought of as a movement disorder, as the pathology expands throughout the body it affects more than just movement.  Dr. Torres-Yaghi listed several non-motor symptoms of Parkinson's before focusing on common cognitive changes and the neurotransmitter deficits that contribute to them.

Mental Wellness for Parkinson’s Care Partners – Webinar Notes

Mental Wellness for Parkinson’s Care Partners – Webinar Notes

On November 12th the Davis Phinney Foundation hosted a webinar on Mental Wellness for Parkinson's Care Partners.  The speaker was social worker Elaine Book who touched briefly on several aspects of caregiver wellbeing with Davis Phinney Foundation moderator, Melanie Dizon.  Topics broached included ambiguous loss, stress reduction tips to prevent caregiver burnout, communicating about changes brought about by Parkinson's, self-care during COVID, and more.