Archives for April 2021

“Connecting the Science to Hope” virtual symposium on May 15

“Connecting the Science to Hope” virtual symposium on May 15

The Movement Disorders Foundation is hosting a free, virtual symposium on May 15! “Connecting the Science to Hope” will bring together leading experts to reveal the latest advancements in research and clinical trials across movement disorders, with a specific focus on Parkinson’s Disease, Huntington’s Disease, Essential Tremor, and Dystonia. They have announced some wonderful speakers who will speak to research and clinical updates.

“Speech [in Parkinson’s Disease] – Webinar Notes

“Speech [in Parkinson’s Disease] – Webinar Notes

In late March, the American Parkinson Disease Association (APDA) hosted a webinar on speech with speech-language pathologist Lisa Sommers. Lisa described the changes -- sometimes subtle --in breath support, voice production, speed and accuracy, inflection of voice, facial expressions and swallowing.  She noted that about 90% of people with Parkinson’s Disease (PD) will experience these kinds of changes in communication.

“Care Partners and Self-Care Throughout the Journey” [with Parkinson’s Disease] – Webinar Notes

“Care Partners and Self-Care Throughout the Journey” [with Parkinson’s Disease] – Webinar Notes

In early March, the World Parkinson Coalition (WPC) hosted “Care Partners and Self-Care Throughout the Journey.” Social worker Amanda Janicke, occupational therapist Julia Wood, and Parkinson’s disease (PD) caregivers Angela Robb and Alan Ater each spoke for about 10 minutes, offering tips to caregivers of those with PD. 

“Care Partners and Self-Care Throughout the Journey” – Webinar notes

“Care Partners and Self-Care Throughout the Journey” – Webinar notes

In early March, the World Parkinson Coalition (WPC) hosted “Care Partners and Self-Care Throughout the Journey.” Social worker Amanda Janicke, occupational therapist Julia Wood, and Parkinson’s disease (PD) caregivers Angela Robb and Alan Ater each spoke for about 10 minutes, offering tips to caregivers of those with PD. 

“Sleep and Fatigue in Parkinson Disease” – Webinar Notes

“Sleep and Fatigue in Parkinson Disease” – Webinar Notes

In mid-March, the Parkinson Association of the Rockies hosted a webinar on “Sleep and Fatigue in Parkinson Disease” with Dr. Alexander Baumgartner. He is a movement disorder fellow at the University of Colorado’s Movement Disorders Center.  Dr. Baumgartner indicated that as many as 90% of those with Parkinson’s Disease (PD) have a sleep disorder.  He contrasted sleepiness and fatigue.  Sleepiness is the tendency or ability to fall asleep. Fatigue is similar, and is associated with excessive tiredness and mental or physical exertion. 

“Mental Health and Parkinson’s” – Webinar Notes

“Mental Health and Parkinson’s” – Webinar Notes

In late March, the Parkinson Society British Columbia hosted clinical counselor Courtney Doherty to speak on “Mental Health and Parkinson’s.”  She described depression, anxiety, and apathy -- all common changes in mood in Parkinson’s disease (PD).  And she provided extensive information for how these changes can be treated, particularly in non-pharmacological ways. 

“Spring Into Exercise: Put Your Best Foot Forward” – Webinar Notes

“Spring Into Exercise: Put Your Best Foot Forward” – Webinar Notes

In mid-March, the American Parkinson Disease Association (APDA) hosted a webinar titled “Spring Into Exercise: Put Your Best Foot Forward.”The webinar featured three physical therapists from the APDA’s Center for Neurorehabilitation at Boston University addressing exercise for Parkinson’s disease (PD). 

“Palliative Care/Hospice Care Planning” (for those with Lewy body dementia) – Webinar Notes

“Palliative Care/Hospice Care Planning” (for those with Lewy body dementia) – Webinar Notes

In mid-March, Columbia University’s Taub Institute hosted the webinar “Palliative Care and Hospice Care Planning” with neurologist Dr. Reena Gottesman. Dr. Gottesman described when palliative care and hospice care are appropriate, and focused on palliative care and hospice care for those with dementia and advanced dementia.

“Why Exercise and Finding the Motivation” – Webinar Notes

“Why Exercise and Finding the Motivation” – Webinar Notes

In early March, the Parkinson & Movement Disorder (PMD) Alliance hosted movement disorder specialist Dr. James Morley on a webinar on self-care, exercise and motivation. Though the topic was described as “Motivation and Parkinson’s” the focus of Dr. Morley’s talk was about self-care and how to motivate yourself to exercise after receiving a diagnosis of Parkinson’s disease (PD).

“Holistic Health and Wellness” – Lecture Notes

“Holistic Health and Wellness” – Lecture Notes

“Holistic Health and Wellness” was a session presented by Stanford movement disorder specialist Dr. Maya Katz at the “Better Lives, Together Summit.”  The summit, held in late February, was organized by the Fresno Parkinson’s Support Group. In her session, Dr. Katz reviewed the concept of total health. She said that physical, psychological, social, and spiritual health all need to be addressed by your care team.