In late December 2019, the Alzheimer’s Foundation of America offered a webinar on frontotemporal degeneration (FTD), which includes two atypical parkinsonism disorders: corticobasal degeneration (CBD) and progressive supranuclear palsy (PSP). The speaker was Sharon Denny, Senior Director of Programs for the Association for Frontotemporal Degeneration (AFTD). She discussed the different FTD syndromes; the types of changes and complex care needs that can occur; and the impacts on the family and caregivers. We at Stanford Parkinson’s Community Outreach listened to the webinar and are sharing our notes. Our summary focuses on the two atypical parkinsonism disorders – CBD and PSP – which we felt would be of interest to some readers.… Full Story>
Archives for March 2020
In early March 2020, The Cure Parkinson’s Trust presented a webinar about the role of inflammation in Parkinson’s disease (PD), featuring a panel of speakers including neurologists, a clinical researcher, and a dietitian who has PD. Their discussion included an overview of neuro-inflammation, or inflammation in the central nervous system; other inflammatory diseases such as arthritis and inflammatory bowel disease (IBD); and current theories and research on the connections between immune function, inflammation, and PD. We at Stanford Parkinson’s Community Outreach listened to the webinar and are sharing our notes.… Full Story>
Yesterday, the Michael J. Fox Foundation (MJFF) offered a webinar on the novel coronavirus, COVID-19, for the Parkinson’s disease (PD) community, featuring a panel of speakers including neurologists, an infectious disease expert, and MJFF executives. They discussed what we currently know about COVID-19 and PD, how social distancing may help prevent spread, and how to manage challenges and isolation, touching briefly on the potential impacts of the situation on PD research. The webinar ended with a Q&A session. We at Stanford Parkinson’s Community Outreach listened to the webinar and are sharing our notes.… Full Story>
The Stanford Parkinson’s Community Outreach team — Robin, Steven, Denise, Adrian, and Lauren — would like to wish you a happy first day of spring. Though we are working from home (as the San Francisco Bay Area is all sheltering in place), we are all available online. Try to get outside to get some spring sunshine and fresh air.
The Palo Alto Parkinson’s Disease Support Group’s February 2020 meeting featured Dr. Emmanuel During, who specializes in neurology, psychiatry, and sleep medicine at Stanford. He discussed the various types of sleep disturbances that can occur in Parkinson’s disease (PD), such as insomnia, restless legs syndrome, sleep apnea, and REM sleep behavior disorder, along with available treatments for managing these issues. There was also a question and answer session. We at Stanford Parkinson’s Community Outreach attended the meeting and are sharing our notes.… Full Story>