Archives for March 2020

Frontotemporal Degeneration: A complex disease – Webinar notes

Frontotemporal Degeneration: A complex disease – Webinar notes

In late December 2019, the Alzheimer’s Foundation of America offered a webinar on frontotemporal degeneration (FTD), which includes two atypical parkinsonism disorders: corticobasal degeneration (CBD) and progressive supranuclear palsy (PSP). The speaker was Sharon Denny, Senior Director of Programs for the Association for Frontotemporal Degeneration (AFTD). She discussed the different FTD syndromes; the types of changes and complex care needs that can occur; and the impacts on the family and caregivers. We at Stanford Parkinson’s Community Outreach listened to the webinar and are sharing our notes. Our summary focuses on the two atypical parkinsonism disorders – CBD and PSP – which we felt would be of interest to some readers.

Inflammation and PD – Webinar notes

Inflammation and PD – Webinar notes

In early March 2020, The Cure Parkinson’s Trust presented a webinar about the role of inflammation in Parkinson’s disease (PD), featuring a panel of speakers including neurologists, a clinical researcher, and a dietitian who has PD.  Their discussion included an overview of neuro-inflammation, or inflammation in the central nervous system; other inflammatory diseases such as arthritis and inflammatory bowel disease (IBD); and current theories and research on the connections between immune function, inflammation, and PD. We at Stanford Parkinson's Community Outreach listened to the webinar and are sharing our notes.  

Information on coronavirus for the PD community – Webinar notes

Information on coronavirus for the PD community – Webinar notes

Yesterday, the Michael J. Fox Foundation (MJFF) offered a webinar on the novel coronavirus, COVID-19, for the Parkinson’s disease (PD) community, featuring a panel of speakers including neurologists, an infectious disease expert, and MJFF executives. They discussed what we currently know about COVID-19 and PD, how social distancing may help prevent spread, and how to manage challenges and isolation, touching briefly on the potential impacts of the situation on PD research. The webinar ended with a Q&A session. We at Stanford Parkinson's Community Outreach listened to the webinar and are sharing our notes.  

Happy spring!

Happy spring!

The Stanford Parkinson's Community Outreach team -- Robin, Steven, Denise, Adrian, and Lauren -- would like to wish you a happy first day of spring.  Though we are working from home (as the San Francisco Bay Area is all sheltering in place), we are all available online.  Try to get outside to get some spring sunshine and fresh air.

Sleep and Parkinson’s Disease – Meeting notes

Sleep and Parkinson’s Disease – Meeting notes

The Palo Alto Parkinson’s Disease Support Group’s February 2020 meeting featured Dr. Emmanuel During, who specializes in neurology, psychiatry, and sleep medicine at Stanford.  He discussed the various types of sleep disturbances that can occur in Parkinson’s disease (PD), such as insomnia, restless legs syndrome, sleep apnea, and REM sleep behavior disorder, along with available treatments for managing these issues. There was also a question and answer session. We at Stanford Parkinson's Community Outreach attended the meeting and are sharing our notes. 

Coping with novel coronavirus while caregiving – Teleconference notes

Coping with novel coronavirus while caregiving – Teleconference notes

Today, the WellMed Charitable Foundation organized a conference call on how to cope with the novel coronavirus while caregiving, featuring speakers Dr. Elliot Montgomery Sklar and social worker Lucy Barylak. Though the conference call was for caregivers (and not necessarily Parkinson’s caregivers), we listened in as we thought there would be useful suggestions shared for us all on the emotional and psychological aspects of coping.  Indeed, the two speakers discussed how the current pandemic has been impacting caregivers and offered suggestions for regaining some sense of control amid this chaotic situation.  We at Stanford Parkinson's Community Outreach are sharing our notes from this conference call.  

What’s New in Brain Health, Wednesday, April 29th, 2020 from 10:00am-11:00am (PDT)

What’s New in Brain Health, Wednesday, April 29th, 2020 from 10:00am-11:00am (PDT)

Join a free national webinar, hosted by the American Parkinson Disease Association (APDA), on Wednesday, April 29th, 2020 from 10:00am-11:00am (PDT) to help you better understand what’s new in brain health for Parkinson’s disease (PD).  This program is designed to help people with PD, family members and care partners. 

Non-motor symptoms of Parkinson’s disease & how they impact relationships – Webinar notes

Non-motor symptoms of Parkinson’s disease & how they impact relationships – Webinar notes

In early March 2020, Parkinson Canada offered a webinar on mood and cognition in Parkinson’s disease (PD), featuring speaker Dr. Adriana Shnall. She provided an overview of mood and cognition symptoms, including depression, anxiety, cognitive impairment, and psychosis; then she discussed strategies for improving communication and working around these issues. We at Stanford Parkinson's Community Outreach listened to the webinar and are sharing our notes.  

Drug Therapy for Parkinson’s Disease – Webinar notes

Drug Therapy for Parkinson’s Disease – Webinar notes

In late February 2020, Parkinson Canada offered a webinar on drug therapy in Parkinson’s disease (PD), featuring speaker Greta Mah, a clinical pharmacist in Canada. She provided a general overview of medications used in PD within the US as well as in Canada, describing the main categories of drug therapy often used in PD, which may be a helpful refresher for some readers. We at Stanford Parkinson's Community Outreach listened to the webinar and are sharing our notes.  

Sex, Love, and PD – Webinar notes

Sex, Love, and PD – Webinar notes

In late February 2020, the Michael J. Fox Foundation (MJFF) offered a webinar on sex, love, and Parkinson’s disease (PD).  The panel of speakers included a person with PD, a professor of geriatrics, and a certified sex therapist. They discussed how PD can impact sexual function; the different sexual changes that men and women experience; how medications can impact sex; and strategies and treatments for sexual disfunction in PD. This was followed by an extensive Q&A session. We at Stanford Parkinson's Community Outreach listened to the webinar and are sharing our notes.