You can participate in a web-based seminar — or webinar — from the privacy of your home. Join either live or view the archived version within a few days of the live webinar (in most cases). All webinars listed are free. All times listed are Pacific Time. Here are webinars that may be of interest to those living with Parkinson’s in June 2020…
Monday, June 1, 12:00-1:00pm
“Urinary Dysfunction in Parkinson’s”
Program: One of the common non-motor symptom complaints in Parkinson’s that can cause significant distress and impact quality of life are bladder difficulties. Urinary dysfunction in PD can include urgency, frequency, and nocturia (frequent nighttime urination). Our presenter specializes in uro-neurology where he studies and treats how the bladder is affected in neurological diseases such as Parkinson’s. His work centers on helping those who are experiencing urinary and sexual dysfunction through a comprehensive team approach.
Presenters: Jalesh Panicker, MD, Uro-Neurology, Consultant Neurologist at the National Hospital for Neurology and Neurosurgery, UCL Institute of Neurology, Queen Square, London
Indu Subramanian, MD, UCLA, Southwest PADRECC, Los Angeles
Presented by: PMD Alliance
Thursday, June 2, 9:00-10:00am
“Telemedicine: Engaging in Shared Clinical Decision Making”
Program: Telemedicine is the “new” office visit – but don’t let the fact that it’s virtual get you off course. Now more than ever, maintaining your medical appointments and advocating for yourself with your care team is a crucial part of living with a movement disorder. Virtual visits are not only easy, but allow you and your care partner to continue to actively participate in shared clinical decision-making regarding your health and well-being.
Presenter: Stuart Isaacson, MD, is Associate Professor of Neurology at the Florida International University Herbert Wertheim College of Medicine in Miami, Florida, and Director of the Parkinson’s Disease and Movement Disorders Center of Boca Raton in Florida. He is also the Medical Director of the Parkinson’s Research and Education Foundation.
Presented by: Parkinson’s Association of the Rockies
Tuesday, June 2, 10:00-11:00am
“Parkinson’s, Sleep and Me”
Program: Getting adequate rest and sleep is an important component of overall health and quality of life. Parkinson’s disease creates many challenges to getting a good night’s sleep, both for the person with Parkinson’s and the caregiver. This program provides information on how Parkinson’s disease affects sleep, and ways you can get a better night’s sleep while living with PD.
Presenter: Roseanne D. Dobkin, PhD, Associate Professor of Psychiatry, Rutgers
Presented by: Parkinson’s Foundation
Tuesday, June 2, 3:00-4:30pm
“The Status of Research in PD: Is There Hope?”
Program: Our presenter will discuss the latest research happening across the world of Parkinson’s disease.
Presenter: Brent Bluett, DO, Stanford Movement Disorders Center
Presented by: Stanford’s Parkinson’s Community Outreach
Wednesday, June 3, 9:30-10:30am
“Neurotrophic Factors and Parkinson’s”
Program: This webinar will discuss recent publications around the theme of Neurotrophic Factors in Parkinson’s. The eminent panel will be chaired by Van Andel Institute’s Professor Patrik Brundin comprises Professors Howard Federoff and Mart Saarma and CPT Trustee Lyndsey Isaacs.
Presenters: Patrik Brundin, MD, PhD, Lead Investigator, Van Andel Institute
Howard Federoff, MS, MD, PhD, Adjunct professor of Neurology and Neuroscience, Georgetown University Medical Center
Mart Saarma, PhD. Director, Saarma Lab, University of Helsinki
Lyndsey Isaacs, Cure Parkinson’s Trust, Trustee
Presented by: Journal of Parkinson’s Disease, The Cure Parkinson’s Trust, and Parkinson’s Movement
Wednesday, June 3, 12:00-1:00pm
“Advance Care Planning”
Program: Being in control of healthcare decisions and communicating those wishes with your loved ones is part of advanced care planning. These topics are so important yet can be very difficult to have. What all does advance care planning cover, what do you need to consider and how you feel about these choices are questions we are all faced with. Learn how to talk with your loved ones and healthcare providers about your medical decisions in the event of a crisis or end of life.
Presenter: Maya Katz, MD, UCSF Weill Institute for Neuroscience
Presented by: PMD Alliance
Thursday, June 4, 10:00-11:00am
“Managing Blood Pressure”
Program: Join us to review the effects of PD on blood pressure regulation and ways to screen and diagnose blood pressure problems. Approaches to treatment of blood pressure problems in PD will also be discussed.
Presenter: Albert Hung, MD, PhD, Massachusetts General Hospital
Presented by Parkinson’s Foundation
Thursday, June 4, 11:00am-12:00pm
“Healthy Eating and PD”
Program: Join as our nutrition expert talks about healthy eating practices, hydtration, and Parkinson’s-specific tips for planning meals.
Presenter: Michael Kortschak, MCN, RDN, LD
Presented by: Parkinson’s Foundation
Friday, June 5, 12:00-1:00pm
“Biopsy, Biomarkers, and Brain Donation”
Program: Research that helps determine early signs of Parkinson’s (clinical biomarkers), why some develop dementia and ways we can target future treatments all start with a lab and microscope. Through tissue biopsy from brain donation researchers can better understand neurological disease, advance science towards treatment and a cure. Join a discussion where our presented discusses his research, including subjects enrolled in a brain donation program investigating the potential etiology for Parkinson’s disease.
Presenter: Charles Adler, MD, Mayo Clinic, Phoenix, AZ
Indu Subramanian, MD, UCLA, Southwest PADRECC, Los Angeles
Presented by: PMD Alliance
Friday, June 5, 12:00-1:00pm
“Ask the Expert Webinar: Communication and Swallowing”
Program: Join Sherri Zelazny, Speech-Language Pathologist, for an educational hour about communication and swallowing difficulties that are typical with Parkinson’s disease. You will learn about how to identify signs and symptoms of communication and swallowing problems, and best practices for evaluation and treatment.
Presenter: Sherri Zelazny, MA RSLP CCC-SLP, Lee Silverman Voice Treatment (LSVT) certified clinician, Parkinson Society BC Board member
Presented by: Parkinson Society British Columbia
Monday, June 8, 12:00-1:00pm
“Neuropalliative and Supportive Care”
Program: Palliative care is often associated with hospice care and terminal illnesses such as cancer. However, the expansion of the palliative care model into neurological diseases is growing supporting the range of health-related quality of life concerns often experienced by people with Parkinson’s including management of medical, psychiatric, psychosocial and spiritual well-being. Discover how the palliative care approach can improve the quality of life of PwPs and their care partners.
Presenter: Benzi Kluger, MD, MS, University of Rochester Medical Center
Presented by: PMD Alliance
Monday, June 8, 1:00-2:00pm
“Ask the Expert Webinar: Driving with Parkinson’s”
Program: Driving is an important part of daily life for many people. A Parkinson’s disease (PD) diagnosis may lead to a number of questions around driving, such as whether people with Parkinson’s can continue to drive safely, what a driving evaluation or assessment may look like, and what options for transportation exist for someone who no longer feels safe driving.
Presenter: Kathryn McKall, OT, University of British Columbia
Presented by: Parkinson Society British Columbia
Tuesday, June 9, 10:00-11:00am
“Newly Diagnosed-Living Your Best Life with Parkinson’s”
Program: The Newly Diagnosed webinar will discuss how each newly diagnosed patient is different from another. In this webinar we will discuss the assessment and awareness necessary as a provider to understand each unique patient’s background, life stage, and social status in order to deliver the most optimal support. We will discuss the palliative care model in Parkinson’s disease as well as the interdisciplinary approach and initiating at time of diagnosis. This provides not only support to the patient but can help prevent caregiver burden and strain.
Presenters: Jenna Iseringhausen, BSN, RN, Faculty Group Practice Nurse and PF Center of Excellence Coordinator at the NYU Langone Marlene and Paolo Fresco Institute for Parkinson’s and Movement Disorders. Jenna is also an active nurse faculty member of the Parkinson’s Foundation Allied Team Training for Parkinson’s
Presented by: Parkinson’s Foundation
Wednesday, June 10, 9:00-10:00am
“The Power of Perseveramce”
Program: After having been diagnosed with Young Onset Parkinson’s Disease at the age of 46, Tim and his son went on to win the first season of the reality television series The Amazing Race Canada. Join Tim as he discusses where he has come since The Amazing Race Canada, the founding of U-Turn Parkinson’s, the writing of a book, the progression of his PD symptoms and how he continues to practice perseverance and the difference that it makes in his life.
Presenter: Tim Hague, Sr., Executive Director, U-Turn Parkinson’s
Presented by: Parkinson Society Southwestern Ontario
Wednesday, June 10, 12:00-1:00pm
“Understanding Pain in Parkinson’s”
Program: Widely experienced and encompassing different types, chronic pain has a significant impact on quality of life yet is often under-diagnosed and challenging to manage.
Presenters: Ray Chaudhuri, MD, FRCP, DSc, London
Indu Subramanian, MD, UCLA, Southwest PADRECC, Los Angeles
Presented by: PMD Alliance
Thursday, June 11, 10:00am-12:00pm
“Advanced Treatments Webinar”
Program: When medications no longer adequately control the symptoms of Parkinson’s disease, there are advanced treatment options that can help. In this presentation, Dr. Drew Kern will discuss treatment options that are currently available, including deep brain stimulation surgery and levodopa intestinal gel.
We will also discuss therapies that are in clinical trials and may be available in the future, such as gene therapy. For each of these treatments, we will discuss the risks and benefits of the therapies, when they should be considered and what to expect from them.
Presenter: Drew Kern, MD, MS, Assistant Professor, University of Colorado, Neurosurgery, Movement Disorders
Presented by: Parkinson Association of the Rockies
Thursday, June 11, 3:00-5:00pm
“Parkinson’s 101 for the Newly Diagnosed: Introduction to PD SELF”
Program: The final session in this three-part series partners with PD SELF (Self-Efficacy Learning Forum) to give participants a brief introduction into the SELF program. The presenters discuss strategies on how to master the management of their disease and to thrive with Parkinson’s.
Presenters: Hal Pottle and Betsy Mathies
Presented by: Parkinson Association of the Rockies
Friday, June 12, 2:00-3:00pm
“Freeze, Shuffle, Fall: Parkinson’s and Gait”
Program: Gait disturbances are a hallmark of Parkinson’s and related disorders and involve a variety of concerns such as short, shuffling steps, freezing episodes which feel like your feet are glued to the floor, festination, and other disturbances which can increase risk of falls.
Presenter: Simon Lewis, MD, University of Sydney
Presented by: PMD Alliance
Tuesday, June 16, 1:30-2:30pm
“Ending Parkinson’s Disease”
Program: Parkinson’s Women Support will host a book group discussion with Ray Dorsey, MD, a nationally recognized expert on Parkinson’s disease and co-author of the book “Ending Parkinson’s Disease.” Our meeting will focus on environmental risk factors for Parkinson’s disease. You don’t need to read the book to attend. Dr. Dorsey will also answer general questions about PD.
Presenters: Ray Dorsey, MD, University of Rochester
Lenny Siegel, CEO of the Center for Public Environmental Oversight
Jane Horton, homeowner in Mountain View, CA, near Google campus, exposed to TCE in her home
Presented by: Parkinson’s Women Support
Archived webinars (to be advised at time of webinar)
Wednesday, June 17, 12:00-1:00pm
“Cognition and Psychosis”
Program: Quality of life for the person with Parkinson’s and Care Partner is often impacted by the non-motor symptoms of cognitive changes and PD Psychosis. While these are difficult topics, knowledge is power. Join our speaker and Dr. Subramanian while they tackle the spectrum of illusions, hallucinations, and delusions that are referred to as Parkinson’s psychosis, and the memory and thinking changes that some people with PD experience.
Presenters: Daniel Weintraub, MD, Attending Physician, Consulting Psychiatrist, Parkinson’s Disease and Movement Disorders Center, University of Pennsylvania
Indu Subramanian, MD, UCLA, Southwest PADRECC, Los Angeles
Presented by: PMD Alliance
Thursday, June 18, 9:00-10:00am
“Moving with Mood Changes and Parkinson’s: A Look at Depression and Anxiety in PD”
Program: Panelists discuss how and why mood changes, such as depression and anxiety, happen in Parkinson’s; how you and your loved ones can talk about these symptoms with each other and with your providers; and what treatment options are available.
Presenters: To be advised at time of webcast
Presented by: Michael J. Fox Foundation for Parkinson’s Research
Thursday, June 18, 12:00-1:00pm
“Intimacy in PD”
Program: Intimacy encompasses deep emotional, mental, spiritual, and physical closeness in a relationship. The motor and non-motor symptoms of Parkinson’s can have an impact on all facets of intimacy and care partners are not immune from their own challenges, exacerbated even further by stress and sheltering in place. Whether you are married, single, person with Parkinson’s, care partner or adult child, this conversation is for you!
Presenter: Sheila Silver, clinical sexologist, private practice
Presented by: PMD Alliance
Thursday, June 18, 1:00-2:00pm
“Ask the Expert Webinar: Finding the Balance between Mindfulness and Mind-Wandering”
Program: This webinar explores the costs and benefits of mind-wandering, and considers possible ways of enhancing the curious form of mind-wandering (“mind-wondering”) that may be especially useful in addressing the fear and tedium associated with the ongoing COVID-19 pandemic.
Presenter: Jonathan Schooler, Professor, Psychological and Brain Sciences, University of California, Santa Barbara
Presented by: Parkinson Society British Columbia
Friday, June 19, 12:00-1:00pm
“Whole Health and Parkinson’s”
Program: The complexity of Parkinson disease benefits from an integrative approach where healing is as important as curing, where the focus is on wellness and supporting health as much as countering symptoms. This approach, called integrative health, is the cornerstone of a new effort to help physicians and patients work together to add health back into healthcare.
Presenters: Wayne Jonas, MD, Integrative Health Expert, Family Physician
Indu Subramanian, MD, UCLA, Southwest PADRECC, Los Angeles
Presented: PMD Alliance
Monday, June 22, 2:00-3:00pm
“Autonomic Dysfunction in PD”
Program: Sleep disturbance, swallowing disorders, gastrointestinal disorders, bowl and bladder issues, sexual dysfunction, and low blood pressure are the laundry list of common autonomic nervous system dysfunction symptoms in PD and other movement disorders. Join us as we uncover the mysteries of these non-motor symptoms.
Presenter: C. Padmakumar, MD, Parkinson’s Clinician and Researcher
Presented by: PMD Alliance
Wednesday, June 24, 11:00am-12:00pm
“Tips for Better Living with Parkinson’s”
Program: When people hear the words “you have Parkinson’s disease,” most begin imagining the end. But that’s not how the story usually goes. Many people with Parkinson’s can and do live well with it for decades. In fact, some find they live even better with Parkinson’s than they did before their diagnosis. The key to doing that is to take actions every day to live a healthier, more connected, and more meaningful life.
Presenter: Michael Okun, MD, Chair of Neurology, Professor, and Executive Director of the Norman Fixel Institute for Neurological Diseases at the University of Florida Health College of Medicine
Presented by: Davis Phinney Foundation for Parkinson’s