On June 8th, PMD Alliance presented a webinar called “Neuropalliative and Supportive Care.”

Palliative care is often associated with hospice care and terminal illnesses such as cancer. There is a growing expansion of the palliative care model into neurological diseases to support a range of health-related quality of life concerns. This includes the management of medical, psychiatric, psychosocial and spiritual well-being. 

In early June, the Journal of Parkinson’s Disease, The Cure Parkinson’s Trust, and Parkinson’s Movement offered a webinar on research into growth factors in the brain that could potentially be useful for treating neurodegenerative disease. The presentation featured a panel of speakers involved in Parkinson’s disease (PD) research. They discussed the findings of a workshop and consensus paper published in the Journal of Parkinson’s Disease, describing the types of growth factors that exist, how one can deliver growth factors to the brain, and what clinical trials have been conducted over the years. We at Stanford Parkinson’s Community Outreach viewed the webinar and are sharing our notes.  

In late May, Parkinson Canada offered a webinar on young-onset Parkinson’s disease (YOPD), commonly defined as a diagnosis of Parkinson’s disease (PD) before the age of 50. The webinar featured a panel of four speakers who all have young-onset PD.  They discussed their YOPD experiences, from diagnosis to medications to general topics on living with the condition. The speakers also answered audience questions. We at Stanford Parkinson’s Community Outreach viewed the webinar and are sharing our notes.