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July 2023 – Parkinson’s Webinars and Virtual Meetings with Speakers

June 30, 2023 By Parkinson's Community Help

Every month, Stanford Parkinson’s Community Outreach produces a list of Parkinson’s-related webinars and virtual meetings with speakers. Here’s our July 2023 list.

What’s the difference between a webinar and a virtual meeting? A “webinar” has a handful of speakers at most, and attendees have both audio and video muted. A “virtual meeting” usually allows attendees to be seen and heard.

We recommend you register NOW for anything of interest. That way, if there’s a recording, as a registrant you’ll receive an email alerting you to the recording availability. Also, note that a few webinars have registration deadlines well in advance of the webinar dates.

Stanford Parkinson’s Community Outreach will try to attend as many of these events as possible and share our notes. Our notes about PD webinars are often posted to our blog. We email our notes to the “Stanford PD Info” and “PD Caregivers” email lists, depending on the relevance to those audiences.

If you are a caregiver to someone with PD, we encourage you to be added to our “PD Caregivers” email list.

Unless indicated, the webinar and virtual meetings listed below are:

  • Times listed as PT. (We are based in California, after all.)
  • One-hour in duration. We suggest you join five minutes before the official start time. (Usually, the speaker talks for 30-40 minutes and there’s a question-and-answer session for the remaining time.)
  • For a general audience. (Again, caregiver-specific events are on our other list.)
  • Not focused on a single medication or single, branded treatment. (Those are excluded.)
  • Free

After that long preamble, here’s our list of PD-related webinars and virtual meetings in July 2023…


Wednesday, July 5, 10am

Understanding Deep Brain Stimulation (DBS)

Description:  The speaker addresses DBS as a treatment option for PD, essential tremor, and dystonia.   

Speaker:  Sarah Zurek, RN, DBS program coordinator

Host:  Hartford Healthcare

Call 855-442-4373 or use this registration webpage

This webinar is offered monthly and is not recorded.


Wednesday, July 5, 12pm

Global Perspectives on Parkinson’s

Description:  A panel discussion, live from the World Parkinson Congress in Barcelona. The discussion will be followed by a moderated Q&A.  Submit questions to info@briangrant.org in advance or during the live presentation.  Part of the monthly Wellness Webcast.

Host:  Brian Grant Foundation (BGF)

Registration webpage

A recording of the webinar will be posted to the BGF website


Monday, July 10, 12pm

Understanding PD

No description available.  Part of the “Everything Parkinson’s” webinar series.

Host:  Pacific Movement Disorders Center, Pacific Neuroscience Institute (PNI), Santa Monica, CA

At the meeting time, join by using this link:  bit.ly/PD-Webinars

Or participate by phone 669-900-6833, with webinar ID 821 8048 1494.

For more information contact Giselle Tamula, 310-582-7433, giselle.tamula@providence.org

The recording of the webinar will be posted on the Movement Disorders section of the PNI Health and Wellness webinars page


Tuesday, July 11, 12pm

Help Improve Speech Recognition in Parkinson’s Disease

Description:  The speaker will provide details on the Speech Accessibility Project online (SAP online), aimed at better automatic speech recognition for people with PD or who otherwise have trouble with speech.  The goal is for a person with PD to access smart speakers, cell phones, voice menus, etc.  SAP online is currently collecting speech samples from people with PD and other Parkinsonisms.  Participants record their speech by reading simple sentences and responding to questions from their home computer.   

Host:  PMD Alliance

Registration webpage

The webinar recording may be posted to the PMD Alliance YouTube channel


Tuesday, July 11, 5:30-7pm

Building Your Parkinson’s Care Team

Description:  Find out what a full PD care team is.  Both Kaiser and non-Kaiser experiences will be discussed.  Part of the Round Table virtual education series.

Speakers:

Kerrie Halmi, PD Active member

Kathe and Dan Friel, PD Active members

Host:  PD Active, Berkeley, CA

Registration webpage

The webinar recording will be posted to the PD Active YouTube channel


Tuesday, July 11, 7pm

Understanding OFF Episodes and Dyskinesia in Parkinson’s Disease

Audience:  People with young onset PD (and their partners)

Description:  The speaker will discuss the motor complications of OFF episodes and dyskinesia, how they can affect daily life, and the impact of various treatment options.

Speaker:  Jill Farmer, MD, movement disorder specialist, Global Neurosciences Institute, Pennington, NJ

Host:  Young Onset Parkinson’s Network (YOPN)

Registration website

A recording of the webinar will be posted to the Past Events section of the YOPN Events webpage


Wednesday, July 12, 11am

Current Research in Parkinson Disease

Audience:  Newly Diagnosed

Description:  The speaker will explore current clinical trials and research.  Find out how you can help the search for the cure!  Part of the Parkinson’s Disease Learning & Educational Resource (PDLER) series.

Speaker:  movement disorders specialist, Banner Sun Health Research Institute

Host:  Banner Health

Call 800-230-2273 or use this registration webpage

This webinar will not be recorded.


Wednesday, July 12, 12pm

Sleep Issues in PD

Description:  The speaker will review common sleep issues in Parkinson’s, the causes and treatment options.

Speaker:  Aliya Sarwar, MD, movement disorders and sleep specialist, Baylor College of Medicine

Host:  PMD Alliance

Registration webpage

The webinar recording may be posted to the PMD Alliance YouTube channel


Thursday, July 13, 11am

Report from the World Parkinson Congress

Description:  Panelists who attended the 6th World Parkinson Congress (WPC) in Spain will discuss their takeaways and answer questions.  Part of the “Let’s Talk Parkinson’s” series. 

Moderator:  Patrick LoSasso, PCLA President

Panelists:

Judy Yaras, PD care partner and co-host of “I’m Not Dead Yet!” podcast

John Ball, person with PD 

Edna Ball, PD care partner

Travis Robinson, person with PD and co-host of “I’m Not Dead Yet!” podcast

Host:  Parkinson’s Community Los Angeles (PCLA)

Registration website

A recording of the webinar will be posted to the PCLA YouTube channel


Friday, July 14, 10:30am-12pm

All About [PD] Research

Description:  The first speaker will discuss why research matters and provide an overview of the latest in PD research.  The second speaker will discuss the benefits of joining a research study.

Speakers:

Ece Bayram, MD, PhD, UCSD Parkinson & Other Movement Disorders Center

Christina Addington, BS, UCSD Parkinson & Other Movement Disorders Center

Host:  UC San Diego (UCSD) Dept. of Neurosciences

Registration webpage

A recording of the webinar will be posted to the UCSD Dept. of Neurosciences Community Symposium webpage


Sunday, July 16, 10am

The Quiver

Audience:  Women with PD

Description:  The Quiver (thequiver.org) publishes the artwork and literature created by people with PD.  Learn how creativity can help someone with Parkinson’s find creative solutions.

Speaker:  Jacob Kidney, LCSW, Mission PD 

Host:  Twitchy Woman

Only women with PD should participate.  Registration webpage

The webinar recording will be posted to the Events page of the Twitchy Woman website


Tuesday, July 18, 4pm

What Role a Physiatrist Plays with Parkinson’s Disease

No description available

Speaker:  Dorin Deitch, DO, RPM Restorative Physical Medicine

Host:  Michigan Parkinson Foundation (MPF)

At the webinar time, visit https://parkinsonsmi-org.zoom.us

Meeting ID:  660 963 7129

Password:  MPF2020 (letters are all capitalized)

Or participate by phone:  646-558-8656

The webinar recording may be posted to the MPF YouTube channel


Wednesday, July 19, 10am

Genetic Testing for PD

Description:  An expert in PD genetics will address whether all genetic testing is the same, who should consider genetic testing, how to arrange for genetic testing, whether insurance will pay, and what to do with the results. This is part of the APDA’s “Dr. Gilbert Hosts” webinar series.

Moderator:  Rebecca Gilbert, MD, PhD, APDA Chief Scientific Officer

Speaker:  Roy Alcalay, MD, MS, movement disorders specialist, Columbia University

Host:  American Parkinson Disease Association (APDA)

Registration webpage

A recording of the webinar will be posted to the APDA YouTube channel in the Dr. Gilbert Hosts playlist


Wednesday, July 19, 11am

The Ups and Downs of Dopamine: Managing OFF Periods and Dyskinesia

Description:  A movement disorder specialist will discuss therapeutic approaches including Deep Brain Stimulation (DBS) and the Duodopa pump, as well as non-therapeutic ways to get yourself moving again.

Speakers: 

Sean Udow MD, University of Manitoba

Stephen Latimer, person with Parkinson’s

Host:  Parkinson Canada

Registration webpage

A recording of the webinar will be posted to the Parkinson Canada YouTube channel


Wednesday, July 19, 1:30pm

PD 101

Audience:  Newly Diagnosed

Description:  If you or your loved one have been recently diagnosed with Parkinson’s, chances are you are looking beyond your doctor for answers to your questions and for support on how to live well on this new journey.

Host:  Neuro Challenge, Sarasota, FL

Registration webpage

This webinar is offered monthly and is not recorded.


Thursday, July 20, 9am

Genetics and Parkinson’s: Understanding the Role of Gene Therapy in a Cure

Description:  Expert panelists discuss how genes play a role in Parkinson’s, how gene therapy might treat disease, and more.

Multiple speakers

Host:  Michael J. Fox Foundation (MJFF)

Registration webpage

A recording of the webinar will be posted to the MJFF YouTube channel


Sunday, July 23, 10am

What we learned at the World Parkinson Congress

Description:  A conversation with several of our World Parkinson Congress (WPC) participants and care partners.  This event is open to everyone.

Host:  Twitchy Woman

Registration webpage

The webinar recording will be posted to the Events page of the Twitchy Woman website


Monday, July 24, 12pm

May not be specific to PD

Ketogenic / Low Carb Diet and Healthy Aging: Neuroscience Insights 

Description:  The speaker will discuss the hallmarks of aging as well as the roles exercise, emotional and social health, nutrition, and sleep have on healthy aging.  He will also go over the evidence for a low carb / ketogenic diet for neurodegenerative disease and how certain diet features strengthen circadian rhythm and improve sleep quality. 

Speaker:  Alexander Choi, MD, movement disorders specialist, Banner Health

Host:  PMD Alliance

Registration webpage

The webinar recording may be posted to the PMD Alliance YouTube channel


Tuesday, July 25, 12pm

Tackling the Tough Symptoms

Description:  The speaker will discuss non-motor symptoms and the quality of life challenges that can occur with PD, such as fatigue, apathy, impulse control disorders, dementia, psychotic symptoms, sleep disturbances, cognitive fluctuations, delirium, anxiety, and depression. 

Speaker:  Joseph H. Friedman, MD, movement disorder specialist, Brown University

Host:  PMD Alliance

Registration webpage

The webinar recording may be posted to the PMD Alliance YouTube channel


miércoles, 26 de julio, 10am

Nutrición para el Parkinson: delicias de garbanzo

Descripción:  Esta clase de cocina compartirá los beneficios de incorporar garbanzos en su dieta y recetas deliciosas.  ¡Puedes preparar las recetas en casa durante la clase o simplemente mirar!  Parte de la serie de seminarios web EP Health at Home: Miercoles de Bienestar.  Receta aquí. 

Presentadora:  Verónica Sierra, LD, licenciada en nutrición y ciencia de los alimentos, Color Your Plate, Inc.

Anfitriona:  Parkinson’s Foundation (PF)

Inscripción

La grabación del seminario web se puede publicar en el canal de YouTube de PF


Wednesday, July 26, 11am

How to Pay for Long Term Care and Protect Assets for Families with Parkinson’s Disease

Description:  The speaker will discuss the rising cost of long-term healthcare, how to pay for long-term care, and how to protect your assets when caring for yourself or loved ones with PD.

Speaker:  Lauren L. Fink, elder law attorney, Maser, Amundson & Boggio, P.A.

Host:  Parkinson’s Foundation (PF)

Registration webpage

A recording of the webinar will be posted to the PF YouTube channel in the Wellness Wednesday playlist


miércoles, 26 de julio, 3pm

¿Es el Parkinson una enfermedad hereditaria? 

Descripción:  Un especialista en trastornos del movimiento, socio de atención de la enfermedad de Parkinson, analiza qué genes juegan un papel en las causas genéticas de la EP, el porcentaje de riesgo de desarrollar la EP y las medidas que se pueden tomar para prevenir el desarrollo de la EP.

Oradoras: 

Paulina Gonzalez Latapi, MD, Northwestern University

Mayra Torres, Embajadora Líder de la Davis Phinney Foundation

Fernando Ramos

Anfitriona:  PMD Alliance

Inscripción

La grabación del seminario web se puede publicar en el canal de YouTube de PMD Alliance


Thursday, July 27, 11am

The Latest in Parkinson’s Research

Description:  No description available.  Part of the “Let’s Talk Parkinson’s” series. 

Moderator:  Patrick LoSasso, PCLA President

Speaker:  Jeff Bronstein, MD, PhD, UCLA

Host:  Parkinson’s Community Los Angeles (PCLA)

Registration website

A recording of the webinar will be posted to the PCLA YouTube channel

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