“Flying Solo: Alone with PD” – Panel Discussion Notes

“Flying Solo: Alone with PD” – Panel Discussion Notes

In December 2020, Parkinson and Movement Disorder (PMD) Alliance hosted a panel discussion on people living alone with Parkinson’s disease (PD). It featured two speakers, an aging life care specialist and a social worker, who talked about the importance of having a care system around you even if you are living independently from family or a caregiver.

“Behavioral Symptoms in Dementia” – Conference Session Notes

“Behavioral Symptoms in Dementia” – Conference Session Notes

On February 10th and 11th Dementia Alliance of North Carolina hosted the first Dr. Daniel Kaufer Memorial Caregiver Conference.  The theme of the conference was Behaviors: Awareness, Attitude (Day 1), and Action (Day 2).  I attended three sessions on Day 1.  These notes have relevance for those dealing with Parkinson’s Disease and dementia.

“Cognition, Caring, and Coping” – Panel Discussion Notes

“Cognition, Caring, and Coping” – Panel Discussion Notes

The World Parkinson Coalition (WPC) hosted a conference in September 2020 for Parkinson’s disease (PD) caregivers and family members. One of the sessions was a series of short presentations on cognitive changes in people with Parkinson’s, followed by a question-and-answer session. It featured four speakers all with different experiences in this topic: a registered nurse, a social worker, and a person with Parkinson’s with his caregiver husband. This discussion was focused on the role of PD caregivers while a person with PD is experiencing cognitive changes. 

“PANC Medical Panel” – Discussion Notes

“PANC Medical Panel” – Discussion Notes

In October 2020, Parkinson Association of Northern California (PANC) hosted a virtual conference on Parkinson’s disease and its many motor and non-motor symptoms. One session was a panel discussion on multidisciplinary care. In this session, the panelists talked about the importance of multidisciplinary care, the “lifetime model” approach to team care, nutrition for Parkinson’s disease (PD), emotional symptoms of PD, speech/voice therapy, and how people can get involved in PD research.

Coping While Caring- Webinar Notes

Coping While Caring- Webinar Notes

In November 2020, the Houston Area Parkinson Society (HAPS) hosted a day-long conference aiming to address the specific needs, challenges, and realities caregivers encounter every day. The first talk focused specifically on coping as a caregiver.  The presenter was Kathleen Crist, social worker and executive director of HAPS. She offered tips to prepare for caregiving, find success, and foster sustainability.  Kathleen discussed how to recognize unhealthy levels of stress and burnout.  Additionally, she addressed how to manage these feelings, both for the sake of your own health as well as the person you’re caring for.

Register Now for “Dr. Gilbert Hosts: Cognition & PD with Dr. Kathleen Poston” Webinar on February 17, 9am PT

Register Now for “Dr. Gilbert Hosts: Cognition & PD with Dr. Kathleen Poston” Webinar on February 17, 9am PT

Register now for the next episode of Dr. Gilbert Hosts, facilitated by APDA’s Chief Scientific Officer, Dr. Rebecca Gilbert.  On Wednesday, February 17, the special guest will be Kathleen Poston, MD, movement disorder specialist at Stanford, for a conversation about the cognitive effects of Parkinson's Disease. 

“Let’s Keep Moving With APDA: Evidence-based Treatment to Improve Balance” – Webinar Notes

“Let’s Keep Moving With APDA: Evidence-based Treatment to Improve Balance” – Webinar Notes

The American Parkinson Disease Association (APDA) presented a three-part webinar series “Let’s Keep Moving with APDA” last summer 2020 on different aspects of balance.  The third in the series, “Evidence-based Treatment to Improve Balance,” featured Tamara DeAngelis, DPT, a physical therapist at Boston University’s Center for Neurorehabilitation. She spoke about different balance treatments, and how they impact the different balance symptoms.  We at Stanford Parkinson’s Community Outreach listened to the webinar and are sharing our notes. 

“Parkinson’s Disease Psychosis: The What, When, Why and How” – Webinar Notes

“Parkinson’s Disease Psychosis: The What, When, Why and How” – Webinar Notes

The Davis Phinney Foundation for Parkinson's hosted neurologist Christopher Goetz, MD in a webinar about “Parkinson’s Disease Psychosis: The What, When, Why and How.”  Though the webinar was back in August 2020, we at Stanford Parkinson’s Community Outreach listened to the webinar and are sharing our notes. 

“Research & Advocacy – Engaging People with Parkinson’s in Research” – Symposium Lecture Notes

“Research & Advocacy – Engaging People with Parkinson’s in Research” – Symposium Lecture Notes

In August 2020, three Parkinson's organizations hosted a virtual summer symposium.  We at Stanford Parkinson's Community Outreach recently listened to each of the three sessions and are sharing our notes.

“It’s Not All Dopamine: Possible Mechanisms and Interventions for Falls in PD” – Symposium Lecture Notes

“It’s Not All Dopamine: Possible Mechanisms and Interventions for Falls in PD” – Symposium Lecture Notes

In August 2020, three Parkinson's organizations hosted a virtual summer symposium.  We at Stanford Parkinson's Community Outreach recently listened to the three talks and are sharing our notes.