In early September, occupational therapist and program coordinator of the St. Louis, Missouri chapter of American Parkinson Disease Association (APDA), Amanda Landsbaum, gave a talk introducing people with Parkinson’s disease (PD) to occupational therapy (OT). She described occupational therapy, listed the areas of life occupational therapists might address, and provided case examples of how occupational therapy can benefit someone with PD. Amanda’s talk is the first of a three-part series on “Thriving Through Occupational Therapy.”
… Full Story>“Care Partners: Why They and Their Needs Matter” – Webinar Notes
In early August 2023, the Parkinson’s Foundation hosted movement disorders specialist Dr. Janis Miyasaki on the topics of why addressing caregivers’ needs is vital, reasons caregivers might be reluctant to seek help, and sources of emotional support for caregivers. She speaks with many caregivers for those with movement disorders as part of her work, and is familiar with signs of caregiver strain. Also, Dr. Miyasaki cared for her mother with Parkinson’s Disease (PD). Even as a specialist in the field, she found it very difficult, but found that caregiving can also be an incredibly rewarding experience. Note: there is nothing specific about PD in this webinar. We share below our notes from the event.
… Full Story>“The Dangerous Drop: Neurogenic Orthostatic Hypotension” – Webinar Notes
In early August 2023, PMD Alliance hosted movement disorder specialist Dr. Salima Brillman for a webinar on the topic of neurogenic orthostatic hypotension (nOH). nOH is a drop in blood pressure when the body changes positions. This drop in blood pressure usually happens within a few minutes after standing up from a seated or laid down position. In addition to being physically unpleasant by itself, nOH can result in fainting or falls. Falling can seriously injure someone with Parkinson’s disease (PD), and may even lead to death.
… Full Story>“Actively Pursuing Well-being in Parkinson’s” – Webinar notes
In late June, the Parkinson’s Foundation hosted a panel on what coping skills and adaptations people living with PD and their care team can use to make things easier. Stanford Parkinson’s Community Outreach attended the webinar and are sharing our notes.
… Full Story>Register Now for APDA Webinar about Urinary Dysfunction & Parkinson’s Disease
The next webinar in the American Parkinson Disease Association’s “Dr. Gilbert Hosts” series is focused on urinary dysfunction and PD. The guest speaker is Victor Nitti, MD, Professor of Urology and Obstetrics and Gynecology at UCLA Health. Register now for this webinar, which will take place on Wednesday, August 23, 12pm PT.
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