Archives for December 2020

Hospitalization and Parkinson’s: What to Do, What to Know – Weninar Notes

Hospitalization and Parkinson’s: What to Do, What to Know – Weninar Notes

On December 8th PMD Alliance hosted a webinar as part of their wHolistic series on Hospitalization and Parkinson's: What to Do, What to Know.  Movement disorder specialist Stephen Reich, MD, spoke for an hour about what you need to know in order to advocate for your care and make the hospitalization experience better.

“Let’s Talk: Discussing the Diagnosis & Navigating Family Dynamics” – Lecture Notes

“Let’s Talk: Discussing the Diagnosis & Navigating Family Dynamics” – Lecture Notes

CurePSP hosted a day-long conference for patients, families, and caregivers living with neurodegenerative diseases, including Progressive Supranuclear Palsy (PSP), an atypical parkinsonism disorder. The speaker was Jessica Shurer, LCSW at UNC Movement Disorders Center. She talked about informing family and friends of a diagnosis in order to gather support, and how family dynamics can change after a diagnosis. (We are sharing these notes with those in the Parkinson's community since there was nothing PSP-specific about the talk.  The "diagnosis" could be any condition.)

Care Partner Town Hall: Self-Care @ Home – Webinar Notes

Care Partner Town Hall: Self-Care @ Home – Webinar Notes

On November 18th, the Parkinson's Foundation held a Care Partner Town Hall on the topic of Self-Care @ Home.  Two social workers from the Parkinson's Foundation took turns sharing information about self-care challenges caregivers face, tips for celebrating the holidays safely during the covid pandemic, self-care tips for a less stressful holiday, and their favorite web pages with self-care resources, including a caregiver assessment tool. 

December 2020 Webinars about Caregiving

December 2020 Webinars about Caregiving

Every month, Stanford Parkinson's Community Outreach produces a list of caregiving-related webinars and virtual events (conferences, symposia, and teleconferences). Here's our December 2020 list of caregiving webinars and virtual events.  Not all of them are about coping with holidays during a pandemic, but a few are.  Most of the webinars listed are for a general audience and are free.  Be sure to register in advance! 

Register Now for “Keeping Your Mind and Body Healthy” Webinar/Teleconference on December 10, 9am PT

Register Now for “Keeping Your Mind and Body Healthy” Webinar/Teleconference on December 10, 9am PT

This webinar/teleconference is part of the American Parkinson Disease Association (APDA) "Spotlight on Parkinson's Disease" series. On December 10, two speakers -- a movement disorder specialist and a physical therapist -- will review how to keep the mind and body healthy with PD. Register now.

Register Now for “Parkinson’s disease and the African American community” Webinar on December 9, 9am PT

Register Now for “Parkinson’s disease and the African American community” Webinar on December 9, 9am PT

“Dr. Gilbert Hosts” is a webinar series sponsored by the American Parkinson Disease Association (APDA), featuring Dr. Rebecca Gilbert, a movement disorder specialist.  On December 9, Dr. Gilbert will host a question-and-answer session about Parkinson's disease (PD) and the African American community. The speaker is neurologist Chantale Branson, MD.  

Northwest Parkinson’s Foundation – Blogger writes about things he did right and wrong, 19 years into PD

Northwest Parkinson’s Foundation – Blogger writes about things he did right and wrong, 19 years into PD

Peter Dunlap-Shohl, a blogger for the Northwest Parkinson's Foundation, posted an interesting exploration of the things he did right and got wrong over the last 19 years coping with Parkinson's disease (PD).  He makes six points, including:  "Don’t let Parkinson’s tell you what you may or may not do."  He uses the term FUBAR, which means ruined. 

The Impact of PD on Vision – Webinar Notes

The Impact of PD on Vision – Webinar Notes

On November 13th, the American Parkinson Disease Association (APDA) hosted a webinar on the effects Parkinson’s has on vision- fun fact: did you know that dopamine plays a role in your retinas as well as your brain? The webinar was hosted by Jennifer Gillick, the program director of the Northwest chapter of the APDA, and the special guest was Dr. Steven Hamilton. After Dr. Hamilton presented an informative overview of PD’s effects on vision, Jennifer relayed to him questions from the audience.